1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2020 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Type 1: What are your HbA1c test results?

Discussion in 'Type 1 Diabetes' started by 1974darrenh, Oct 9, 2011.

  1. Becks96

    Becks96 · Newbie

    Messages:
    3
    Likes Received:
    0
    Trophy Points:
    1
    Hi mine was 98 % last time have high bm daily.find it hard to control for over 24 years had my left leg amputated 10 months ago hoping hba1c is much lower soon just have keep trying.
     
    • Hug Hug x 2
  2. Diakat

    Diakat Type 1 · Moderator
    Staff Member

    Messages:
    5,602
    Likes Received:
    4,171
    Trophy Points:
    198
    Hi @Becks96 I hope things improve for you. Has your leg healed now? What support are your diabetes team giving you?
     
    • Agree Agree x 1
  3. Becks96

    Becks96 · Newbie

    Messages:
    3
    Likes Received:
    0
    Trophy Points:
    1
    Well i have many things to say it all started in 2016 my left leg became blocked so had bypass which failed then had small cut on toe which never healed due to poor curculation and diabetes didnt help so had to be removed i lost my mum at 58 due to ms then lost my job and leg four months after.i have not had a diabetes consultant for 3 years now due to me and them not seeing eye to eye.i had carpels tunnel 5 years ago now its come back and will not do ops again due to nerve damage i have so wear hand splits also.but ive managed to get bms around 15mmol at mo.
     
    • Hug Hug x 3
  4. luke8841

    luke8841 Type 1 · Newbie

    Messages:
    3
    Likes Received:
    2
    Trophy Points:
    43
    Hope it is all settling down for you and becoming 2nd nature! it is a bit of a journey and i say that after >30 years T1D!
     
  5. Dave P

    Dave P Type 1 · Well-Known Member

    Messages:
    74
    Likes Received:
    34
    Trophy Points:
    58
    6 months later... my latest HbA1c is 5.5%. Nurse I saw was happy with this and when looking at my meter results said it was one of the best ones she's seen. I'll be seeing the same doctor next time who said 5.8% was too low, so hopefully I won't get a telling off if it's around this level again? It seems stupid that I should have to worry about this but I can't help it.
     
    • Agree Agree x 1
  6. Dave P

    Dave P Type 1 · Well-Known Member

    Messages:
    74
    Likes Received:
    34
    Trophy Points:
    58
    Exactly the same as me then. It is stupid isn't it? I intend to ignore such advice and continue to shoot for 5 to 5.5. I am assuming they can't punish you by taking your treatment away if you ignore their bad advice.

    I mean how can they complain that your levels are nearly as good as a non-diabetic - isn't that the point? To get ourselves as close to normal as possible to minimise the risk of complications? This helps us and helps the NHS. What's the problem with that?
     
    • Like Like x 2
    #2006 Dave P, Feb 13, 2020 at 4:28 PM
    Last edited: Feb 13, 2020
  7. Heathero

    Heathero Type 1 · Well-Known Member

    Messages:
    302
    Likes Received:
    163
    Trophy Points:
    83
    My HBA1c was 6.5 . I got positive feedback. Using Libre has helped.
    Just wondering if concern Re low HBA1c from professionals
    may be of concern as hypos will affect this. Especially if not quickly treated?
     
  8. Dave P

    Dave P Type 1 · Well-Known Member

    Messages:
    74
    Likes Received:
    34
    Trophy Points:
    58
    Yes I know hypos can be dangerous and that is of course what the NHS are concerned with. However, they should look at the data in the proper context. Someone could have an HbA1c of 5.5% and have tight control with few hypos and no serious ones (like myself). Or, someone could have 5.5%, or 6.5% like yourself, but fluctuate wildly from very low to very high. HbA1c is a very blunt instrument and doesn't in and of itself give the full picture, it is just a very simplistic and limited measurement.

    Accordingly, in my opinion, any professional who makes the blanket statement that (say) 5.5% is too low, but 6.5% is fine, is not doing their job properly. And the thing is they don't have to guess! Because we go in there with our electronic meters with the memory bank full of all the data from our testing, they upload it to their computer and it shows exactly what numbers we've had and how good or bad our control is.

    Of course, if I had 5.5% but was getting loads of hypos all over the place, it would absolutely be proper for them to say "hang on a minute, this is no good, you need to stop aiming for such low numbers because you're having all these hypos". But for someone who is disciplined enough to have good tight control? They should be saying carry on what you're doing, this is good.

    6.5% is fine but AFAIK is not low enough to guarantee not having complications. It equates to an average blood sugar level of around 7.8 which many of us would be uncomfortable having for long periods. For a few hours after a high carb meal is one thing but to average that all the time is arguably not ideal.
     
