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Type 1'stars R Us

It worked, I have a little gingerbread man, now.

Excellent!

I wonder if the designers thought through the idea of having a 40g carbs person-shaped biscuit telling us about our iob.....

It really is useful, though. I've been in a few situations on, say, a Saturday, when I've gone out for a late lunch, bolused for that, then on to the pub for a few beers, bolused for those (and, as you no doubt know, that requires a bit of attention), afternoon turns to evening, then there's the usual, hmm, cheese on toast or oatcakes or kebab decisions before bed. I'd have lost track of iob if doing it in my head in that sort of situation, so the wee ginger fella really earns his keep then.

And also for those situations when I'm too high and swithering about a correction bolus. If I see I've still got roughly 5 units on board which might still kick in hard, that's going to persuade me to just be patient, whereas if I've only got 1, I'd be more inclined to correct.

I'm not sure, though, whether ccgs would give much weight to a funding argument that libre helps us get rat-ar**d safely!

One thing which pops up every now and then is the symbol disappearing for no apparent reason. Turns out if you tick the box to start a bolus entry but then get distracted and leave the units at 0, but still enter it, it disappears the symbol as a safety measure because it's been fed incorrect information. It comes back after a few hours.
 
Excellent!

I wonder if the designers thought through the idea of having a 40g carbs person-shaped biscuit telling us about our iob.....

It really is useful, though. I've been in a few situations on, say, a Saturday, when I've gone out for a late lunch, bolused for that, then on to the pub for a few beers, bolused for those (and, as you no doubt know, that requires a bit of attention), afternoon turns to evening, then there's the usual, hmm, cheese on toast or oatcakes or kebab decisions before bed. I'd have lost track of iob if doing it in my head in that sort of situation, so the wee ginger fella really earns his keep then.

I'm not sure, though, whether ccgs would give much weight to a funding argument that libre helps us get rat-ar**d safely!

One thing which pops up every now and then is the symbol disappearing for no apparent reason. Turns out if you tick the box to start a bolus entry but then get distracted and leave the units at 0, but still enter it, it disappears the symbol as a safety measure because it's been fed incorrect information. It comes back after a few hours.
If you set up Nightscout, and get a compatible watchface, you can have your IOB&COB displayed on yer wrist too. So as you can see, I’ve got 0.1u active insulin, no carbs in my system just now. The line above the time usually displays the basal rate, but I’ve currently got a temporary basal running (at 50% because I need to drive in a bit and don’t want to take a dextrose tab if I don’t have to) so it’s come up with NANU, whatever that means :D

8BD95691-BAF6-400C-97BD-8EC7301F48FB.jpeg
 
Thanks Alison and couldn't agree more about CCGs! You're right about pumps not being only for experts; I know I'd be capable of dealing with a pump if I ever had one. I think part of my issue is that I've had more trouble than ever before keeping bgs stable this year and I don't know why. The Libre has certainly helped but doesn't explain some odd changes and blips like this recent evening rise. I'm not sure what to do for the best sometimes, and after 30 odd years when I've gone along not perfectly but okay, I feel I don't know what's happening half the time now. And that leads to me being more ambivalent than I usually would be about taking on something new. As I say, I'd be extremely doubtful about my CCG agreeing to it, and despite also thinking 'what do they know', they hold the purse strings.

I don't know. We have so much more information now with freestyle libre. I've just been getting annoyed because my blood sugar is going high in the afternoons, last few days, when normally it goes lower. But without the freestyle libre I would just have done a mid afternoon blood test, and made an exclamation of surprise, and done a correction, but been unaware of the extent of the change in behaviour.

Are you sure it's doing weird things, or are you just more aware of them now?

In my case I think I might have created a perception of normal blood sugars, with Freestyle Libre, that I would never have had in the past, so deviations from it, are more noticeable
 
If you set up Nightscout, and get a compatible watchface, you can have your IOB&COB displayed on yer wrist too. So as you can see, I’ve got 0.1u active insulin, no carbs in my system just now. The line above the time usually displays the basal rate, but I’ve currently got a temporary basal running (at 50% because I need to drive in a bit and don’t want to take a dextrose tab if I don’t have to) so it’s come up with NANU, whatever that means :D

View attachment 27880


I've got iob on the phone with xdrip+, not cob, but the predictive simulations give me a reasonably good estimation of the interplay between the two.

