Uncontrolled type 2 since 2002

[leadingjo]

Hello everyone,
My name is Jo and I am type 2 on Metformin, actos,Lantus and Novarapid I still run at 16+ dispite being on 94 units of nova rapid 3 x a day and 180 units Lantus. No one knows what to do with me just keep increasing insulin. I suffer with the complications of poor control, the worst at the moment is painful neuropaphy in my right hand, which keeps me awake 24/7. Lack of sleep makes me drained.
I live in the south of England with my daughter and our Zoo.
Jo

 

[hanadr]

Hi Jo, My daughteris a Jo too


>>Hello everyone,
My name is Jo and I am type 2 on Metformin, actos,Lantus and Novarapid I still run at 16+ dispite being on 94 units of nova rapid 3 x a day and 180 units Lantus. No one knows what to do with me just keep increasing insulin. I suffer with the complications of poor control, the worst at the moment is painful neuropaphy in my right hand, which keeps me awake 24/7. Lack of sleep makes me drained.
I live in the south of England with my daughter and our Zoo.<<

where in the South are you, I'm in Reading.
Have you tried low carb?
It might work for you and sort your control problems and reduce your need for medicines. . In any case you've nothing to lose by trying.
If you think you want to try it, start by cutting out sugar and cutting down onbread, potatoes, pasta, rice and any baked goods.
You'll need to do some checking of what it does to your Blood Sugar, because you could hypo. It's not likely if you are getting such high numbers.
Have they not even thought of Byetta?

 

[leadingjo]

I am Nr Aylesbury Bucks, I have done so much to try to get control, I have lost 6st reduced carbs. I was diagnoised not long after I had pancreatitis. I have chronic reflux and don't keep to much down including meds! I don't tend to eat before 1pm as in the mornings the sickness is bad. Have tried a yogurt. I try not to worry to much about the diabetes now as I find it just depresses me. I only test now when I feel unwell.

 

[ChocFish]

Hello Jo and welcome to the forum

I am sorry that you are having such a rough time of it, I wonder if you should maybe ask to see a new doctor/nurse and get a second opinion, it sounds as if your current medical team dont know how to best advise you and are just not bothering to help you get this diabetes sorted out.

Have you ever read the books by Dr Bernstein The Diabetes Solution and Dr Charles Clarke The Diabetes Revolution? If not then please do get hold of them, I think that you will be encouraged and inspired and find some answers and good advice there.

You sound as if you have given up, just like your medics, and I am not surprised that you are depressed and worried, you need a fresh start to tackle your diabetes, somehow, one way or another you need to get your blood sugars down to single figures and stabilise them or else your complications will worsen instead of getting better.

You say that you have lost weight with a low carb diet, and congratulations for doing so well!!! But what were your blood sugar readings like then? What are you eating now, whats a typical days food intake for you?

Right now you feel just so rotten from lack of sleep and pain and worry, no wonder you are depressed, awwwww I feel so sorry for you and wish that I could help you somehow, but please dont give up, there must be a solution, please start reading those books, please ask to be referred to a new medical team?

I am thinking of you and wish you all the best

Karen x

 

[Trinkwasser]

I am sorry that you are having such a rough time of it, I wonder if you should maybe ask to see a new doctor/nurse and get a second opinion, it sounds as if your current medical team dont know how to best advise you and are just not bothering to help you get this diabetes sorted out.

Definitely!

The pancreatitis is almost certainly a factor. Also it's possible you have something else going on like hypothyroid which will need a full workup to discover

 

[leadingjo]

My Hba1c was 12.8 now at 11.6, I did spend a complete week in hospital to try to get some control....or as they put it "to remove outside factors! for nurses to do my insulin and for them to monitor my food intake!" also for them to check I'm injecting correctly and basically to treat me like a 2 year old!. The outcome was the same as it was at home!
I keep cancelling my diabetes appointment because I really can't stand the reminders of what is going to happern to me. I try to pretend I am ok and I'm good at the false smiles, the endo or nurse don't know what to do with me. They were going to put me on U500 but then they didn't, they want to get me back into hospital in the promise that they will do somthing this time. As a single mum I don't want to go in, I live very near to my GP surgery so I feel that anything can be done can be done there.
I also have a condition called hidradenitis suppurativa and I am covered in absesses which is not curable and these absesses are infection and that increase my sugars to, these are very painful and affect my armpits and groin.
I am on so much medication I rattle!
I feel rather doomed nd overwelmed.
oh joy
what a life

 

[sugarless sue]

Hi Jo,you may have already come across this site but there are quite a few here with personal experience of HS.

http://experience.patient.co.uk/discuss ... php?d=1142

 

[ChocFish]

Jo, here are a couple of other links that you may find useful

Self-Help Group:
HSS Group, 207 Fernhill Road, Bootle, Merseyside L20 0AG. Tel: 07990 776168
Website: http://uk.groups.yahoo.com/group/hs-uk
http://groups.yahoo.com/group/Scottish_HS_Support
http://groups.yahoo.com/group/HealingHS ... ts/summary


Please do try and get a second and even a third opinion, you need a proper review of your ailments and medication, whatever you have been taking so far has not helped you very much has it?
I am not surprised that you feel like giving up and not want to keep your appointments, but please do try to make a fresh start before things become even worse, you owe it to yourself and to your children. That blood sugar has to come down and you need to strengthen that immune system of yours, it doesnt just affect you physically but mentally/emotionally too.