  9. Heathero

    Heathero Type 1 · Well-Known Member

    Messages:
    302
    Likes Received:
    163
    Trophy Points:
    83
    Yes indeed.
     
  10. localshop

    localshop · Well-Known Member

    Messages:
    79
    Likes Received:
    21
    Trophy Points:
    8
    42, up from last years 38. She said it had improved!
     
    • Like Like x 1
  11. Gary61

    Gary61 Type 1 · Well-Known Member

    Messages:
    66
    Likes Received:
    101
    Trophy Points:
    93
    Just came back from the clinic and was informed that it was 6.1 or 43%. Really pleased with this as it is my first hbA1 with my new Medtronic 670g pump. And this result is basically eating what I want at whatever times I want as well. This pump rocks:)
     
  12. margamandan

    margamandan Type 1 · Active Member

    Messages:
    26
    Likes Received:
    4
    Trophy Points:
    43
    Hi Gary 61, eating anything you want, when you want, how does that work? I miss those days, prediabetic.
     
  13. Gary61

    Gary61 Type 1 · Well-Known Member

    Messages:
    66
    Likes Received:
    101
    Trophy Points:
    93
    I sometimes have to pump large amounts of insulin to do this such as on pancake day lol. Sometimes my sugars will reach high ish levels, but I know that usually within 2hrs they will usually start coming down. Sometimes it literally is guess work, but I'm prepared to take on more carbs if that's the case. It helps enormously having a real time B.S. to look at as I can pump small amounts periodically if they are rising too much.
    I'm not saying that everyone should do it, but I feel comfortable cheating the system to a degree and because I'm very experienced and considered as having excellent control, I feel I can get away with it. This pump though has really made a huge difference in allowing me to carry out this process.
     
    • Like Like x 1
  14. Marie 2

    Marie 2 LADA · Well-Known Member

    Messages:
    1,532
    Likes Received:
    1,092
    Trophy Points:
    198
    I eat what I want as long as it's vegan for me. I find the most important thing is timing and the proper dose of course. My A1C was 32 last time (5.1%).

    But prebolusing and timing are critical for me, but also having a pump to make small adjustments whenever needed and a Dexcom with alerts have been extremely helpful. The alerts let's me know something is going on before I get there.
     
  15. Dave P

    Dave P Type 1 · Well-Known Member

    Messages:
    74
    Likes Received:
    34
    Trophy Points:
    58
    I assumed this is common if not the norm for type 1s, it works by taking enough insulin to cover what you eat?
     
    • Agree Agree x 4
  16. Gary61

    Gary61 Type 1 · Well-Known Member

    Messages:
    66
    Likes Received:
    101
    Trophy Points:
    93
    Exactly that ;)
     
    • Agree Agree x 1
  17. porl69

    porl69 Type 1 · Well-Known Member

    Messages:
    3,652
    Likes Received:
    4,081
    Trophy Points:
    198
    Carb counting and injecting based on what you are eating. Ask your DSN about the DAFNE (Dose Adjustment For Normal Eating) brilliant course that will help with your diabetes
     
    • Agree Agree x 4
  18. margamandan

    margamandan Type 1 · Active Member

    Messages:
    26
    Likes Received:
    4
    Trophy Points:
    43
    Well so far not for me. Maybe one day. I Always have a high hb1ac, or been having lows trying to hard. Finally just started to get lower, but only after changing hospital and meeting someone who takes a little time to help me with decent advice. My background bolus figure was wrong, so I had no stability. I'm also somewhat insulin sensitive, regularly only carb counting 0.5-1.5 units of novorapid required. I also didn't know I need more insulin in the am, compared to the pm.

    I'm much more hopeful thanks to her, and still learning.
     
    • Like Like x 1
    #2018 margamandan, Mar 1, 2020 at 10:38 PM
    Last edited: Mar 1, 2020
  19. margamandan

    margamandan Type 1 · Active Member

    Messages:
    26
    Likes Received:
    4
    Trophy Points:
    43
    Yes, i intend to do the dafne.
    I've heard it's a gd course.
     
    • Agree Agree x 1
  20. Wayward Blood

    Wayward Blood Type 1 · Well-Known Member

    Messages:
    75
    Likes Received:
    77
    Trophy Points:
    58
    My last one (January) was 5.8, which is the highest it's been for me in quite some time. I'm aiming for non-diabetic levels really (I'm Type 1 and follow a low carbohydrate diet), providing I can achieve that without frequent hypos.
     
    • Agree Agree x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook