Terrible pains in leg and arm muscles

[PatsyB]

Started 12 weeks ago muscle pains in both arms and legs, felt awful but carried on I was out walking my dogs and thought as I got half way around I feel weird so checked my levels which had risen instead of going down as they normally did when I was exercising, so I did no more but rang the Doctors and asked for emergency appointment which i got that day. Blood tests were taken and a day later I was asked to go back as the Doctor wished to see me about the blood test results, Inflamatory markers were sky high and I was asked to go to Hospital to the Ambulatory Ward where further blood tests were taken. I was told I had to go0 back on the Saturday which I did and further blood tests were taken and I was given antibiotics, I also had an Iron blood tests to determine if needed iron infusion. I went home and as I got home the Hospital rang asking me to back for an infusion I requested to go in the following morning which I did and I had a Feritin infusion. I have had another Feritin infusion since and told to take Vit D and folic acid as both were shown to be depleted in my blood tests . I still have the darn pains in muscles as no pain killers were given and no diagnosis made so am taking Paracetomol in the hopes it goes away. Can not walk my dog's like I normally do so they have a small walk but by the afternoon I am laid on the bed tired out again. What I am asking is " Does anyone else have these pains in muscles and now in certain Joints and if so what do you take for it

 

[lessci]

Are you taking a Statin? This can be a common side effect of them, if so ask for a change of type, take coenzyme Q10. I had terrible muscle pain with them

 

[ianf0ster]

Yes, one possibility may be if you are taking a statin. Side effects with them don't always appear until after several months - over 2 years in the case of my skin rash (verified as due to statin by the hospital dermatologist from a biopsy).
I agree with @lessci that statins deplete vit co Q10 and so may cause fatigue.

 

[PatsyB]

My body told me to stop taking statins weeks ago and when I visited the Hospital they said the same so am still of them also stopped taking Ramiprol good job I did as my BP was low

 

[paul_kennedy]

Are you taking a Statin? This can be a common side effect of them, if so ask for a change of type, take coenzyme Q10. I had terrible muscle pain with them

Thank you for posting this i am suffering from loss of grip in my left and muscular pain , i wonder if this could be a cause . On antivastain since 2020

 

[Art Of Flowers]

Thank you for posting this i am suffering from loss of grip in my left and muscular pain , i wonder if this could be a cause . On antivastain since 2020

See ...

Unfortunately Statins can have terrible side effects including brain fog and body pain. They also raise blood sugar, so not much good for diabetics.

 

[PatsyB]

The Doctor said she would find a different one for me but to be honest I do not think I will be taking any as I still have pains in muscles and now elbow joints and knees, I think maybe a bad idea to make it worse

 

[ElenaP]

The Doctor said she would find a different one for me but to be honest I do not think I will be taking any as I still have pains in muscles and now elbow joints and knees, I think maybe a bad idea to make it worse

After all those test that you wrote about on Friday, did the doctors come to a diagnosis? I think that it is good to listen to your own body, as well as the doctors' recommendations, and then make up your own mind.

 

[PatsyB]

no nothing been diagnosed and not back to the Doctors until 23rd I do have a heart scan on the 18th as have a heart murmur they say so will have to wait andf see if they do nto come up with anything maybe I need see a Rheumatologist ??

 

[ATB123]

no nothing been diagnosed and not back to the Doctors until 23rd I do have a heart scan on the 18th as have a heart murmur they say so will have to wait andf see if they do nto come up with anything maybe I need see a Rheumatologist ??

Have you had your inflammatory markers rechecked since the first high ones? Might be worth you asking to get these rechecked as there are some conditions that can cause those pains?

 

[PatsyB]

They have not told me anything so am assuming they have gone down a little but I hav elittle faith in Doctors these days they seem to wnat to just get you out of the Surgery

 

[ajbod]

My inflammatory markers have been raised for about 8 years now, mine is caused by a raised white cell count, in comparison to red cells. Every year when tested i would get the fishing phone call from doctors, obviously asking questions related to Leukaemia. It took a Locum to actually look back though my records, and see that they had been the same for 6 years. Apparently this is a lot more common than most realise.
Hopefully you'll get to the bottom of your current problems, like you my faith in GPs especially has plummeted since Covid. When my legs were crippling me, a very young GP went the whole mile to find the problem, and get me referred. where within 1 week i was in and had a Femoral Artery bypass. as was pointed out to me by other medical staff when i praised him. "Ah but he's still young and isn't jaded yet"

 

[PatsyB]

Congrats on being eventually sorted, I have to go for a heart scan on Thursday so hopefully that will sort out a few things as they say I have a heart murmur maybe the cause but we will see . fingers crossed

 

[Resurgam]

The Doctor said she would find a different one for me but to be honest I do not think I will be taking any as I still have pains in muscles and now elbow joints and knees, I think maybe a bad idea to make it worse

I reacted badly to Atorvastatin, and stopped taking them and Metformin after 5 weeks or so, but the last ache did not go for 18 months. There was a gradual reduction in intensity and which bits hurt, but I was in a bit of a state for a while.

 

[PatsyB]

Thank you for your reply I am still taking metformin but have been think of stop taking them also not sure what all these dam meds have been doing to me but am sure not good . I am taking Paracetomol daily which I have never done before just to try kill the pains in muscles and now joints grrr

 

[PatsyB]

Managed with out paracetomol last night was up twice in night for the loo and got up alright this morning but as soon as I came downstairs sweat stood out on me my hair was literally wet through and it felt like i was going to pass out (had to sit and rest for a bit) arms and legs ache like mad not sure what this was but am so glad I stopped the ramipril, the thing is it is messing with my levels and readings never had them so bad.arghhhhhh

 

[PatsyB]

now one hand swell and feet so guess fluid retention but not sure and taking paracetamol deff messes with my levels arghh

 

[JTL]

A few years ago I ended up being blue lighted to AnE with those exact same symptoms.
It was Statins.
Doc kept trying different ones but they are all statins.

I was only on them 6 months or less.
The last few years I've stayed well away from them and no longer get those symptoms.
Please do some simple youtube searches.
In place I have three spoonful's of extra virgin olive oil a day sometimes replaced by extra virgin coconut oil.
I take raw ginger daily I drink clove tea in the evenings my readings now are pretty good.
Do the research.

 

[PatsyB]

Was put on steroids 3 a day which took the pains away until last Saturday when they were back in full force every muscle in body felt like it was constricting, so now I just keep add rub to legs and try ignore the dam pain.....

 

[PatsyB]

Right after many blood tests and on steroids for 4 weeks the imflamatory markers are going down which the Doctor says proves it be Polymyalgia rheumatica sounds like steroid be the only treatment for it sighs