Type 1 and other autoimmune conditions

I do have 3 auto-immune system issues (Type 1, Coeliac disease (gluten intolerance) and Graves Disease (hyperthyroid)) as if you have one immune system problem its not entirely uncommon to have more

But I've never been to an immunology clinic or had shingles (45 years of T1 so far)

 

It might be worth asking the Immunology Department if they have any comparable experiences - not necessarily shingles.
I agree with @Rokaab above, but I have only experienced symptoms that are likely to have been caused by Type 1 diabetes, such as urticaria and eczema. My immediate reaction to your post was "Ouch, the poor chap. I've never heard of this in anyone that young. I had chicken pox as a young Type 1 but waited till I was 60 before getting shingles. He has my utmost sympathy. I hope they find a helpful treatment quickly.

 

I have a few autoimmune conditions and have had shingles a few times, the first time I think I was 12/13.
Like @Rokaab I've never been to an immunology clinic, although I was seen in a rheumatology clinic once when I just had the type 1 (unrelated-ish to my diabetes).

 

If it helps (probably not ) my mum has lupus and has never had shingles.
It probably doesn't feel like a good thing being referred to the immunology clinic, but if there is something else going on at least you can find out what that is and get some answers, sometimes it can take many years to get diagnosed with autoimmune conditions otherwise