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Type 1'stars R Us

DCUKMod said:
Oh dear Mahola. That's a big kick in the teeth.

Are the docs considering any treatment for your doctor, or do they want to watch it awhile? I'm assuming she'll nw be screened for a whole bunch of AI issues.
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I'm taking her for blood tests on Friday so won't really know anymore until we get those results back. The only "treatment" that's been mentioned at the minute is strong steroid cream. I think it's just a case of wait and see. My stress levels at the minute are through the roof.
 
mahola said:
I'm taking her for blood tests on Friday so won't really know anymore until we get those results back. The only "treatment" that's been mentioned at the minute is strong steroid cream. I think it's just a case of wait and see. My stress levels at the minute are through the roof.
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My Mum had alopecia patches on and off for many years. I had two bald patches, eons ago when I was recovering from my anorexia, so it was associatedd with that, rather than AI.

Mum had one patch that would recurr, but her other patches grew back again, then failed in another place later.

When she has her bloods done, it'd be fab if they'd do her vitamin levels as well as the hormonal/AI stuff. For so many conditions, it's important we're not deficient in anything.

Hopefully her patches will start shrinking soon.
 
mahola said:
I'm just going to sneak this in here... I'm gutted. My eldest girl has been diagnosed with alopecia areata. An autoimmune disease. I've clearly passed on a **** immune system to both my girls seeing as I kindly donated type 1 to the youngest. FML.
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@mahola, not your fault. We're only guilty of intentional acts. I have a good friend with alopeica universalis. She's been on tv and radio to champion her alopecia organisation and to get a wider understanding of the condition, and has done all kinds of fund-raising event so she's done things she never would have otherwise. Of course she, your daughter, and you on your daughter's behalf would rather they didn't have it. I'm sure you've done your own research; I think this article is helpful and fairly positive https://www.britishskinfoundation.org.uk/alopecia-areata Wishing you both well, let us know how you get on, sending hugs
 
mahola said:
I'm just going to sneak this in here... I'm gutted. My eldest girl has been diagnosed with alopecia areata. An autoimmune disease. I've clearly passed on a **** immune system to both my girls seeing as I kindly donated type 1 to the youngest. FML.
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I'm sorry to read that Mahola.

If it's any hope for you & your eldest? My wife had an issue with alopecia back last year. (in three spots.) there was no rhyme or reason for it..
She was devastated.
But her hair has since regrown with some pretty funky streaks.

Keep the faith.! :)
 
@mahola . So sorry to hear about your daughter. It must be devastating for a young lady to have to deal with such a condition.
Small consulation but a guy I work with had the same problem a few years back and overtime his hair has grown back.
Fingers crossed that test results provide more information and lead to a positive and successful treatment.
 
@Knikki . No man hugs today.
But your post does highlight one of my biggest bug bears with technology. We can and do become so reliant on things that make life easier. Fully appreciate that libre and my Dexcom both provide so much more than just an easier life.
Self funding Dexcom means I have no limit to test strip availability which makes doing a week out of every four CGM free.
I find it really useful and almost liberating in a strange way to be free of the technology side of stuff.
Hope that everything settles down with the new sensor. Could you not try to arrange for some type of floating prescription that could be used for extra strips to have a break from the libre for a week here and there?
 
Knikki said:
~sigh~

Now sat here at a 2.9 which is nice, no please, no hugs, its my own fault for relying to much on the technology on my arm, which is not playing nice. If my fingers did not take such a hammering from pricking them then I would give up Etch A Sketch for a while. Mind you that poses a problem doing that because I am limited to only 50 test strips a month being on Libre. Swings and roundabout I guess.

Anyway have eaten lunch (not injected) and just sat waiting for the BSL to start motoring back up and will catch it later.

Yes I know its a "game changer" and yes it has helped, especially Mrs Knikki but sometimes it is just an ass.

Anyway this pile of technological junk only has another two days to run before I change it, so we will see how the next one behaves.
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@Knikki the Libre defo should not restrict your test strip availability...before I was put on the pump I could still have as many strips as required
 
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