Terminal and. Scared - UPDATE !

[totsy]

morning kevin,
sending love to you and wendie

 

[Sable_Jan]

Nice to see Tigger has bounced back yet again! I saw the thread "Terminal & Scared - UPDATE pop up in the email I get and went straight to it to find out how you were doing. I somehow lost the thread of the thread if you catch my drift but I'm still with L plates as far as forums are concerned. Found I can follow you with email updates now so that's what I'll do

Sorry to hear you've been so poorly but glad to hear you are over the worst of it.

Re the "usual" aches and pains a friend of mine (and also one of our dogs, a German shepherd) is on a painkiller called Gabapentin - it works directly on the part of the brain that perceives/receives the pain messages signal (not that I know how other painkillers work) and in both her case, and the dog's case, it has worked wonderfully well. No idea if you can take it with the meds you are already on nor if it is suitable for people with diabetes but thought I'd pass the info on. Can't hurt to enquire about it and may do some good.

Add me to your list of folks who want to continue reading your posts and as to the Troll, well I couldn't believe what I was reading....... but you know what happened to the Troll - the Big Billy Goat Gruff tupped him off the bridge!

Might be worth your looking to see if your laptop/phone or whatever has the facility of speech to text input - I believe many do - just found this on mine by searching for Speech

 

[Sable_Jan]

Folks Many of you have been longstanding supporters of the thread, and of Wendie and I,

It has however become clear that a few of you no longer believe me, or in me and Wendie,

I hoped to start a Blog, but my recent problems and illness have drained me,

I will be around until my last day, But only if you really want to hear the message, and to accompany me on this final journey

PLEASE Folks let me know your feelings ?

I would consider it a privilege to join you and listen to your message along the way

 

[donnellysdogs]

Just a bit of info from a chronic pain specialist that I saw this week...

Our chronic pain dept at our hospital see it as a good result if a patient gers 50% relief from pain and discharge you from their care...

The other thing was that only 50% of patients that were referred to the chronic pain department attended their appointments.

So please bear this information in mind if you get complications such as neuropathys.. Attend appointments and be realistic about the amount of pain relief that you may be able to get.


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[kman]

Just a bit of info from a chronic pain specialist that I saw this week...

Our chronic pain dept at our hospital see it as a good result if a patient gers 50% relief from pain and discharge you from their care...

The other thing was that only 50% of patients that were referred to the chronic pain department attended their appointments.

So please bear this information in mind if you get complications such as neuropathys.. Attend appointments and be realistic about the amount of pain relief that you may be able to get.


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Very Sound Advice indeed, and th reason I understand I will never ever be pain free, but you learn to live through the pain, and to make the most of the life you CAN have, !

 

[kman]

Nice to see Tigger has bounced back yet again! I saw the thread "Terminal & Scared - UPDATE pop up in the email I get and went straight to it to find out how you were doing. I somehow lost the thread of the thread if you catch my drift but I'm still with L plates as far as forums are concerned. Found I can follow you with email updates now so that's what I'll do

Sorry to hear you've been so poorly but glad to hear you are over the worst of it.

Re the "usual" aches and pains a friend of mine (and also one of our dogs, a German shepherd) is on a painkiller called Gabapentin - it works directly on the part of the brain that perceives/receives the pain messages signal (not that I know how other painkillers work) and in both her case, and the dog's case, it has worked wonderfully well. No idea if you can take it with the meds you are already on nor if it is suitable for people with diabetes but thought I'd pass the info on. Can't hurt to enquire about it and may do some good.

Add me to your list of folks who want to continue reading your posts and as to the Troll, well I couldn't believe what I was reading....... but you know what happened to the Troll - the Big Billy Goat Gruff tupped him off the bridge!

Might be worth your looking to see if your laptop/phone or whatever has the facility of speech to text input - I believe many do - just found this on mine by searching for Speech

View attachment 3621

Jan, thank you so much for your post, I am taking Pregabalin which like Gabapentin is an Epilepsy medication that works on Chronic Pain, particularly Neuropathic Pain, my dosage was rececntly increased when my condition deteriorated, andit has helped take the edge off at times, but does make me very drowsy !

I am using a tablet, the Kindle Fire HD so cant uze windows software, but i should see whats available for it, thanks sweetie,

Love. and. Hugs.

Kevin. and. Wendie.

xxx.

 

[CollieBoy]

...... but you know what happened to the Troll - the Big Billy Goat Gruff tupped him off the bridge!

Perhaps that randy old goat may have tried, but the bowdlerized version of Grimm's I had he tipped him off the bridge

 

[connie104]

Just a bit of info from a chronic pain specialist that I saw this week...

Our chronic pain dept at our hospital see it as a good result if a patient gers 50% relief from pain and discharge you from their care...

The other thing was that only 50% of patients that were referred to the chronic pain department attended their appointments.

So please bear this information in mind if you get complications such as neuropathys.. Attend appointments and be realistic about the amount of pain relief that you may be able to get.


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This seems like the answer to my question I posted yesterday do we expect to much from our doctors? After my experience at the pain clinic


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[donnellysdogs]

There are much stronger drugs than pregabalin etc... My pain consultant is teying new treatment on my legs for 3 weeks as she says she really doesnt want stronger doses and morphine based drugs in me....

