That one thing about your pump?

SherwoodT1

Well-Known Member
Messages
45
Type of diabetes
Type 1
Treatment type
Insulin
Hi all.

I've recently been told by my care team that they are happy to move me to pump therapy, and will organise training etc.

I'm not sure what pumps they offer yet, but I thought it'd be useful to ask everyone:

'If there's one thing you wish you'd known about your pump from the beginning, what is it?'. Good or bad.

Looking forward to seeing what everyone says!
 
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Nicola M

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Staff Member
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783
Type of diabetes
Type 1
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Pump
I don't think this is necessarily something I wish I knew about my particular pump as I went in there knowing what I didn't want in a pump and I had pretty limited options anyway at the time but rather something I wish I knew about pumping in general, I've been pumping since 2015 so I have a fair bit of experience in pumping.

I started pumping when I was 18 and it was during a time when I was struggling with my diabetes and burnout anyway I wish I had known at that time how much work an insulin pump actually is, it's not as straightforward as putting in some settings and letting it do its thing, a lot has to happen to get you to a point where your sugars are consistently stable and even then your settings may need to be adjusted regularly. I'm 9 years in now and I still make tweaks here and there. My biggest piece of advice to anyone starting pumping is don't be disheartened if your sugars aren't where you expect them to be right away as fine-tuning everything can and does take time.
 

Chas C

Well-Known Member
Messages
1,061
Type of diabetes
Type 1
Treatment type
Pump
As mentioned, it can take a few weeks to settle down.

The things I'd look for are specific to me I guess and more than one question - sorry:

Does it loop and will I get CGM support with it too.
Is it waterproof.
How much does it weigh when full of insulin (I keep mine in a shirt pocket).
Does it or will it soon have phone remote support for bolusing (mine doesn't yet).
Can its supported CGM share BG readings to phone, watch, car play, Pad, Computer (some share to third parties too like family but I don't need this).

Most of the management items like specific profiles are pretty common now across the range of pumps so not bothering to mention these.
 

SherwoodT1

Well-Known Member
Messages
45
Type of diabetes
Type 1
Treatment type
Insulin
Thank you both for the responses.

I'm anticipating a very bumpy road as I transition to pumping which will take a lot of effort to iron out. But god being able to dose by less than half units sounds magical.

I'm still wrestling with what pump I'm hoping to get. But, I'm currently leaning towards a patch pump.

I suppose I wondered about things you'll never see in a manual, like how customer service is, how it is to travel with supplies. Experiences like that.

Definitely a lot to consider!
 
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CE1965

Member
Messages
6
I have used three different pumps and by far the best is my current T Slim. The main thing to remember, is to remember. That is remembering to use it properly and to its full capacity as it was designed.
 

In Response

Well-Known Member
Messages
3,842
Type of diabetes
Type 1
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Pump
The most important "feature" of any pump is that it is available for you.
There is no point researching various pumps and setting your heart on a pump or type of pump when your clinic does not offer it.
Some clinics have a long list of pumps to chose from but, for example, my clinic offers Medtronic only. There is no choice of a patch pump unless you can make an incredibly good argument for it. And my understanding is they will be less likely to allow a deviation from their normal for your first pump because they need to be able to support you.
 

EllieM

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In New Zealand you have a choice of medtronic 780 or tandem tslim, and you have to fund your own cgm. (Crazy priority imo, better to fund cgms for all T1s and fund no pumps, but that is where we are at the moment.)

My single piece of advice is that if you should go on holiday take a spare glucometer as well as all the spare pump and cgm supplies. I had spare batteries for my glucometer but had to buy a cheap US one when mine broke, and was then unable to test for ketones. (Slightly scary when I had a bad cold at end of the holiday, and my bg went up ... and up.)
 
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pierre.jay.

Member
Messages
13
Type of diabetes
Type 1
Treatment type
Insulin
I've started on a closed loop pump system as of this January. I've almost doubled my TIR and it significantly reduces how much I think about diabetes. Particularly for me, I used to be thinking about it constantly while trained at the gym, and now it hardly enters my mind.

The only thing I would say though is be prepared to rotate the sites and if possible, place the pump where you have more fat tissue. I've had problems when putting it on my legs and arms with infections and scar tissue building up.
 
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Smetana

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
Hi all.

I've recently been told by my care team that they are happy to move me to pump therapy, and will organise training etc.

I'm not sure what pumps they offer yet, but I thought it'd be useful to ask everyone:

'If there's one thing you wish you'd known about your pump from the beginning, what is it?'. Good or bad.

