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Type 1 or lada

nessa1970

nessa1970

Well-Known Member
Messages
386
Location
New Zealand
Type of diabetes
Type 1
Treatment type
Insulin
Hi. For a year and a half I have been very sick even my hba1c levels are at 40. I was on metforman. Then taken off it. I'm 60 kg now I was 80 kg when diagnosed. I'm 5.7.... I was getting readings on my bg monitor of 30 an HI... I went back to Dr so sick peeing twice an hour and so so thirsty tired and unwell. They started lantus 10units at night. My hba1c came in at 76 and glucose 24. Not sure re the glucose one. But I was still so I'll. Then I get a call from a diabetes specialist and next minute I'm type 1 taking for jabs a day. Waiting on a gad test to come in c peptide was 340 which is normal I got told by on each nurse but the other said it's low. I dunno. Now I'm allowed carbs and I was low carb for so long I'm hungry and I refuse to put weight on cause of this insulun. It's very confusing. So I stopped taking it. I see nurse tomorrow and endocrinologist next week. I think there all wrong and don't no what's going on. I'm sure blimmin confused.....

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LADA is a form of Type 1 diabetes. It is just later onset and tends to be slower reaching fruition. Your symptoms certainly sound like Type 1.
 
Hi. I would seek clarification of the c-peptide value as there is a lot of confusion over the units used and reported; also whether it was fasting or not. My c-peptide said the 'normal' range was 1.1 to 4.4 and I came in just above 1.1 so your 340 could be very low or I don't know what. The GAD result would be useful. Either way you sound like T1 and hopefully you will be put on the Basal/Bolus regime with carb-counting.
 
My c peptide was .6 with a reference range of 1.1-4.4. Gad was over 250. The name doesn't matter, sounds like insulin is needed.

In my experience low carb has allowed me to take smaller doses of insulin than when I ate carbs. It does not make me gain weight unless I eat carbs.

You need your insulin. Your body will live off itself if you don't. I had the same weight loss before diagnosis and was extremely ill. Almost dead as I never needed to lose weight but was down to 96 pounds before they finally diagnosed me. I was rail thin, skin and bones. Don't go there....
 
Kristin251 said:
My c peptide was .6 with a reference range of 1.1-4.4. Gad was over 250. The name doesn't matter, sounds like insulin is needed.

In my experience low carb has allowed me to take smaller doses of insulin than when I ate carbs. It does not make me gain weight unless I eat carbs.

You need your insulin. Your body will live off itself if you don't. I had the same weight loss before diagnosis and was extremely ill. Almost dead as I never needed to lose weight but was down to 96 pounds before they finally diagnosed me. I was rail thin, skin and bones. Don't go there....
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I certainly don't want to be unwell but I am very scared of putting weight on. I worked so hard as a type 2 t9 do everything right and now I'm told I'm type one it's a bit 9f a head game for me. I researched type 2. I know nothing about type one accept I am hungry on the 2 different insulin pens I'm on. I don't think I'm believing it all .... thank you for responding.

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nessa1970 said:
I certainly don't want to be unwell but I am very scared of putting weight on. I worked so hard as a type 2 t9 do everything right and now I'm told I'm type one it's a bit 9f a head game for me. I researched type 2. I know nothing about type one accept I am hungry on the 2 different insulin pens I'm on. I don't think I'm believing it all .... thank you for responding.

Sent from my SM-G935F using Diabetes.co.uk Forum mobile app
Click to expand...
Your probably hungry because your bs is either high or moving. When mine was high I was hungry all the time because even though I was eating my body was starving. Without insulin nothing gets into your cells and your body attacks itself.

Here is my experience with insulin. Within 2 months of starting on insulin I gained my MUCH NEEDED weight back but it stopped right where I was before I rapidly lost it all. I was type 2 for about 6 years that I know of and managed very well with a low carb diet and exercise. As time went on after starting insulin I have found myself eating the same diet I ate as a type 2. VLC, moderate protein and healthy fats. I do not over eat anything. I have my 20 g or less carbs per day, about 4 oz protein and I eat enough fat to satisfy. Mostly avocado, mayo and a few nuts. With this diet I have greatly reduced insulin and hunger has vanished. Keeping bs flat is my key. I cannot seem to do that when I eat carbs but many can. I wish I knew how. Well maybe not. Carbs aren't my friend. I don't digest them at all so my diet and insulin regime work well in randum and I have not gained any additional weight. Now if I did eat carbs I would gain weight.

