• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Sort of newly diagnosed

fineanddandy

Member
Messages
7
Hi all, long time lurker,decided to join,very good website, anyhow my story.

Firstly, sorry if this is in wrong section, I am just over 8 months with the diagnosis. My mmol was 12 and my hba1c was 14. Needless to say it was a shock, diagnosed with type 2. I had some weight on but nothing serious. There was a history of it in my family (relatives), but did not really think about it at the time. Also I had horrible stress levels for a few years due to losing my job, my dad nearly dying and setting up my own business to keep a roof over our head for my family. The doctor reckons the mix of the three did not help.

I would like to say to some people struggling yes it is hard, no one in my family knows I have it, my dad is finally in great shape and stress is not to be let near him, so can only talk to wife about it, that is hard. But on that note, you do need to talk about it to who you can, as it not easy or good for you bottling it up.

Anyway I was put on 3 x metaformin 500g, and was nervous about the pills, but unless you have stomach troubles which i didn't they seem fine. I tested like mad at first and the results were 9 mmol direction. After about two months it came down to 6.5 mmol. I have changed a good bit, I exercise a lot more and eat a lot healthier, and have lost two stone in this time. Last checked last week mmol was 5.2.

So onto my Hbac1 results, the first one was much better at something like 8.1, then the next was 6.3, the second last one was 4.1 and today the final one so far has came in at 3.6.(tested every two months)The doctor is I think more excited than I am, and we are now looking at reducing metaformin gradually and then eliminating it.

Finally, a few questions, as I am no expert on this condition, (but I know a bit more now thanks to this boards 8)
Anyone else follow similar path to me, what happens next, will my body be able do the job on its own, this would be nice but it would not bother me too much being on say 1 pill a day for the future.
Also, I am assuming here it all goes well, I can live a healthy life? and keep doing what I am doing will prevent anything else?, read some articles about whatever you do you will some day need insulin is this true for all? if that happens I will deal with it, but would prefer not to have to :D

Final final thoughts (Christ what a ramble apologies) to all those out there new to this, yeah it is a shock, yes it hard, yes there are days when it really gets you, but there is hope, I am a real optimist in life, it is always darkest just before the dawn, but get through that and there's a beautiful sunrise to wake up to! thanks for the help in advance and :thumbup:
 
Hi fineanddandy and welcome to the forum :)

As a long time lurker I expect you have seen the information I give to new members but here it is just in case you didn't see it. I am glad you are learning so much from the forum - as we all are. Ask all the questions you need to and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
hi, great to hear your story, as a newb it gives me hope to follow the same path. :)
 
Hi. An HBa1C of 3.6 is astoundingly low. With a level that low I would think the Met is no longer needed. Sounds like you have done all the right things and also have a 'naturally' low blood sugar when controlled?
 
Hi Andy that was my hope to show it can be done, there are ups and downs though, daibell im no expert but it does seems very good alight, meeting doctor next week, would say I will be reduced to 2 or 1 a day i would say, yes i seem to have alright, i really am careful in what i eat, but i dont go crazy over carbs i balance it all out, my fitness pal (phone app)imo is epic, thanks for support anyone wants more details on what i did right (and wrong) i can pm or expand more, good to join at last and talk help people. Oh yes finally yeah blood controls seem very good, will keep ye updated next week after visit :P
 
My dad was diagnosed with type 2 in his late 50s and lived to the ripe old age of 85 with only a little metformin and a healthy diet. No complications either. Whereas I was diagnosed at the age of 46 and was on insulin by the age of 51, despite a healthy diet. It can be very random. Although my diabetic uncle died at 75, obese and with ulcerated feet he couldn't walk on, because he took no notice of healthy diets, so he's definitely the example not to follow...

Sent from the Diabetes Forum App
 
fineanddandy said:
Also, I am assuming here it all goes well, I can live a healthy life? and keep doing what I am doing will prevent anything else?, read some articles about whatever you do you will some day need insulin is this true for all? if that happens I will deal with it, but would prefer not to have to :D

Your hba1c demonstrates clearly the beneficial effects of diet and exercise and it would seem to me that getting off metformin is a good possibility. One of the reasons why doctors put people on it is that they have heard all the good intentions before but people don't do what is necessary to get their hba1c down.

The longer you can do without meds the better. You may need meds in the future to help you control your BG but cross that bridge when you come to it. All the other prognoses are statistical and include a large number of people who, because they are on meds, think that they can carry on as before and the meds will make everything alright for them. I do not know of a long term study of people who followed a regime of exercise and diet and who demonstrated an impressive reduction in BG levels. Plenty of short term studies exist to prove the benefits, but there's nothing about going back to these people in 20 years time to see how they are getting on. Many people who have had diabetes for a long time were given completely different advice and medications all those years ago so there experiences are not comparable.

