To pump or not to pump?

elsalisa

Active Member
Messages
33
Type of diabetes
Type 1
Dear friends,

We have a pumpMedtronic 640G.
At first we were absolutely excited, especially our 9 year old who loves gadgets. 2 years later, after so many hypers, we are not excited at all (our daughter is 11 now).

Plastic cannulas often bent, we finally found that metal ones are much better. Still we never had so many highs when she was on levemir and novorapid plus being on novorapid only (after she was given the pump) she gained weight. Plus bruises after cannulas.

2 weeks ago pump broke. We were given levemir - temporarily, but still using it and I see less hypers, more sensitivity to novorapid, no more sugar spikes after she falls asleep and she’s losing weight. I don’t know what to do, we must go back to pump as we received a replacement long ago...
 
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I have not used the Medtronic but understand there are a few options available such as metal vs plastic (which you have tried) and 90 degree vs 30 degree. If you want to return to the pump, it maybe worthwhile trying out different cannulas.

Regarding night time highs, that suggests to me the basal rates need to be changed at night. Perhaps it is worth doing some basal testing and tweaking the basal rates to match your daughter's needs.
If she has a Libre, this is much easier.

I cannot tell you whether to return to the pump or not but I have found my Animas Vibe (which I will need to change soon) has helped my bg management and reduced highs and lows.
However we have a love hate relationship as I find it large, difficult to hide and uncomfortable as it has not caused me to gain weight (it is hard against my boney hips) which brings me to your daughter's weight gain. I do not understand how it is pump related. Perhaps it is related to her unhappiness with the pump.

Good luck on your decision... it is not a given.
 
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Scott-C

Well-Known Member
Messages
2,460
Type of diabetes
Type 1
Hi, @elsalisa , it might be that some solution can be found by trying different cannula sets, but, as I'm not a pumper, I'll not comment on that.

What T1s are mainly looking for are a situation where bg levels are generally stable with no wild fliers.

If you and the wee one are finding that easier to achieve with MDI instead of a pump, and she's ok with MDI, there's absolutely no problem with saying to the docs, look, this seems to be easier with MDI at the moment, so we'd prefer to do that for now.

Quite a few pumpers take "pump-breaks" and go back to MDI for a while, although you'd obviously need to discuss with that with your team about whether she could then move back again.

With cgm becoming more available now, there's growing evidence that cgm makes more of a difference to control than whether someones got a pump or MDI, so MDI needn't be seen as a backward step.

T1s can be really pragmatic about these things: if the MDI is working and the pump isn't, it's an easy choice.
 

endocrinegremlin

Well-Known Member
Messages
433
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
People telling me how to control my diabetes. My health. Isms. People walking their dogs off leads in illegal areas. Meat that bleeds. Late buses.
Take a pump break if you can have it, (not sure what your situation is ie where you are insurance ect). I always say pumps should be for those who don't have another choice. There is a lot more freedom in mdi outside of injecting for every carb but in general a lt of anxiety can be removed. Pumps are based around that fear of did the set work ect as you said. If mdi is working for you right now and is achievable then have a go at it. Daughter will let you know when or if she needs her pump back
 

Juicyj

Expert
Retired Moderator
Messages
9,250
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
Hypos, rude people, ignorance and grey days.
Hello @elsalisa i use the Medtronic 640g, I started with mio sets and had the same issue bent cannulas, I switched to the sure t and never have set issues now, just issues with the sites now as some sites have been over used so absorption in some spots isn't great, so I take great care in rotating sites, it would be worthwhile getting your DSN to look over your daughters sites to check for lumps.

That said, I wouldn't go back to injections regardless, if I am running high/low then I'd go back to basics with some basal testing and check my ratios but exhaust every other option first. I'd also recommend getting a copy of 'pumping insulin' too it's a must have book for anyone using a pump.
 

kitedoc

Well-Known Member
Messages
4,784
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
Hello @elsalisa,
Having been on an insulin pump for 7 years of my total 52 years on insulin I would certainly quail at the thought
of going back to MDI !

But how is this relevant to an 11 year old?

I was diagnosed at age 13 (sounds like a 'once upon a time 'story )!! - and in the following years, with no blood glucose monitoring and only using the basic insulins, I had to deal with the time of growing
- at some point my urine tests started showing more sugar - I learned that I had to increase my insulin doses sometimes to twice normal per day and then
- after 2 weeks or so the hypos would start and I had to bring the insulin doses down quick smart. Why ?

My doctor explained that I was having growth spurts - hormones were at work and these particular growth hormones made my insulin less effective hence the need to increase insulin doses. Once the 'spurt' had finished my insulin was more effective again and hence the hypos and my need to drop the insulin doses back down.

So i am guessing that one question to ask yourselves and your health team is what is going to be better for dealing with these 'growth spurts' in future? ? Pump or MDI ? And with CGM ? Or not ??
And I cannot be categoric about when such growth spurts might start as we are all individuals and our bodies will decide when that all starts.

If I was 13 now with recently diagnosed diabetes I know what my personal answer would be.
But as the Americans say: Hindsight is 20:20 vision!!

Other things that I would wish to be informed about as a new 13 year old T1D by my health team would be:
what is the best current , non-surgical treatment program in the world to keep diabetic children/teenagers BSLs under the best control ?
One possible answer is under https://www.drdavidludwig.com/type1-diabetes "Is exceptional control of Type 1 Diabetes possible on a low-carbohydrate diet?

For background, reading Dr Bernstein's "Diabetes Solution" would be required (book or e-book).

I am not saying that this approach is easy, or well-known but I would expect my health team to mention it as part of all the options - as patients we are entitled to receive all the information relevant to us in order to make informed decisions.

Low carb diets are not readily accepted in many countries and moreso with children/teenagers (but see Dr Ludwig's blog).-
partly from possible ignorance and sometimes interference or concerns about that fact that low carb intake means higher protein and fat intake. That has been my experience at least.

I found such concerns can be readily repulsed by subscribing to zoeharcombe.com who has analysed much of the literature about fat and low carb diets and debunked a number of false claims.
I have used her writings in my discussions with my doctors, for example.

What is more, dietitians do prescribe low carb/ketogenic- type diets for children with epilepsy? So my question to doctors is: What do you do about a child with epilepsy AND diabetes? It is possible for them to be on a low carb diet is it not?
If so then it is possible for a child with diabetes alone also ??

The other piece of information I wished was available when I was 13 and in those early years of diabetes was the results of a particular trial called the Diabetes Control and Complications Trial (or DCCT if you google it) - started in 1982 to 1993 and then continued under a different name ever since.
As well as googling it, you can use the question box right upper section of the forum page and type in DCCT - ignore the reference to blood test units and look at the DCC trial threads.
Please ask your health team about this trial as I reckon it IS important for every new diabetic to know about - even if the low carb thing is not your 'cup of tea' !!
The question is really about what will give the best means of keeping BSLs under best control over the next number of years - the trial results give the reason why.
I hope that this has not been too much of a diversion but after all knowledge is power !!

About finger..........Ask for help rather....Read and learn...........It is all about.......... Nothing is...........remember to
pricks/injections... ....than guess.............all you can....................balance..................impossible..........enjoy life !

IMG_3824.jpg ..........IMG_4174.jpg ......IMG_4843.jpg ....P4220890.jpg....17903592_10206204455349159_992899227923968847_n.jpg....IMG_5438.jpg
 
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