Do not let your body feed off itself. If you need insulin to keep your bs low you need to take it. None of us like taking it. Insulin in of itself will not make you gain weight but chasing bs with insulin and food will. Like if you go low you need to eat or if your high you need correction doses. Find a diet that keeps your bs flat and the appropriate amount of insulin for that meal and you will have nothing to worry about, nor will you gain weight. I complete,y understand you not wanting to gain weight but insulin isn't the problem. Having normal blood sugars and keeping them flat will take you a very long way both in health and weight. It is a process to find what works but it can happen.

What is your diet like now?
 
nessa1970 said:
Hi. For a year and a half I have been very sick even my hba1c levels are at 40. I was on metforman. Then taken off it. I'm 60 kg now I was 80 kg when diagnosed. I'm 5.7.... I was getting readings on my bg monitor of 30 an HI... I went back to Dr so sick peeing twice an hour and so so thirsty tired and unwell. They started lantus 10units at night. My hba1c came in at 76 and glucose 24. Not sure re the glucose one. But I was still so I'll. Then I get a call from a diabetes specialist and next minute I'm type 1 taking for jabs a day. Waiting on a gad test to come in c peptide was 340 which is normal I got told by on each nurse but the other said it's low. I dunno. Now I'm allowed carbs and I was low carb for so long I'm hungry and I refuse to put weight on cause of this insulun. It's very confusing. So I stopped taking it. I see nurse tomorrow and endocrinologist next week. I think there all wrong and don't no what's going on. I'm sure blimmin confused.....

Sent from my SM-G935F using Diabetes.co.uk Forum mobile app
Click to expand...

Have you stopped taking all your insulin? : / What are your blood sugar results?

I can understand how it must have been a shock to have to unthink being Type 2, and start again almost as a Type 1. If you're looking for a book Think Like A Pancreas is a good one. It explains about using insulin, and is very readable.

I lost lots of weight before I was diagnosed. When I went on insulin, I put weight on, but that was weight I needed, and also I felt my poor body was 'grabbing on' to food because it had been starving so long. I remember feeling hungry to start with, but that went away as I got my blood sugar within range and learnt how to use my insulin properly.

It's sadly not uncommon to be misdiagnosed as a Type 2 just because you're an adult. So you're not alone. Concentrate on your blood sugars and do feel free to ask as many questions as you like :)
 
Hi again. As others have said, you may put on some weight when on insulin initially as your body will have been feeding off itself as mine was. That should level off and with sensible control of carbs you shouldn't put on excessive weight. Do have enough protein and fat to keep you feeling full.
 
nessa1970 said:
Hi. For a year and a half I have been very sick even my hba1c levels are at 40. I was on metforman. Then taken off it. I'm 60 kg now I was 80 kg when diagnosed. I'm 5.7.... I was getting readings on my bg monitor of 30 an HI... I went back to Dr so sick peeing twice an hour and so so thirsty tired and unwell. They started lantus 10units at night. My hba1c came in at 76 and glucose 24. Not sure re the glucose one. But I was still so I'll. Then I get a call from a diabetes specialist and next minute I'm type 1 taking for jabs a day. Waiting on a gad test to come in c peptide was 340 which is normal I got told by on each nurse but the other said it's low. I dunno. Now I'm allowed carbs and I was low carb for so long I'm hungry and I refuse to put weight on cause of this insulun. It's very confusing. So I stopped taking it. I see nurse tomorrow and endocrinologist next week. I think there all wrong and don't no what's going on. I'm sure blimmin confused.....

Sent from my SM-G935F using Diabetes.co.uk Forum mobile app
Click to expand...