Do not depress yourself by reading gloomy statistics. I had cause to look into how these tend to be compiled for synovial sarcomas. The general poor prognosis of a less than 20% survival rate of 12 months included many cases of misdiagnosis in the first instance plus inadequate treatments. Yet this poor prognosis was everywhere in the literature. The Royal Marsden investigated cases from 1981 - 1990, 1991 - 2000 and 2001 - 2010 and sorted them by initial diagnosis and by treatments and showed that in the last group, that less than 20% survival rate for 12 months was now in fact greater than 60% for 5 years, a much more optimistic outlook. Yet this does not appear in much of the literature. I also know from personal experience of over ten years ago when I was diagnosed with a heart condition in the 'very severe' category and, when I asked if there was anything I should be doing, was told that there was no chance of improvement and the best that could be hoped for was stabilisation. Within 3 years the condition had 'gone away', much to the astonishment of the consultant who said, 'we don't normally see this happen'. I see many people in their 70s with active lives despite their diabetes and I am sure that having a positive attitude is a major factor.
 
carandol said:
My dad was diagnosed with type 2 in his late 50s and lived to the ripe old age of 85 with only a little metformin and a healthy diet. No complications either. Whereas I was diagnosed at the age of 46 and was on insulin by the age of 51, despite a healthy diet. It can be very random. Although my diabetic uncle died at 75, obese and with ulcerated feet he couldn't walk on, because he took no notice of healthy diets, so he's definitely the example not to follow...

A concise and very useful summary.

I don't think anyone in my family ever lived to the age of 85 so that's one to aim at!
 
Thanks all, very sound advice! I am off to the doctors tomorrow will update ye all then, I am actually happy with the Metaformin it does not make me sick, I have so much energy now than before, although i do feel this is due to diet and exercise as well.
What i find weird though is I can have a few drinks, no real spike, i can have somewhat starchy foods no spike and i love fruit, no spikes, i think i might be lucky in that regard. I went to sub doctor last week who was really young but very informed and he said to him it seems like i have "just the barest amount of type 2" i have no idea what this means but it sounds good, my main doctor will probably have more info tommorow
if I was told to be on say 1 pill a day for the rest of my life i would be happy with that, having to take insulin though does seem like another step, i suppose its the randomness of it that is a bit hard to deal with, i wonder is their a link between how much damage t2 does before its caught and long term need for insulin, my doctor reckons without a doubt I must have got it in late 2010, early 2011, and was treated in mid 2012, so i might have an ok supply of beta cells? to keep me going... anyhow all random speculation will update soon, great to talk, there is a lot of idiotic mindsets out there on this topic, good to have rational/any talk :)
 
Hi all, good news, went into my main doctor today, he confirmed good results, he sees no reason why I cant go on to live great and healthy life, and feels it unlikely I will need insulin in the future after talking to other experts on this.I seem to be the poster child for some others as well which I find hilarious! I know there is always potential for insulin which in itself is not a bad thing, it is another bridge to cross, but hey i will leap over it if it means a longer life! but I realise there is no point on seizing on this, you could be killed in a car crash, or you may not, no point in the what ifs....
No guarantees in life, but hey my advice for others is take one big step at a time, you will go back as well as forwards, but take the good news when you can and celebrate life. In fact T2 seems to be like life itself, it can throw some amount of **** at you, but you can get through it.
So in summary down to 2 metaformin, down to 1 after next test if this goes well, lost 2 stone (11 stone 9 now bmi 23 from 28) and feel bloody amazing, listen over the last year, I have lost my job, nearly lost my dad, got diagnosed with type 2 and spent about 70 hours a week setting up new business. The up side? dad is great, walks 3 miles a day now! and he is 74!, the business is booming and hey T2 I am in control, it is not controlling me.... keep the faith and yes there are bad days, but there will be great days as well, celebrate them... night all :wave:
 
Wow, what an inspiring story! And in a relatively short time as well - you've done amazing! :)


Type 2 on Metformin, diagnosed Jan 2013, ultra low carber, Hba1C at diagnosis 8% (64), average BS now between 5 and 6 mmol.
 
Fair play! Finzi that is great also in what over 2 months?, its a real roller coaster at the start but it does get better, keep up the good work, im on a medium carb diet i will explain that again at another point, lol night all :)
 
fineanddandy said:
Fair play! Finzi that is great also in what over 2 months?, its a real roller coaster at the start but it does get better, keep up the good work, im on a medium carb diet i will explain that again at another point, lol night all :)

Yes, it will be two months on 18 march (feels MUCH longer lol). Weight loss is not as fast as it was at first (losing probably a kilo a week now) but that's ok. I suppose. I don't get as much exercise as I'd like because I have a very sedentary job. Got my hba1c test coming up on Monday so lets see how that goes. I'd be very happy with 38 (5.5) because that is what my meter predicts from averages. If I'm much over that, it means I'm missing some spikes somewhere (I test pre meal and two hours after).


Type 2 on Metformin, diagnosed Jan 2013, ultra low carber, Hba1C at diagnosis 8% (64), average BS now between 5 and 6 mmol.
 
Hi Finzi, hope it goes well, remember good or bad its about steady progress imo, I am a fitness pal app and gps+ app meter fanatic, everything I eat i try to exercise off now, i aim for 1300 calories on 3 days a week, 1600 2 days a week, and the weekend is normally 2000 or a little over. I walk about 30 miles a week. I find this combination sort of freaks out your metabolism, i have at the start put on weight on a very low calorie diet, as i think your body goes alright so if he is eating to low i need to store this fat lol Anyhow good luck monday.
 
Back
Top