I hope that you will get the help that you so badly need.

Love from

Karen x

 

[leadingjo]

Thank for the HS links I am a member of a few of them, I am always looking for break throughs. Thanks for taking the time to find these for me.
Jo

 

[Katharine]

Jo,

I would love to hear more about your Zoo.

The sorts of things I can think that may help are:

Surgery for the armpits/groins. This is very scarring and not for the fainthearted. The ongoing infection will be making you more insulin resistant. The surgeon may not want to do it because you would have a very high risk of post op infection. (one of these awful vicious circles).

Long term antibiotics for the infection. Eg lymecycline / alcohol gel applied locally.

Byetta injections if you are overweight and Januvia pills if you are not. These work in a new way in the gut to suppress glucagon and will be an extra help.

A low carbohydrate diet. You may need to go pretty low. Dr Bernstein's book Diabetes Solution will give you chapter and verse on this. Despite your very high blood sugars you would need to cut back insulin in a planned way as the carbs reduce.

Resistance training/ interval training. This will help improve your insulin sensitivity so you need less of it.

You may not be absorbing all the insulin if your sites are damaged. Cutting down on the dose per shot (but not necessarily the total amount) may help.

I am sorry you are having such a rotten time.

 

[LucySW]

Hello everyone,
My name is Jo and I am type 2 on Metformin, actos,Lantus and Novarapid I still run at 16+ dispite being on 94 units of nova rapid 3 x a day and 180 units Lantus. No one knows what to do with me just keep increasing insulin. I suffer with the complications of poor control, the worst at the moment is painful neuropaphy in my right hand, which keeps me awake 24/7. Lack of sleep makes me drained.
I live in the south of England with my daughter and our Zoo.
Jo

Dear Jo, This situation sounds awful and we all hear your frustration and sense of helplessness.

Reading your story, I wonder if you've considered going, rather than towards higher insulin doses, towards cutting your insulin. Of course you can't do that without changing your diet, but it might be very effective. Jason Fung, the Canadian kidney and Type 2 specialist, argues very strongly that as Type 2 is a disease of insulin resistance - in other words, of the body not processing insulin properly, so that ever more is needed, to less and less effect - the treatment for T 2 has to be reducing insulin. This he advocates thro low carb, combined with intermittent fasting, to reset the body's insulin sensitivity.

Have you tried low carbing? You just cut out, for ever, bread, pasta, rice, potatoes, and most fruit. You keep berries and start eating lots more green veg and more protein and fatty foods (delicious). Diet Doctor is a good site for what to eat.

Jason Fung has lots and lots of detailed, practical help on his blog site here

https://intensivedietarymanagement.com/blog/

and he's an inspirational speaker. Look at his Youtube videos ....

Consider it.

And of course, the person who single-handedly has saved more diabetics from complications than anyone is the great Dr Richard Bernstein. I saved myself (touch wood) with his regime.

His site is here,

http://www.diabetes-book.com/

and his book is on Amazon and in Kindle form.

And hugs and very good luck. Diabetes is such a horrible, life sucking disease.

 

[azure]

@LucySW This is a very old thread so I'm not sure if the OP is still checking.

I'm going to move Ron's post to its own thread

 

[LucySW]

Ah. Thanks, didn't check. LSW

 

[rok]

Hello everyone,
My name is Jo and I am type 2 on Metformin, actos,Lantus and Novarapid I still run at 16+ dispite being on 94 units of nova rapid 3 x a day and 180 units Lantus. No one knows what to do with me just keep increasing insulin. I suffer with the complications of poor control, the worst at the moment is painful neuropaphy in my right hand, which keeps me awake 24/7. Lack of sleep makes me drained.
I live in the south of England with my daughter and our Zoo.
Jo

Hi Jo, this is Rok. Have you tried eating more vegetables such as broccoli, lettuce, spinach, pears, anything that is green, tomatoes? Don´t eat potatoes, nor watermelon, nor sweet potatoe, for those will bring your sugar up. And try to do some walking, which will help you move your muscles and prevent more diseases. Ask your doctor if you can change from Lantus to Tresiba, which is one shot per day, but with as many units as you need. In order to avoid using Lantus. Because Tresiba and Novorapid, has a very good effect and your sugar will go down sooner. But you have to keep your diet very strict. Tell me later on, if your doctor gave you the change to Tresiba instead of Lantus. Bless you!