Type 1'stars R Us

[Knikki]

@slip Man that must be so frustrating and annoying.

Guess I'm kind of lucky, consultant in the 1970's was physician who basically though himself as a God and now I think about it was rather patronising, still managed to make it thorough that.

My current DSN is great, she is also a T1D and we often have a good chat about things, she obviously has to tow the party line but is always interested to hear about things on the forum and what I have learnt.

Other than that BSL wise all OK bit bouncy around the green bit of Etch A Sketch with xDrip, Libre Mobile, Libre Reader and bloods all saying different things , bit annoying but coped with worse.

 

[Robinredbreast]

Morning guys, 6.5 for Tuesday morning, it was 4.2 before bed, so had a couple of grapes to tide me over and bingo, a good start to the day

 

[Robinredbreast]

I had a lovely consultant in the 1990's early 2000, he then went into research and that was that. I hope he still is, or did a good job in research as he did with my diabetes care.

 

[slip]

what a waste of everyone's time, and how demoralising

That about sums it up! Hope you have a much better experience tomorrow.

 

[slip]

On a positive note 5.9 this morning after Chilli and rice last night

 

[kev-w]

Good morning y'all, 11.2 waking for me and I slept through 2 alarms, go me

Frosty outside so a late cold hand Tuesday start, I too visited the hospital clinic yesterday to collect my Libre script and the DSN (good troop she is) reckons I'll get it from the GP come April and very pleased she is about the NHS guidelines directing the CCG as she'll be able to get more people on them so I hope that happens across the UK.

I avoid my GP's for diabetes and use them just for the repeats, my repeat says I'm overdue a review but having seen the consultant twice this year and the DSN 5 times it's cool, first GP review put me off as the nurse asked why I was there as she only saw T2s at her clinic she also had a little problem with MDI and me testing a lot but I wasn't really there to explain

 

[Robinredbreast]

On a positive note 5.9 this morning after Chilli and rice last night

I had Chicken sweet and sour rice................. which was very nice

 

[Robinredbreast]

Tuesday's aren't so bad ..................It's a sign that we've somehow survived Monday!

 

[slip]

I'd just like to point out my appointment yesterday was at the diabetes clinic at the hospital with a Doctor (or what ever he was!) not at the GP nor GP DSN or hospital DSN (I do not go to the GP practice for anything diabetes related..........at the mo!)

 

[hh1]

Morning from the unicorn train (on time) to the Big Smoke.

Climbing last night which meant I missed tea and had a scone for supper at about 10:30.
I must have got something wrong - I woke at 4am. LibreReader said 2.7. Glimp say 3.8. I couldn't be bothered to prick my finger so took a couple of GlucoTabs and went back to sleep. Must have got that wrong because I woke at 13.3.
Note to self: practice what you preach and don't believe Libre in the middle of the night.


I have never been to my GP for a diabetes check up. I used to get an invite from them about a month after my (not bad) annual hospital appointment which I politely declined and suggest they read my notes. It was an automatic letter so no one read my notes.
Judging by the limited experience I have had of my surgery, I have very little confidence they know anything about type 1 (the initial diabetes diagnosis was delayed because they thought I had a UTI). But I may accept my next invitation to get a Hb1AC update and confirm my suspicions.

Agree about not relying on Libre re hypos; do you think the 13.3 when you woke up could've been due to a liver dump because you were very low?

 

[hh1]

That about sums it up! Hope you have a much better experience tomorrow.

Thanks @slip I'll let you know!

 

[LooperCat]

My HbA1c gets red flagged every time I go to see my GP and I always have to spend half the appointment justifying it I keep screenshots of my Nightscout composite graphs on my phone for just such an occasion. He’s probably going to have an aneurism if it goes down again But having had many conversations about my management, he’s conceded that I mostly know what I’m doing, and know more about T1 than he does. He’s actually suggested I go into medicine...

 

[LooperCat]

I doubt it as I didn't feel very low when I woke.
I think it was a combination of being too aggressive with my hypo treatment and temporary basal.
I also struggled to get back to sleep and lack of sleep often leads to a high for me.
This was partially due to being unprepared for my trip to London - the stress may have raised my BG.

But I put it down to one of those things I will never know.
I have given up trying to explain every little diabetes nuance and try to focus on trends.

 

[Fairygodmother]

Off to an appointment with the DSN this morning to see how the change from novo to fiasp’s going. I appreciate the follow up and will now need to sit down and transfer the last few days’ records to a form that’s easier to follow than the small scruffy notebook full of doodles, coffee stains and paw prints I’ve been carrying round with me.

