Type 1'stars R Us

[Alison54321]

FG kind words thank you much appreciated
I’m feeling better x

Good to hear you are feeling better, and are ready to complain about the bad experience,

 

[LooperCat]

Do you flesh your sox? (like pulling the pelt off a rabbit, turning sox partly inside out to set the sox up for putting on)?
Oh ! Oh ! The 'borgs might rust in the washing machine !! To waterproof them make up an equal part mix of olive oil and ammonia and mix the sox in, rinse and dry. Store them in grease proof paper well away from other clothes.
On the other hand other I did this for a canoe trip in August (Aussie mid winter) with heavy woollen sox. The sox were sooo cold and slid on like an oily sleeve - yuck !! So .. second thoughts let them rust if they are going to. Oily sox might prevent blisters but the sensation is too weird !!

Nah, I just pull them on. Handily my hypermobile joints mean I can still touch my toes very easily... might give oiled socks a miss though...

 

[kitedoc]

Mel
I am feeling better thank you
Just a horrific experience

O Master, Is it time to consider an insulin pump ?? I was 'awarded' mine because night hypos were becoming unmanageable on multiple injections. Just a thought ??

 

[CranberryIce]

Hope you are ok @Cumberland

 

[CranberryIce]

I’m feeling for you @CranberryIce, it’s so hard trying to be reliable when good/bad bs get in the way. Even worse when people at work don’t really understand the inner state a low creates and start asking all kinds of complex questions. Not surprised you’ve had (probably) stress highs ....... now breathe ........ in the grand sweep of time that’s your life it’s just a little blip; feels like a huge mountain when it’s facing us though.

Even if my boss understands, its having to try and explain myself to others.

Being a teacher your not allowed to be ill, or late or take time off or look after yourself. In the past I have neglected my diabetes just to get my job done... but not anymore.

I talk about my diabetes more openly now, I will be firm with my boss and if Its not safe for me to drive- I wont make it in until I can.

Spike alarms have already gone off twice in our meetings- but I don’t care. I just said sorry- time for insulin.

 

[LooperCat]

Even if my boss understands, its having to try and explain myself to others.

Being a teacher your not allowed to be ill, or late or take time off or look after yourself. In the past I have neglected my diabetes just to get my job done... but not anymore.

I talk about my diabetes more openly now, I will be firm with my boss and if Its not safe for me to drive- I wont make it in until I can.

Spike alarms have already gone off twice in our meetings- but I don’t care. I just said sorry- time for insulin.

Winner because you’re taking exactly the right approach and a hug because it sucks. Even if we appear to be gliding along, nobody knows just how frantically we’re paddling under the surface to keep it up. Unless we tell them. I’m now making a real point of letting friends and family see just how much I have to do to keep myself afloat. It’s been quite a revelation to many...

 

[kitedoc]

Even if my boss understands, its having to try and explain myself to others.

Being a teacher your not allowed to be ill, or late or take time off or look after yourself. In the past I have neglected my diabetes just to get my job done... but not anymore.

I talk about my diabetes more openly now, I will be firm with my boss and if Its not safe for me to drive- I wont make it in until I can.

Spike alarms have already gone off twice in our meetings- but I don’t care. I just said sorry- time for insulin.

Grasp the nettle of discrimination, savour the fruit of justification but remain not smug if you can!!

 

[kitedoc]

Winner because you’re taking exactly the right approach and a hug because it sucks. Even if we appear to be gliding along, nobody knows just how frantically we’re paddling under the surface to keep it up. Unless we tell them. I’m now making a real point of letting friends and family see just how much I have to do to keep myself afloat. It’s been quite a revelation to many...

May be if we had duck's feet when could paddle better underwater and better speak with quacks !!

 

[karen8967]

Spent the night in A&E
Absolutely disgraceful
I’ll say nowt more but complaints been phoned in to PALS and I have asked for feedback from A&E Matron

hope your feeling better my friend and that youve been discharged the royal is an awful hospital never seen nothing like the a and e there .how come your in my neck of the woods have i missed a post .i hope your hossy visit does not interfere with your liverpool visit xx

 

[kev-w]

May be if we had duck's feet when could paddle better underwater and better speak with quacks !!

Or become an author of dubious debatable medical books?

Quite a twitchy morning for me, I needed a correction jab which levelled me but some graft started me downwards, hopefully I'll not spike back up, one thing I'm noticing with Tresiba is that I'm injecting to correct more often, I'm not moaning but making the observation after a week with one gym session only, the learning curve's a long un......