I'd played around with the settings to see if I could get iob on the watch too but, as you say, that seems to need nightscout.

I'm not entirely clear about nightscout - does it need a permanent wi-fi connection to work?

I've just got a cheap pay-as-you-go phone which I top up with a tenner every now and then, not a contract. I'd be reluctant to get stitched into a contract just to get permanent wi-fi.

If it does need wi-fi on all the time, battery drain is maybe an issue?

Speaking of predictive simulations, I was a bit puzzled by some of the parameters in xdrip. Got the ratios and correction factor sorted out easily enough but the Carb Absorption Rate setting left me scratching my head, so left it at the default. Found this article by Dana Lewis, she of openAPS fame, so will have a plough through that. The Default Liver Maximum Impact setting will remain a mystery for a long time...

https://diyps.org/2014/05/29/determining-your-carbohydrate-absorption-rate-diyps-lessons-learned/

PS: the nanu thing seems to be a glitch with importing temp basal rates:
https://github.com/mddub/urchin-cgm/issues/26
 
Thanks Scott am Mel, guessing I actually have to tell the libre how many carbs and how much bolus, something I dont do at moment. I simply use the libre to tell me my interstatial fluid reading
 
it’s come up with NANU, whatever that means

Hmm, some bells are ringing from my javascript days years ago. NaN is "not a number". The code has produced a variable which is not a number, so the rest of the code which is expecting a number can make no sense of it. It's like the difference between "5" and "five". We humans know those mean the same thing but code regards 5 as a number but five as text: the script might as well be saying that the level is "chair" or "wardrobe".
 
Seriously guys this forum and this thread in particular have opened my eyes. Think I always felt pretty isolated, was stuck in my ways and would not try anything new. The idea of deviating off my 3 bolus injections every day at breakfast lunch and dinner was an alien concept to me. And of course if I bolus I had to eat even though I may not have wanted to (like that was ever gonna happen)

So many great ideas, useful information and such friendly advice thank you so much
 
If you set up Nightscout, and get a compatible watchface, you can have your IOB&COB displayed on yer wrist too. So as you can see, I’ve got 0.1u active insulin, no carbs in my system just now. The line above the time usually displays the basal rate, but I’ve currently got a temporary basal running (at 50% because I need to drive in a bit and don’t want to take a dextrose tab if I don’t have to) so it’s come up with NANU, whatever that means :D

View attachment 27880
Yay, great levels now! and of course, NANU - Mork & Mindy! (am I the only one who remembers?)
 
I don't know. We have so much more information now with freestyle libre. I've just been getting annoyed because my blood sugar is going high in the afternoons, last few days, when normally it goes lower. But without the freestyle libre I would just have done a mid afternoon blood test, and made an exclamation of surprise, and done a correction, but been unaware of the extent of the change in behaviour.

Are you sure it's doing weird things, or are you just more aware of them now?

In my case I think I might have created a perception of normal blood sugars, with Freestyle Libre, that I would never have had in the past, so deviations from it, are more noticeable
Yep, good point about being more aware. Certainly this recent evening rise is something I'd have noticed, but for the rest - you could well be right. Especially about the 'perception of normal'. Maybe that just means that I'm finding deviations from that more frustrating!
 
@Scott-C Any phone you get that has Wi-Fi capability you can work without being on a contract, like you I only use Pay as You Go and sometimes mine runs out and I forget to charge it up with money, but the Wi-Fi still works so I can sit at home or in Costa and happily surf the iterwibble using it :)

Afternoon all - All is SIG had a lovely straight line all last night, down at 2.3 not so good but for the rest of the day all in the green :)

I have also just accessed the Professional Health Care settings on the Libre Reader so will play with that later. :D
 
Thanks Scott am Mel, guessing I actually have to tell the libre how many carbs and how much bolus, something I dont do at moment. I simply use the libre to tell me my interstatial fluid reading

The gingerbread man is definitely useful for keeping track of iob, but the other good reason for entering bolus and carbs on the libre reader or the phone app is that, although it isn't that useful "in the moment" for seeing what is going to happen in the next few hours, it's very useful when you download it to the libre program on the pc. It produces a whole lot of reports and you can view daily graphs which show peaks after meals.