Looking forward to seeing what everyone says!
I have been using an Omnipod for about four months now, hoping to move up to Omnipod 5. They are not infallible & can fail ( blocked cannulas or poor adhesive to name a couple) Ensure you have a supply if other insulin delivery devices particularly if away. What I have found is the end of injection site lumps, but not the end of low Blood sugar, that’s still in the future. But persevere when you get it. No tubes on the Omnipod
 

IanRA

Member
Messages
12
Type of diabetes
Type 1
Pumps are great, infusion sets are not. Unless you have ample adipose tissue prepare for set failures. If you deliver more than 150 units during the life of the set, prepare for tunneling failures (ie leakage of insulin out of site). Site hygiene is vital. If you use CGMs prepare for adhesion failures. Over patches are almost mandatory with some brands of CGM. What is great, is when it's all working. But that is not always the case.
 

briepayne

Newbie
Messages
3
Am on an Ypsomed pump and Dexcom cgm for past 4 months but used several different pumps since pregnancy in 1985. The best thing I have found is how great they are at night after years of unexplained highs and lows. So smart ! Feels like a new lease of life after broken nights for so many years.
 

steveo4

Well-Known Member
Messages
223
I was told when I was first offered my t slim pump that the app to give bolusses would be available in about 3 months time. 2 years on and it's still not available. This was the main reason why I chose this pump. If I knew then what I know now I would never have chosen it I would have gone for the ypsomed pump in stead
 

molby14

Newbie
Messages
3
Am on an Ypsomed pump and Dexcom cgm for past 4 months but used several different pumps since pregnancy in 1985. The best thing I have found is how great they are at night after years of unexplained highs and lows. So smart ! Feels like a new lease of life after broken nights for so many years.
Can't agree more. If theres one clear and obvious thing its helped with, its the night time level. Mine have be so steady within range over night with the Ypsomed pump, compared to regular 7-8 hours of highs unknowingly over night.
 

SherwoodT1

Well-Known Member
Messages
45
Type of diabetes
Type 1
Treatment type
Insulin
Thank you all for the replies. I can't wait to shift to the pump. I know it'll be a rocky road. But the past few weeks have only cemented how much a pump will help me!

It's been great to read everyone's experiences on pumps.
 
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SherwoodT1

Well-Known Member
Messages
45
Type of diabetes
Type 1
Treatment type
Insulin
So it's decision week. I've finally found out what my hospital provides. They are the Omnipod 5, Tslim X2, or the Ypsomed MyLife. I went into my first pump start session thinking, hands down, I would want the Omnipod. But, now I'm torn between the Omnipod and Tslim X2.

The big selling point of the Omnipod 5 is that it's tubeless, and within 3 months of starting I should be able to start HCL with it. After the session we were given a dummy pod to try on at home. I've done so, and boy did I pick the wrong spot for it! It felt really bulky on my abdomen, and getting a shot to the ribs when I sit down certainly isn't any fun! Now I know thats entirely down to my poor placement choice. But, it did have me doubting the amount of "real estate" on offer to site the pod and my sensor, while keeping line of sight between the two, that I'd also find comfortable. I also use XDrip to see my blood glucose on my watch, and know that I will lose this ability when I start HCL, my understanding is that the PDM would start the sensor. I'm also a little bugged by needing to carry two phones with me. A big selling point for a pump in general was the ease to bolus as and when I needed, without needing to break pens out etc. Despite having the gift of pockets, carrying two phones and a wallet seems cumbersome to me. So I'll undoubtedly leave the PDM in my bag. Defeating the whole purpose of making pre-bolusing easier while at work.

Now, the tslim is a small device, that I can see myself being able to fit on my person pretty easily, that would allow me to bolus with little prep time. But, it's tethered. And all of the drawbacks that can come with this are a downside. How big a downside, I'm not sure. I also wont be able to start HCL with it in the near future as I do not qualify for a G6 through the NHS. In fact, my sensor and the pump would not be able to communicate at all, so I would only be using the TSlim in its most basic form - I'm honestly not sure how this works (i.e. if you can tell the pump what your current blood glucose is). Regardless, I will have to use the pump this way until at least HCL roll out is expanded, or Tandem work some magic and widens the types of sensors that can communicate with the pump. I'm aware this could be years down the line.

I suppose I could do with people with real life experience of these models, and how they find them day to day, and even how people find HCL. I'd love to hear everyone's opinions and experiences with these models.

I can also only apologise for the wall of text, and rambling nature of the post. This has somewhat of an exercise for myself to voice aloud the pros and cons for each pump personally.
 

