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Stress-vent, children, coping and feeling alone.

kalie92

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
Hello guys and girls, this is my first ever post on here so I don't really know what to talk about or how to get it across. (this is going to be long, so I can understand if you don't want to read it... If you want to, scroll through to this '' )

I had my first session with a psychologist yesterday; here's why I went. (She suggested I write this post to see if anyone has been through similar, or parts of what I'm going through...)

It all started in 2004 (when I was 11), when I got diagnosed. First year or two I was ontop of everything, checking my bloods everytime I needed to and taking insulin when required. Then it went downhill, soon as I hit year 9/10 in high-school I just left my diabetes alone, didn't take my insulin, couldn't have cared less about it. I think I just wanted it to 'disappear' and not have it anymore. It was only until the age of 19-20 (after I left high-school and college) that I really thought about getting it back in control. The only reason for this is because j fell pregnant with my eldest, who is now three. This is where the stress started. I fell pregnant in September '12, I was about 10weeks gone and my partner decided to turn around to me and say "I can't be dealing with all these hospital appointments and constant check-ups with you. See you later" (in short, obviously). So, I went through the pregnancy on my own, and met my current partner, we'll call him 'J'. J has been there through everything. He was there at the birth, at the scans, at the hospital with me every week.. He is a godsend. My eldest was breech throughout the whole pregnancy. The doctors couldn't think why this was, they tried turning her in the womb but put me in so much agony while doing so that they gave up and decided to put me in for an elected caesarian section. When the day came, the section took longer than expected. Turns out the reason why she didn't turn was because she was born with ABS (Amniotic Band Syndrome - it's where the inner lining of the womb breaks strings off and those strings can wrap themselves around that babies digits and limbs). Luckily she was fine, no major complications, she has no right big toe, her 3rd and 4th fingers on her left hand were fused and bands wrapped around her 4th and 5th fingers on her right hand which stopped them from growing.
Everything was lovely in life. We just had a baby girl, and life at home was great. Three months along, we find out we're pregnant again. So up we went to the hospital every fortnight for the check ups and scans.. Pregnancy was fine, not complications and born via c-section because it was 4 days under a year since my last section.
Children are a handful! Especially if you have them as close as I did!

Right, here comes the real dilemma and the root for most of my current problems.
Since October last year (2015) I've been going to the doctors on and off for reoccurring thrush (yeast infection). First time I went I was given antibiotics and was told it would go within 2weeks. 2 weeks went by, it was fine, all cleared. About a further two weeks on, however, it came back. So off I went to the doctors to say it has come back. They sent me away again with the same antibiotics, just a bigger dose. It cleared up for about 3 weeks... Then came back again. I was like "right, this can't be thrush.. Not this frequently anyway.." Doctor said to me she think it may be Lichen Sclerosis (LS) so she sent me up the hospital to have a biopsy done to diagnose what it was that was bugging me. I then received a letter through the post asking me to go and see the Gynecologist up at the hospital. I thought it was going to be my results telling me it was LS and that we'd get it sorted from there. But no. Turns out a massive bombshell decided to come crashing down on my head. I have been diagnosed with Vulval Intra-epithelial Neoplasia (VIN).

http://www.macmillan.org.uk/informa...isk-factors/pre-cancerous-conditions/vin.html

It's a type of pre-cancerous skin condition and it turns out, there's a very high chance of it turning into C..... There's a way of getting rid of it, by operation, where they remove the infected skin. However, they won't do the operation. :'( this is because my Hba1c is too high. They want me to get it down to 69, the last time I had it checked, it was 77. This is now causing me to get stressed and anxious as I am trying my hardest to get my sugars down, but I am going no where... I have stopped snacking, I'm test at least 12 times a day, but whatever I do, however much I do it, they just won't decrease.
Ontop of this, my two daughters (baring in mind they're only a year apart) are at that stage where they are trying to figure out boundaries and are pushing every single button to agitate me. As well as my other half has now received his date to begin his training for the RAF. So, all in all, I'm going to be a mother of two young children, who are soon to be starting school, other half won't be at home to help, going through the stress, anxiety and depression of this pre cancer malarkey, ontop of my diabetes. My diabetes is being left behind with my head in other places. And I don't know how I can cope much longer. I also have my driving test in a week!

Please let there be someone else who is in a similar position... I need help and someone to talk to.

Partially a cry for help. Partially a cry for support and a friend.

Sent from my D5803 using Diabetes.co.uk Forum mobile app
 
Hey @kalie92 try not to feel down, there are quite a few type 1 mums on here, I think we have all had our fair share of challenges with pregnancy then coping with kids and still managing our own care. Having kids with type 1 is hard as you should put them first, but really the difference is that you have to put yourself first, they can only be happy if mum is happy.

How are you managing in your daily diabetes care ? I see you are testing alot, but what insulins are you on and what does a typical day look like BG wise ?

My personal tip is that when things get too much, go into another room and shout, scream, cry or do what you need to do to vent your emotions, then carry on, I had to do this a couple of times, I am generally a calm collected person but kids have an amazing way of pushing the buttons !

Take one day at a time, the HbA1c will improve, testing alot is great, but then it's important first to get your basal right and then your carb/insulin and correction ratios.

Stay strong lovely - you are already doing an amazing job ;)
 
Hi @kalie92 Sorry to hear about your medical problem. I suppose at least it was spotted, but it sounds a worrying thing for lots of reasons, and I can understand your stress.

I've got 3 children, and there are lots of other parents here so we all know how much work it can be! My first tip is to give yourself permission not to be perfect. Look at your daily life and cut out the trivia or stuff that's stressing you more. Don't worry about housework, don't add more and more to your To Do List, as it only increases the pressure. See if you can rearrange things, or postpone things that are adding to the stress. When you feel things are getting on top of you, even lessening the load a tiny bit can make a big difference.

To lower your HbA1C, I think you have to be systematic. Start with a basal test and get that sorted because if that's right, it makes a firm foundation on which to build. Then move on to your boluses and meal ratios. Don't assume they're fine - check each one gradually. If you're confident and if your med team say it's ok, aim for stricter targets after meals. That's what I did in pregnancy when control had to be very tight. I'd prefer to top up with a mini-snack if necessary, than be fighting a post-meal high.

Testing lots is excellent - if you use the results and learn from them. Test and react. If you don't have a half unit pen for your fast acting insulin, get one. That way you can correct more often and more accurately. This should help you achieve your tighter targets.

I imagine my blood sugar as a shopping trolley with a bit of a wonky wheel. It needs lots of tiny nudges to stay on track to the good HbA1C.

Sending you my best wishes,

Azure
 
I know what you feel like but from other issues all rolling in together and accumulating in a way that you feel totally hope less and over it all.

Heart attack, breast cancer, diabetes, surgery planned, break down of relationship, carpy work situation... It seamed every where I turned something else was going the wrong way.

An awesome GP, a great cancer counsellor and lots of information were the start to my journey turning around.

My BS numbers started coming down the more I started to take control. Don't get wrong its been a battle and I still have really bad days but with the support of my new found partner, my GP, a new psychologist an awesome new Specialist things are definitely way better than they have been in a long time.

You sound like you have some awesome support around you. Just keep building those networks and don't be afraid to put up your hand and ask for help and then graciously accept it when given.

Take each day, a day at a time. Look at the positives and when you are having a bad day reflect on how far you have come and how you have managed to get to where you are today.

Its taken me a long time to realize that I am much stronger and have over come the odds much better than my worst day these days.

I wish you much luck but its a journey that you need to take one step at a time!
 
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