Hi I just had my gad.and c-peptide back now my gad was normal and my c-peptide was 700 which my pancrease specialist said that's in normal range but then he said I will have to be on insulin in 2 weeks cause my pancrease is slowing down and it will stop then I will be type 1 at the moment they are treating me as type 2 and trying to lower my levels with500mg metformin and 320mg gliclazide (full dose)
 
Can someone please tell me the answer to my question

My c-peptide came back as 700 and my specialist said I'm in normal range (but that's with full dose of gliclazide and 500mg metformin) and my specialist said I would be self injecting within 2 weeks cause my chronic pancreatitis is slowing down my pancrease and insulin until it stops altogether
 
Hi @Badboydavey1 - I'm possibly being daft (often am) but what was the question?
 
I have read some threads on type LADA now my pancrease specialist says my c-peptide level is in normal range but he thinks in a couple of weeks I will be type 1 and my pancrease will stop producing insulin now my question is what is the average range for c-peptide test,
Sorry I thought the question was in the last post


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Badboydavey1 said:
I have read some threads on type LADA now my pancrease specialist says my c-peptide level is in normal range but he thinks in a couple of weeks I will be type 1 and my pancrease will stop producing insulin now my question is what is the average range for c-peptide test
Click to expand...

Any idea what units your cpeptide result of 700 was reported in?

This page has some information on cpeptide tests generally - http://www.diabetes.co.uk/c-peptide-test.html

If your specialist is saying that your cpeptide result is normal that suggests that you are producing a normal amount of insulin at the moment. I have no idea what the reference range for a cpeptide test is though.

LADA (latent autoimmune diabetes in adults) or type 1.5 is type 1 diabetes, but with a slow onset. People with LADA probably wouldn't go from normal insulin production to needing insulin within a matter of weeks. They tend to start off on a does of insulin which will give their beta cells a bit of a second wind and need to be reduced (or halted) as their beta cells carry on with residual insulin production, over time the endogenous insulin production will taper off as the beta cells all die off and they will need to gradually increase their insulin dose.

If you are seeing a pancreas specialist that suggests you might have some other pancreatic condition? If that is the case, it seems likely that type 3c (pancreatic) diabetes might be something you should read up on, my understanding is that this is something that can effect people with a history of pancreatitis etc. Here is a link to the type 3c forum - http://www.diabetes.co.uk/forum/category/type-3c-pancreatic-diabetes.73/

Hope that provides at least the starting point to some answers but it does sound like you might benefit from getting a better explaination from your healthcare team - you might want to write down the questions you have for your specialist so that you can make sure you can have them all covered next time you see someone. I know it can be a lot to take in at some appointments so it can help to go in prepared so nothing gets forgotten.
 
Yeah it does it's because I suffer from chronic pancreatitis and yeah I'm on full dose of gliclazide also increasing metformin next week he thinks the pancrease is slowing down its the gliclazide and metformin that is keeping it going


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Daibell said:
Hi. I would seek clarification of the c-peptide value as there is a lot of confusion over the units used and reported; also whether it was fasting or not. My c-peptide said the 'normal' range was 1.1 to 4.4 and I came in just above 1.1 so your 340 could be very low or I don't know what. The GAD result would be useful. Either way you sound like T1 and hopefully you will be put on the Basal/Bolus regime with carb-counting.
Click to expand...

I'm not sure, but apparently, where most of us are familiar with the "gravimetric" (ie, weight) units of ng/ml, others are using pmol/l. The published conversion factor from ng/ml to nmol/l is 0.333.

Then convert to pmol (nmol = 1000 pmol). 700 / 1000 x 3 = 2.1 ng/ml, which is indeed in the reference range. But 340 / 1000 x 3 = 1.02, which is below range.
 
azure said:
Have you stopped taking all your insulin? : / What are your blood sugar results?

I can understand how it must have been a shock to have to unthink being Type 2, and start again almost as a Type 1. If you're looking for a book Think Like A Pancreas is a good one. It explains about using insulin, and is very readable.

I lost lots of weight before I was diagnosed. When I went on insulin, I put weight on, but that was weight I needed, and also I felt my poor body was 'grabbing on' to food because it had been starving so long. I remember feeling hungry to start with, but that went away as I got my blood sugar within range and learnt how to use my insulin properly.

It's sadly not uncommon to be misdiagnosed as a Type 2 just because you're an adult. So you're not alone. Concentrate on your blood sugars and do feel free to ask as many questions as you like :)
Click to expand...
Thank you I'll get that book.
 
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