Smetana

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
So it's decision week. I've finally found out what my hospital provides. They are the Omnipod 5, Tslim X2, or the Ypsomed MyLife. I went into my first pump start session thinking, hands down, I would want the Omnipod. But, now I'm torn between the Omnipod and Tslim X2.

The big selling point of the Omnipod 5 is that it's tubeless, and within 3 months of starting I should be able to start HCL with it. After the session we were given a dummy pod to try on at home. I've done so, and boy did I pick the wrong spot for it! It felt really bulky on my abdomen, and getting a shot to the ribs when I sit down certainly isn't any fun! Now I know thats entirely down to my poor placement choice. But, it did have me doubting the amount of "real estate" on offer to site the pod and my sensor, while keeping line of sight between the two, that I'd also find comfortable. I also use XDrip to see my blood glucose on my watch, and know that I will lose this ability when I start HCL, my understanding is that the PDM would start the sensor. I'm also a little bugged by needing to carry two phones with me. A big selling point for a pump in general was the ease to bolus as and when I needed, without needing to break pens out etc. Despite having the gift of pockets, carrying two phones and a wallet seems cumbersome to me. So I'll undoubtedly leave the PDM in my bag. Defeating the whole purpose of making pre-bolusing easier while at work.

Now, the tslim is a small device, that I can see myself being able to fit on my person pretty easily, that would allow me to bolus with little prep time. But, it's tethered. And all of the drawbacks that can come with this are a downside. How big a downside, I'm not sure. I also wont be able to start HCL with it in the near future as I do not qualify for a G6 through the NHS. In fact, my sensor and the pump would not be able to communicate at all, so I would only be using the TSlim in its most basic form - I'm honestly not sure how this works (i.e. if you can tell the pump what your current blood glucose is). Regardless, I will have to use the pump this way until at least HCL roll out is expanded, or Tandem work some magic and widens the types of sensors that can communicate with the pump. I'm aware this could be years down the line.

I suppose I could do with people with real life experience of these models, and how they find them day to day, and even how people find HCL. I'd love to hear everyone's opinions and experiences with these models.

I can also only apologise for the wall of text, and rambling nature of the post. This has somewhat of an exercise for myself to voice aloud the pros and cons for each pump personally.
I’m on Dash, due To move to Omnipod5, but have been told by Boots they don’t stick Libre 2 PLUS. Any one any advice?
 

SalRead1

Active Member
Messages
25
Type of diabetes
Type 1
My consultant told me that the Libre 2 plus would be available this year and in the meantime I am continuing with the Dexcom 6. Seemingly the reason for moving people to Libre is because it’s so much cheaper and will help balance the cost of the expensive Omnipod 5. Libre 2 plus has been approved for use in the UK but the local healthcare providers have yet to get everything in place. Your consultant should therefore be prescribing you the Dexcom 6 or 7. Ask him!
 

SalRead1

Active Member
Messages
25
Type of diabetes
Type 1
I have got used to the Omnipod 5 but have never used any other pump so I can’t help you with the T-slim or indeed any other tubed system. I didn’t want to have tubes and am still pleased I don’t have them. At first I found it irritating that I had to carry around the PDM but quickly got used to it though it would be better if it were smaller. On the other hand, most people who see me take it out before eating just think I’m checking my phone. You say you don’t qualify for the G6 on the NHS but will you qualify for the Libre 2 plus which is designed to work with the Omnipod 5? Worth asking before you make your final decision. Good luck, whichever way you choose.
 

SherwoodT1

Well-Known Member
Messages
45
Type of diabetes
Type 1
Treatment type
Insulin
I have got used to the Omnipod 5 but have never used any other pump so I can’t help you with the T-slim or indeed any other tubed system. I didn’t want to have tubes and am still pleased I don’t have them. At first I found it irritating that I had to carry around the PDM but quickly got used to it though it would be better if it were smaller. On the other hand, most people who see me take it out before eating just think I’m checking my phone. You say you don’t qualify for the G6 on the NHS but will you qualify for the Libre 2 plus which is designed to work with the Omnipod 5? Worth asking before you make your final decision. Good luck, whichever way you choose.
Hi @SalRead1, I would qualify for the Libre 2+ through my hospital team. They are pushing through anyone going onto the omnipod 5 for HCL due to the cost-effective switch over in doing so. Though, maybe its daft, but I think I'm going to go for the T Slim in the end. It feels like a better fit for me, even if I can't go onto HCL with it any time in the immediate future. At least until the NHS prescribes G6/7s readily, or Tandem expands the types of sensor that can integrate with the TSlim in the UK.