 

[Fairygodmother]

View attachment 29725

Love it

 

[kitedoc]

@slip - that sucks, I’m sorry it was so frustrating. My last clinic appointment was exasperating - I saw a registrar instead of my normal bloke, and he started by telling me how well Tresiba was clearly working for me (he’d got the second to last HbA1c instead of my current one), even though I’d been on the pump for a couple of months by then. I showed him the MySugr printouts I always take, and he wanted explanations for a couple of (not too severe, maybe mid 3mmol) hypos I’d had - one was a gig, one was a wedding, when I’d had a “couple” of glasses of wine, hence the lows. I think one was my birthday, when we were traipsing around Cardiff all day and I’d only had the pod for four days... Anyway, I always request to be copied in on my medical letters, and when it arrived, it had me on all the wrong meds, made me out to be a raging alcoholic, and got the conversion wrong between the new and old HbA1c measures... I’d gone in hoping to have a great discussion with my consultant (he’s aware of my science background, and we talk almost on a peer-to-peer level) about how well my tech was working for me, plus smooth levels with my low carbing, and it was just so disappointing by a patronising know all. Ugh. Anyway, I had a lovely chat with the “diabetes specialist dietician”, who I’ve known for many years and got me my Omnipod PDQ. She loves what I’m doing - she’s seen me at my worst, in the ICU with DKA and an HbA1c of 134; so we’ve really been on a bit of a journey together.

@Cumberland - also thinking of you for tomorrow

Smooth night here, although maybe a little on the low side. Libre has me as in the red all night, but Spike has me in the mid fours. Quite tempted to unhook my Librelink and Diasend accounts so the clinic doesn’t see my “raw” data... and just take Spike/MiaoMiao based printed reports to my next appointment in March!

Hi @Mel dCP, Don't you just hate it when someone gets the wrong end of the stick, misreads and takes things out of context. Makes you wonder whether the registrar was just trying to impress his bosses or make himself look important.
Two things to help - the first to take to appointments when you can see the person is not listening
and the other to prove that unicorns really did exist!! (Sort of)_ And please anyone that likes them help yourself:

 

[kitedoc]

Off to an appointment with the DSN this morning to see how the change from novo to fiasp’s going. I appreciate the follow up and will now need to sit down and transfer the last few days’ records to a form that’s easier to follow than the small scruffy notebook full of doodles, coffee stains and paw prints I’ve been carrying round with me.

Those coffee stains, doodles and paw prints add authenticity and character !!

 

[LooperCat]

Hi @Mel dCP, Don't you just hate it when someone gets the wrong end of the stick, misreads and takes things out of context. Makes you wonder whether the registrar was just trying to impress his bosses or make himself look important.
Two things to help - the first to take to appointments when you can see the person is not listening
and the other to prove that unicorns really did exist!! (Sort of)_ And please anyone that likes them help yourself:
View attachment 29726

View attachment 29727

Love those! It was his first day, so I think he was just a bit over enthusiastic and just launched straight in without double checking his info was right. Either that or he was just rubbish. I’ll be able to tell if I see him again, I suppose...

 

[kitedoc]

Morning from the unicorn train (on time) to the Big Smoke.

Climbing last night which meant I missed tea and had a scone for supper at about 10:30.
I must have got something wrong - I woke at 4am. LibreReader said 2.7. Glimp say 3.8. I couldn't be bothered to prick my finger so took a couple of GlucoTabs and went back to sleep. Must have got that wrong because I woke at 13.3.
Note to self: practice what you preach and don't believe Libre in the middle of the night.


I have never been to my GP for a diabetes check up. I used to get an invite from them about a month after my (not bad) annual hospital appointment which I politely declined and suggest they read my notes. It was an automatic letter so no one read my notes.
Judging by the limited experience I have had of my surgery, I have very little confidence they know anything about type 1 (the initial diabetes diagnosis was delayed because they thought I had a UTI). But I may accept my next invitation to get a Hb1AC update and confirm my suspicions.

Hi @helensaramay, Just when you think you have that exercise thingy sorted along comes a wrong'un !!
Please see below as consolation:
Things do not always make sense and can be threatening

And the right answer may be near or far

But the sun will shine again and the you and the world are brighter for it.

 

[kitedoc]

Here is a sign I photographed ages ago. Who said Aussies have a twisted sense of humour ???