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Trying to get people to listen

cuxy88

cuxy88

Active Member
Messages
25
Type of diabetes
Type 1
After a discussion on here about a week ago I have tried to get my diabetes team to listen to me when I say I need help, sugars are running at 20+ most days all day and my carb count is currently at 5 units to 10g of carb with nova rapid and 45 units of toujeo on a night my hba1c is currently at 120 or more now since last test 2 months ago, tried to ask for better insulin (so to say) or something different that will help me out but they say on the best stuff, but I can not keep going like this getting constant infections, my depression is coming back and my health is in a downward spiral, i want a family but that is not going to happen any time soon at this rate and i am 28 and married. What can I do to help myself as team not helping diet is good any advice, apart from up my does doc already told me that 10 units per 10g I am trying not to eat that many carb please help
 
Apologies in advance if this has already been asked or you have already tackled, but have you taken everything back to basics. Have you researched carb counting and different GL/GI of foods to ensure you are being absolutely accurate and have you done comprehensive basal testing to ensure the foundations are right? Do you have flash or continuous glucose monitoring? It might be worth, even for a short time if you can afford it, investing in this, to really understand what is happening to you blood sugars. If you can take the full picture to the specialist team, with CGM data, and food and insulin diary, it may give them something to investigate and take seriously?
 
Hi @cuxy88 Sorry to hear about your high BG levels, sounds very frustrating, Have you done a DAFNE course yet ? I strongly recommend if you haven't that you get your nurse to sign you up to the next one, it is an absolute must for anyone struggling, over the week you will get help in managing your levels, change ratios etc it will get you straight again on self managing, please call today and ask for this ?
 
Hi @cuxy88
I agree with @paulliljeros in terms of taking things back to basics and keeping a detailed diary of what you're eating...the doses you are taking and your readings two hours before and after meals so that they can get a clearer picture of what's going on and point you in the right direction.
If you're really not getting the help that you need from them...it's probably worth seeing if there is another clinic that you can try.
A book that I've found really useful is 'Think like a Pancreas' by Gary Scheiner.
 
Hi @cuxy88

I'veut the link to your thread so you don't have to answer the same questions again:

http://www.diabetes.co.uk/forum/threads/help-insulin-problems.101315/

It must be so frustrating not being listened to. Is there anyone who does listen whom you trust, eg GP, practice nurse, a particular DSN? Do you have someone you can take along to appointments to stick up for you and back you up?

What you may want to do is put your feelings in writing to your diabetes team, send a copy to your GP too, and repeat that you need help to get your blood sugar under control. I replied to you in your other thread but I'll say again that you may want to ask about insulin resistance too.

Sometimes we have to push to get the care we need sadly.
 
Thanks for everything every one I have done all the above tried talking to dsn and no look and @azure I will look into that link and mum been telling me the same thing I have to push for wat I need at gp waiting now to see a doc let us see how that goes, no one to come with me all family work

Sent from my SM-T555 using Diabetes.co.uk Forum mobile app
 
I was going to say with that much insulin perhaps you are insulin resistant and metformin might help? There are T1s who are also 'T2' as well. In your other thread you never gave a figure for your total carb count/day - would help to know. Have you tried cutting down your carbs just to see?
 
I'm sorry things are no better for you yet. They will improve I'm sure but it sounds like your problems are taking the docs longer to assess.

I can't emphasise enough how important it is that you keep excellent records of exact carbs, insulin injected and frequent blood tests. Springing £160 quid on a Libre and a couple of sensors really might be worth it if you can afford as the insight it can give is fantastic.

I'd also consider stopping or changing your contraceptive pill (pretty sure you said you were on the mini pill on another thread) even if just for a few weeks to rule it out. The mini pill gave me horrendous insulin resistance; it doubled my doses!

Good luck and try not to let it get you down; hard I know
 
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