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STILL ALIVE!! Dr Bernstein...wow

I never kept a diary..... until I was rushed to hospital because I took way too much insulin.....had to drink 3 to 4 litres that day...I still don't keep a diary but at least I have a way better idea of my insulin requirements because I test at least 4 to 8 times a day taking into account what influenced my blood sugar.....I'm good with the maths and logic but not good with schedules and compliance. Or with diet so im trying to work on my weak points.
 
CathP said:
Thanks for your good wishes. We're over a year into the dx now and a LC diet, and I'm confident that she's got a bright future ahead of her. Diabetes is an inconvenience, but life is good.
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My dd is also 4 I'm also optimistic she'll have a great and healthy life. We are also low carb. I agree diabetes is inconvenient but manageable so onwards and upwards. I like your attitude.
 
So I'm curious, @CathP and @Type1asem, have you been supported in your approach by your diabetic clinic? Have they provided you with the equipment to manage this tight control? Well done, both of you. I am sure your children's future will be bright. They will grow up with the knowledge and ability to effectively manage the condition. Positive attitudes are so important and of course, feeling empowered and in control is vital. Well done you!
 
AtkinsMo said:
So I'm curious, @CathP and @Type1asem, have you been supported in your approach by your diabetic clinic? Have they provided you with the equipment to manage this tight control? Well done, both of you. I am sure your children's future will be bright. They will grow up with the knowledge and ability to effectively manage the condition. Positive attitudes are so important and of course, feeling empowered and in control is vital. Well done you!
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Hmmm, that would be a definite no! Our 'team' disapprove strongly of our approach, believe we are damaging our daughter both physically and mentally, and think we need psychological help ourselves to 'come to terms' with her diagnosis!
We are actually very well adjusted to the dx, and are confident and competent in managing her, it's just a shame we have no support. Neither the health board nor the education authority support us, to the point where they wouldn't work with us to allow us to input into her school health care plan. She wasn't safe in school, so I've ended up home schooling 6 year old twins (1 with t1) and my 4 year old son. My daughter meets the criteria for a funded dexcom as she's hypo unaware, but the consultant won't put a funding request in so we self fund...luckily I love the home schooling, the children are a joy, we have very supportive friends etc. And my daughter is extremely healthy, which is paramount.
 
Unbelievable! Except it's not, it's what I would have expected. You are doing the right thing absolutely. All the best to your family, I am glad you are enjoying the home schooling experience, what a shame it had to come to that!
 
azure said:
@CathP By 'hypo unaware' do you mean she's a little too young to be able to identify her own hypos?
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Maybe, what age do children normally develop hypo awareness? She just turned 6. Prior to getting the dexcom, she's been 1.6mmol, still running around playing, no signs or symptoms. With LC and dexcom she's obviously never that low anymore, but ocassionally dips to lower 3's, with no awareness on her part and no symptoms.
 
I think it varies depending on the child. Also, of course, it does take time to identify signs of an approaching hypo, even for an adult. There are subtle signs which you learn as you go along.

Moreover, in some circumstances it's possible to miss or confuse the signs eg if an adult's main symptom was feeling hot and sweaty, and they were at the gym, you can imagine that any hypo would be less apparent when they're sweaty anyway, and probably feeling tired.

Has her team offered any tips? Eg talking to her about how she feels at, say, 3.2, to help her identify any signs?

The only child similar in age with Type 1 that I know tends to either get emotional and/or 'run out of batteries'.
 
AtkinsMo said:
So I'm curious, @CathP and @Type1asem, have you been supported in your approach by your diabetic clinic? Have they provided you with the equipment to manage this tight control? Well done, both of you. I am sure your children's future will be bright. They will grow up with the knowledge and ability to effectively manage the condition. Positive attitudes are so important and of course, feeling empowered and in control is vital. Well done you!
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On the whole no however, we have three dsns and one always says you're her mum so what she eats is up to you so I think she agrees but of course she hasn't actually said so. My dd's school on the other hand has been brilliant even though she's the only child with type 1 in the school they've embraced us and have been on board 100%.
I don't mention food at our appointments anymore. We are also still in the honeymoon period so things are not that straightforward.
All in all my dd has adjusted really well and we're also confident in managing everything. I thank God for Dr B and type one grit they've made things that much easier to manage.

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