I spent a bit of time looking at mines, had a look at the ones which showed the smallest spikes, looked at how far I'd pre-bolused, how much insulin, how much carbs, and also looked at the ones which went way wrong.

Doing that made it a lot easier to say, ok, the graphs from my recent past involving real actual food, show that a meal of that size with x u, y minutes before the meal worked out well, so I'm going to keep that in mind for other meals. Of course, it doesn't always work all the time, but it gives a lot of pointers we wouldn't otherwise have.

If you bling libre up with one of the transmitters we've been talking about, entering carbs and bolus is also really useful "in the moment".

The apps do a "predictive simulation" based on your ratios, correction factor, bolus and carbs, so as well as seeing the live 5 minute blue dots, it projects the graph out into the future with purple dots and makes an educated guess as to where you're going.

They can be a bit hit or miss, takes a while using it to decide which projections to trust or not, it's a bit like calling an election result at 2am, they will update every 5 mins, but all in all, they provide some useful clues on where we might be going. I've often corrected or eaten based in part on what the prediction is saying.

I've put a pic below to show what it looks like - remember that this isn't from some really expensive sci-fi gadget, it's from a libre sensor, which I now get free on script, with a 100 quid transmitter on top which has now lasted for a year, sent to a free app on a 95 quid phone.

The graph show 7 u about 25 mins before a 75 g meal at noon, pretty sure there was some low gi wild rice in that, and a yoghurt, hence the dip down to touching 4 before a rise back up to 4.5 at 12:45.

The prediction then kicks in, the purple dots. They're suggesting it'll flatten out at 5.5 before a rise to about 8 starting at 14:00. Nothing dramatic there, it'll probably change again in 5 to 20 mins time after the rice has started being absorbed, so I'm not paying too much attention to it, but there's enough to suggest watch out for that possible 8 and definitely review it again if a sharp pop up happens around 13:30.

Does it take more of my time? Yes, it does, but after being practically blind on strips for decades, the novelty of actually being able to see this stuff and learning from it hasn't worn off yet.

Screenshot_2018-04-17-12-47-24.png
 
Any phone you get that has Wi-Fi capability you can work without being on a contract,

It's ok, Knikki, I've got a comprehensive list of cafes/bars in my area which have decent wi-fi, but for the times in between when I'm not in them, if nightscout requires a constant connection, it's going to chew up my tenner!
 
It does require a constant connection, I’m afraid. I’m one of these that uses the interweb a lot when I’m out for streaming music, messaging, Facebook live, satnav etc, so I have a plan with a lot of data - 32gb a month if I recall. If I’m in an area with no signal, I just switch to a Spike compatible watchface, which doesn’t need the web.

Spent the last few hours cruising 5.5-6mmol, so it looks like I’ve got my afternoon shark week basal rate right. :borg:
 
Thanks Scott am Mel, guessing I actually have to tell the libre how many carbs and how much bolus, something I dont do at moment. I simply use the libre to tell me my interstatial fluid reading
For people that use bothe the scanner and a phone to scan, this is worth bearing in mind...

I spent months religiously recording all my carbs and doses on the scanner, and uploaded every fortnight to Libreview and Diasend. When I got a compatible phone, I started using that as a backup scanner a few times a day but did t record any info on it. Turns out whatever is on the phone overrides the scanner upload in LibreView... not in Diasend though, it collects EVERYTHING :)
 
Think I always felt pretty isolated, was stuck in my ways and would not try anything new.

Things are changing a lot these days, and it's interesting being part of it.

With strips alone, I can understand the cautious DAFNE approach - "don't test between meals unless feeling hypo, and save corrections till meals."

Cgm has been around in a commercial form for about, what, 15 yrs or so, but was shockingly expensive - I had a free trial many years ago of an early Medtronic gadget, Guardian - loved it, was told it was £4000 for the receiver, £400 per month for the sensor, didn't love it so much.

Then along came our little disc shaped plastic friends from Abbott. Sure, dexcom came before they did, but they didn't quite catch on, for multiple reasons. Libre did, because of the simplicity, pricing and visibility.