But why not? If they could take a way more pain why cant I have the morphine based ones?


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[connie104]

This is what my problem is though they kill the pain but the side effects are not good so sometimes reduced pain might be better .


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[Sable_Jan]

Perhaps that randy old goat may have tried, but the bowdlerized version of Grimm's I had he tipped him off the bridge

When I was a kid in rural Lancashire (and in the books I had at the time) tupped merely meant to hit with your head (still does to me) - guess it means something different now! (where's the blushing icon when you want one)

Does explain why I have odd times heard of a Billy Goat referred to as a Tupp instead........

 

[Sable_Jan]

I am using a tablet, the Kindle Fire HD so cant uze windows software, but i should see whats available for it, thanks sweetie,

Love. and. Hugs.

Kevin. and. Wendie.

xxx.

No probs Kevin hope you find something similar
Hugs back to the both of you
Jan x

 

[CollieBoy]

When I was a kid in rural Lancashire (and in the books I had at the time) tupped merely meant to hit with your head (still does to me) - guess it means something different now! (where's the blushing icon when you want one)

Does explain why I have odd times heard of a Billy Goat referred to as a Tupp instead........

Tupping is something a male (usually a ram or tup) does to a female of the species.

 

[Sable_Jan]

Tupping is something a male (usually a ram or tup) does to a female of the species.

Gives a whole new meaning to what Tupperware (tupper wear) could be doesn't it :O

 

[CollieBoy]

Gives a whole new meaning to what Tupperware (tupper wear) could be doesn't it :O

A plastic box to keep your nuts from going fusty (mouldy) in, Eh!

 

[Sable_Furr]

Hi Kevin - I generally don't write but I do read and have been following you since your first posted. You have no idea how brave you are! I was quite angry when you wrote that some people didn't believe you - thir problem, not yours! If writing here helps you then you write to your heart's content, you have plenty of support.

My husband spent much of his type 2 diagnosis in denial (he used to say that he'd just do what he wanted and enjoy life and then he just wouldn't wake up one day), with the end result that he has charcot in both feet, and is on crutches and a wheelchair, he has end stage renal failure following a failed kidney and pancreas transplant which kept him in hospital for 5 months, he takes tramadol and gabapentin for pain relief and his eyesight has deteriorated drastcally. It's very easy to say "if only he'd listened to the doctors" but you have to deal with what you've got, don't you?

My husband also uses a Kindle Fire HD and I am currently looking for voice software for him because his sight is so poor.

 

[Sable_Jan]

Hi Kevin - I generally don't write but I do read and have been following you since your first posted. You have no idea how brave you are! I was quite angry when you wrote that some people didn't believe you - thir problem, not yours! If writing here helps you then you write to your heart's content, you have plenty of support.

My husband spent much of his type 2 diagnosis in denial (he used to say that he'd just do what he wanted and enjoy life and then he just wouldn't wake up one day), with the end result that he has charcot in both feet, and is on crutches and a wheelchair, he has end stage renal failure following a failed kidney and pancreas transplant which kept him in hospital for 5 months, he takes tramadol and gabapentin for pain relief and his eyesight has deteriorated drastcally. It's very easy to say "if only he'd listened to the doctors" but you have to deal with what you've got, don't you?

My husband also uses a Kindle Fire HD and I am currently looking for voice software for him because his sight is so poor.

Nice to hear from another "sable"

I didn't know what Charcot was so I looked it up - here's the link to one of the articles I found in case anyone else would like to know more
http://www.patient.co.uk/doctor/neuropathic-joints-charcot-joints - I didn't realise feet could be so badly affected, I thought it was just circulation and blistering problems leading to infection. I've always made sure that my shoes fit my feet and not the other way around so at least if I do go on to develop diabetes I won't need to worry about my shoes causing problems

I'm fully with you on that - that if anyone doesn't believe Kevin then it's their problem to deal with.....

All the best to you and your husband
Jan

 

[Susan1974]

Hi Sable_Jan

Just in relation to your voice software, have you tried searching Google play for an app? Quite often you can find something to try for free. When I was still working I googled for a digital dictation program and found a really good one with voice recognition for free.

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[Sable_Jan]

Hi Sable_Jan

Just in relation to your voice software, have you tried searching Google play for an app? Quite often you can find something to try for free. When I was still working I googled for a digital dictation program and found a really good one with voice recognition for free.

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Thanks Susan

My phone has voice input if I want to use it and I remembered seeing voice input on my laptop as well and thought it would be helpful for Kevin. Don't know much about the Kindle Fire tablet that he uses but if you can Google Search with it then maybe he'll be able to pick up something to try. Fortunately, other than a little arthritis in my finger joints at the moment I'm ok for typing.

You've reminded my by using the Forum App that I've got it on my phone too but never tried it out yet - at times my phone is faster than my laptop - when it comes to starting up at least .....

 

[donnellysdogs]

I know of a type 1 34 year old that has had both legs amputated due to not looking after himself. He was diagnosed 30 years ago. Feet are very important to check...


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