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Type 3c and eating wrong!

You need to fight, get angry (but not offensive) with them and demand answers. I am officially Type 1, receiving treatment as Type 2 and confused. I'm also struggling with insulin resistance and currently running high.
It's a horrible feeling to be high and that will have effects on your mental health so it's imperative to get those sugars under control before you get any long term effects.
 
DemonBat said:
Yes I’m in the UK and I’ve had damage to my pancreas due to several bouts of pancreatitis. That’s how I worked out I was T3c
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I'm also in the UK, and am a T3c - this is what my consultant has officially diagnosed (there are still a lot of medical professionals who know nothing about T3c though - in fact the doctors system doesn't even have this as an option)

In 2011 I spend 8 weeks in hospital with acute on chronic pancreatitus (wouldn't wish that on anyone) - as a result my pancreas basically gave up.

I'm on creon, metformin, toujeo and novorapid with multiple injections each day.

So to all intents and purposes I'm treated the same as T1
 
Phone your Diabetes Team and tell them that you need urgent help. High BGL is just as dangerous as Low.
I was diagnosed through lockdown and I didn't have any help, but I kept on nagging that I needed more help and I got it. You do have to want to help yourself.
 
I think the biggest thing you have to try and do first is look at your depression where that's through help or medication. You may be able to get Diabetes psychiatric treatment where they may be able to help you with things. After that I hate to saying but a diet of sweet stuff and relentless isn't good for anyone. There are ready meals and stuff that are a start. Hope this helps
 
Yeah I had that, I got a lot of help from diabetes psychology
 
DemonBat said:
I have had some insulin now. I’ll use some but not as much as I need and I’ll see the doctor next week x
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That's a huge help. Trying asking to see a DSN and writing down all your concerns before hand and take them with. I know it's hard but try and be persistent with them. At one point I was going in once every 2 weeks to see my Dsn as my hb1c was at 15.6.
 
Hi there! I'm T2 insulin dependent. Please, please realize soon that diabetes needs to be controlled. I have neuropathy in my lower legs because I did not work at keeping mt glucose levels down, and I now have diabetic macular edema, which I get monthly injections into my left eye; I do not want to go blind. I am now working hard on my glucose levels through long-lasting insulin, regular insulin to take with food, and Ozempic, as well as carb-counting to match my insulin units, and I've got in under somewhat control, better than I ever have before. But the damage is done, healthwise. If you would like to understand how I carb count, please reply, and I will be more than happy to help.
 
Have you tried Intuitive Eating [can't post a link as it will be treated as spam, apparently], but google it. I'm type 2 and absolutely hate being told by anyone - The Food Police mostly - what I can eat and what I can't. Intuitive Eating has helped me dial-down my pre-occupation, obsession and 'prowling' for food. It helped me realise that I am an unconscious eater - A 'Refuse-Not' eater - eating everything in sight, hungry or not, and a Waste Not Eater - clearing my plate even if full. Intuitive Eating requires me to reconnect my gut with my brain and to eat only when biologically hungry....and to stop when approaching full. I've found it quite liberating.
 
Hi DemonBat,
I've been Type 3c since I had pancreatic cancer 3 years ago. It took a while to talk to the right people and get the right advice, and I'm still asking questions now, but definitely ask for a dietitian within your local diabetes clinic, your GP shouldn't deny you a referral.
Eating the right thing is hard, but best advice is to look at the Carbohydrate content of food - NOT the "of which sugars", the base Carb value. This will dictate how much insulin you take to manage the food. I am currently on approx 1 unit insulin for every 10g carbs, but this will be individual and a bit trial and error!
Protein such as fresh meat, fish, cheese is all very low in carbs so usually you can have more of this. But bread, fruit, cakes etc all have varying levels and will require insulin.
If you are happy to use apps, try one called Carbs&Cals - free to use, it gives some info on the carb values of different foods, handy if out and you don't have the info to hand.
 
The damage that diabetes can cause is extreme - a point which often seems to be ignored by many.

My sister is a Podiatrist. She regularly used to see the extreme damage in her clinic - diabetic ulcers on legs and feet, wounds slow to heal, and yes in some cases amputations, both of toes and limbs. She lost a friend of hers - who had been T1 since a very young age due to this. Her friend had major nerve damage to the degree that she lost control of her bowel - so it isn't anything to ignore. Her friend unfortunately had continued smoking - which together with the diabetes led to her very sad loss after she had a leg amputated and secondary infections.

So please Demonbat - get help from the hospital and your GP - they have a duty of care (which seems to be rather lacking)!
 
Hi, I'm type 3C. I was mis diagnosed with type 2 in 2000 after 5 years of nerve damage in my feet. The bowel problems caused by pancreatitis were diagnosed as IBS. It took them 19 years to realize I was type 3c diabetic in all. I had a lot of unnecessary suffering and ended up with permanent nerve damage in my feet. Demonbat, don't give up my friend, it is really important to get your blood sugars under control.
I now take 2 lots of insulin and take Nutrizym(similar to Creon) to help with my digestion. You can eat sweet food, but need to balance it with fast acting insulin. As others have said, the amount of insulin you take is very individual, takes a bit of experimentation. You need to carb count and adjust your gms of carbs per insulin unit ratio depending on whether you go too low or not low enough. It's initially a pain in the bum, but you do get used to it and you'll benefit long term.
 
I am type 3c but the NHS and Diabetes UK will not call it that. they would rather call it diabetes secondary to pancreatitis. Mine was due to gall stones blocking the pancreatic duct but there are other ways of it developing. Your GP can give you access to a dietician or training course. Just ask them direct. You could try duel fast and slow acting insulin which is taken in the morning and 20 mins before tea. You may find this much easier to control. I have joined Take That Step for guidance with weight and livestyle but I am not sure if this is available in all areas. Please do not feel alone. I hope this helps you.
 
Hi DemonBat
I’ve been T2 since 2006 but recently became T3c following pancreatic surgery and pancreatitis and started Humulin insulin injections in December. I inject 18 units once a day at nighttime - I started on 6 units and gradually titrated it by 2 units until I found a balance that seems to work. I’m also struggling to get on top of my diabetes and I’m pescatarian- don’t eat meat- so I was reluctant to take Creon made with pig pancreas. I also find it hard to eat enough protein. I’m trying to eat low carb and you might find it easier to follow a simple rule of not eating anything white - bread potatoes pasta etc
The best way to stop the sugar cravings, I’m sorry to say, is to STOP buying sweets etc.
I’m wondering which health authority you come under. I’ve had some good advice through a diabetic nurse and you should be able to access similar resources
Hope you can get on top of this.
 

Btw I assume you know that you need to change your driving licence if you are on insulin
 
Ozempic is not a good idea - if you read the leaflet that comes with it, it says one of the side effects is to aggravate retinopathy. I was given a shot by my pharmacist as they owed me victoza which is currently unavailable. I’ve had laser treatment in both eyes a while ago but have been stable for a few years now. Like you - can’t go blind as my job depends on my sight.
Ozempic is going back when I collect my repeat.
 
Hello my friend.....living alone means being inventive...do you have a freezer if so set aside a days and cook it favorite foods and then freeze some that way you have to to food....cut back on the carbs...there are a lot of stuff I can eat which is lower carb....don't give up. It gets easier ....Oh....and for goodness sake cut out the energy drinks
..that stuff will rot your liver
 
 
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