 

[Cumberland]

Good to hear you are feeling better, and are ready to complain about the bad experience,

I have phoned PALS and await a phone call back from A&E Matron

I don’t like complaining as I know first hand that it’s tough working for the NHS
But when your ill with hyperglycaemia and are throwing up it really really disturbed me that at A&E that their priority was to see drunks, drug addicts etc who came in after me and received treatment before me because they were being obnoxious and unruly (the police fetched one guy in who was in handcuffs) came in after I had waited and waited for 4 hours and was seen immediately before their arses even touched a seat really really hissed me right off

I was there 8 hours not even triaged not one blood glucose test Zilch help

So I left very unhappy still feeling rubbish no sleep

 

[Cumberland]

Thank you to all for your supportive comments thank you

 

[Cumberland]

hope your feeling better my friend and that youve been discharged the royal is an awful hospital never seen nothing like the a and e there .how come your in my neck of the woods have i missed a post .i hope your hossy visit does not interfere with your liverpool visit xx

Karen last minute deal for £30 at Campanile Hotel
I had been running high sugars for a while now but I felt really poorly
Got taxi to nearest A&E bloods near 30.0

The lack of care or concern was disgusting

We’re on the road back home I’ve stopped at every service station on the M6 (currently at Burton) and will go straight to bed when I get home

I never got seen at that ruddy cesspit of a hospital I discharged myself after waiting well over 8 hours

 

[karen8967]

Karen last minute deal for £30 at Campanile Hotel
I had been running high sugars for a while now but I felt really poorly
Got taxi to nearest A&E bloods near 30.0

The lack of care or concern was disgusting

We’re on the road back home I’ve stopped at every service station on the M6 (currently at Burton) and will go straight to bed when I get home

I never got seen at that ruddy cesspit of a hospital I discharged myself after waiting well over 8 hours

Oh cumbs hope your ok x let me know how you get on and what r your numbers like now xx

 

[LooperCat]

Oh crumbs, Cumbs, that’s terrifying.

I remember vividly when the paramedics came out for my first DKA (my seven year old son phoned for them at my request) they were actually telling me off for hyperventilating. That they couldn’t help unless I slowed down my breathing and stopped panicking because I was making myself worse. My little lad told them I was T1 and insisted they checked my blood sugar level. Once they saw how high it was (off the scale) they took it very seriously indeed, but they took some persuading to do a BG check. Another time, when my husband was literally having his brain eaten by a viral infection (he had encephalitis), they insisted he must be on drugs or drunk - they assumed that because we look a bit “different” that we must be perpetually off our faces. This was 8am one Sunday morning! The delay in insisting he was clean nearly cost him his life - he ended up on IV antiviral meds for two full weeks.

I guess my point is that invisible illnesses like T1 and brain injuries seem not to be as serious as those presenting with blood pouring from them or gobby drunks and get overlooked. I had a long chat with the paramedics who came out for my accidental insulin overdose in January, they insisted on staying with me until my sugars came up to 6, and it took a little while. So over a cuppa I mentioned those two episodes. It seems that such a large proportion (in my area) of callouts are drink and drug related, and for some medics, it’s the first assumption they make. People are naturally super cagey admitting to any form of substance abuse to those seem as “authority” figures (especially in a uniform with blue lights) that they find they really have to press the patient/family/friends to find out what’s happened so they can treat appropriately. It’s a fine line they have to tread, and they are only human.

However @Cumberland - your lack of even triage is appalling, I hope you get things stable really quickly - will you go to your own hospital if not? Sending gentle hugs xxx

 

[Knikki]

@Cumberland Glad to see your on the mend, take care.

 

[smc4761]

Thats a pretty **** experience Cumberland, hope you are back to normal now. Let us know how you get on with your complaint.

Did a 12.5 km walk today around Greenock Cut, in some lovely sunshine. Had a few wee low dips but Fruit and Nut saw them off. Great to have a few days off and enjoy the sunshine

 

[karen8967]

 

[Alison54321]

Thats a pretty **** experience Cumberland, hope you are back to normal now. Let us know how you get on with your complaint.

Did a 12.5 km walk today around Greenock Cut, in some lovely sunshine. Had a few wee low dips but Fruit and Nut saw them off. Great to have a few days off and enjoy the sunshine

Has this prepared you for Edinburgh tomorrow? I'm intrigued what, after 25 years of avoiding it, has persuaded you to go there?

 

[smc4761]

Sad I know, but I have always wanted to go to National Museum of Scotland. There is an exhibition on there, Rip it Up, the story of Scottish music. There was also a BBC documentary of same name on about a month ago which inspired me to get off my butt and go and see.

Am I too late get my inoculations to get into Ednburgh