We, the users, know how to work with them, but many professionals still don't, so they still stick to the DAFNE line.

Which gets us into situations where we have to explain why we are correcting between meals, contrary to DAFNE advice.

It's obvious: if my cgm is telling me that my 6 looks like it's heading towards 9 and above, why on earth shouldn't I correct now with 1 or 2u to pin it to below 7, instead of saying hello to a 12 at the next meal?

Some hospitals are getting clued up on this. Others aren't.

The hospital where I'm treated is pretty liberal. They publish leaflets about cgm, and recommend Stephen Ponder's book Sugar Surfing. It's a worthwhile read for anyone using cgm/libre.
 
Things are changing a lot these days, and it's interesting being part of it.

With strips alone, I can understand the cautious DAFNE approach - "don't test between meals unless feeling hypo, and save corrections till meals."

Cgm has been around in a commercial form for about, what, 15 yrs or so, but was shockingly expensive - I had a free trial many years ago of an early Medtronic gadget, Guardian - loved it, was told it was £4000 for the receiver, £400 per month for the sensor, didn't love it so much.

Then along came our little disc shaped plastic friends from Abbott. Sure, dexcom came before they did, but they didn't quite catch on, for multiple reasons. Libre did, because of the simplicity, pricing and visibility.

We, the users, know how to work with them, but many professionals still don't, so they still stick to the DAFNE line.

Which gets us into situations where we have to explain why we are correcting between meals, contrary to DAFNE advice.

It's obvious: if my cgm is telling me that my 6 looks like it's heading towards 9 and above, why on earth shouldn't I correct now with 1 or 2u to pin it to below 7, instead of saying hello to a 12 at the next meal?

Some hospitals are getting clued up on this. Others aren't.

The hospital where I'm treated is pretty liberal. They publish leaflets about cgm, and recommend Stephen Ponder's book Sugar Surfing. It's a worthwhile read for anyone using cgm/libre.
What Scott said, basically. I’ve had “chats” from non diabetes specialist medics about stacking insulin doses, but I use a couple of apps to track it all, so I’m always aware of exactly how much I’m carrying. Doubly so now I have that data on my watch! I think F/CGM has been such an eye opener to us all - when I was on,yntestimg before a meal (and occasionally two hours after) as per DAFNE, I was clearly totally oblivious to what was happening the 23 hours of the day I didn’t have any information...

I’ve often described Libre etc as the difference between watching a real time video feed of someone’s day as opposed to seeing six tweets to say where they are. Sugar Surfing is fab, I just ordered a paper copy from America as the kindle version is hard to annotate!
 
It does require a constant connection, I’m afraid

Ah, well, that rules out that option for me, then. The North Koreans and the FBI are still trying to find me after a little misunderstanding over a restaurant bill in Vientiane, Laos in 1998, so going online all the time just to get iob on my watch will totally blow my cover.....
 
This diabetes lark. Late yesterday afternoon, I did a pre-meal bolus, and my blood sugar went shooting up, inside of doing a little dip, and I had to do a lot of correcting. Something similar happened this lunch time.

So all prepared, I did 2 units about half an hour before eating, and what did it do, it went shooting downwards, and I had to eat my food in the wrong order, sweetest thing first.

I wonder if this is the end of the strangely high blood sugars? and I'll never really know what caused them, I can guess, but I don't really know. Anyway, will see what happens.
 
I haven't been around much on here and feel much better for it. I was becoming obsessed by numbers and whether I was doing the right thing. I am and feel far more confident in my ability to handle madam BG. I appreciate all the support, advice and kind words I've had so far but feel it's just all too consuming to log in everyday. Hope everyone has a lovely Sunday
 
I'm curious as to why you want to be on a pump?

Not a criticism, I'm just curious :)

Do you think it will help get around some of the hypos you get or do you think you will be able to control carb/insulin rations better?
All the hypos are doing my nut in now. It is affecting my work. I am constantly check8ng my libre and bgs. I am hoping for the 649H and the enlite sensors, even if I 8 onlyl get the sensors on a temp basis. The 640G can temporarily suspend basal when it spots a downward trend and resumes when all is go8ng well
 
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