Hi all, I have a major update, and a massive relief for me, as now I have been diagnosed, and I am feeling better after just starting the treatment and just knowing.
I've been talking to my GP about going to Dignitas and ending it, but then a few days later, I couldn't believe I had said this to him. And now I have proper treatment, but it's a life-changing one, which I'm lucky for catching it before it was too late. So an answer for my many symptoms, low BM, very high lymphocytes, excruciating pain in my back gut and chest, immune system crashing, which kept giving my shingles, anxiety and panic attacks, hardly being able to eat at all at times, and only managing some basic foods after starting PPI, and losing around half of my body weight, low blood pressure, tinnitus hearing problems and on and off vision problems, falling over and hurting myself all the time, falling unconscious, steatorrhea and being sick on waking, confusion and anger, not being able to leave my home for weeks on end, losing teeth, ad now needing £10k in work and so much more. But first, I'll explain what happened and what freaked me out yesterday.
I went to my GP for another morning blood test, as the doctor didn't believe my test results from 2 weeks before, and the ones 2–3 weeks before that. The tests went well. So I went home and later went to bed, only to wake up at 11:30 PM with 10 missed calls that I did not recognise and 10 voicemail messages, so half asleep I started listening to them only to find out they were from two doctors and other NHS staff calling me, and they were demanding that I pick up the next call from them as my life could be in danger, this set my anxiety off thought the roof!! Then at midnight, a doctor rang me and said I need to get to the hospital immediately, and as I was talking to him, I could hear the police shouting they are about to break down the door, so I answered the door only to find the police with an ambulance & paramedics, so I had no choice but to go with them to the hospital, and they hammered it all the way there, the driver said he was doing 110MPH at times! Only then was I told why, that my 9 am blood test had shown my Cortisol levels was at just 18 nmol/L, and anything under 150 nmol/L is concerning, and under 50 nmol/L is life-threatening, as I could go into a coma or worse die.
So I had loads of tests and brain scans, seen loads of doctors, then the top Endocrinology doctor in the County travelled a long way just to see me at this hospital, and after injecting me twice and both times waiting 30/60 minutes, I was diagnosed with Addison's disease! Many other things were found to be caused by Addison's disease, too, like swelling in my brain, and my own antibodies were attacking all my organs. They had to give me some big injections, which I need every week now, and they put me on Hydrocortisone 4 times a day. Also, I'm now under this Endocrinology doctor, which is a pain as I will need to travel to his specialist clinic, which is 6+ hours there and back every other week, and I need daily checkups. So I was having an Addisonian crisis, they said.
I'm off to sleep, having been up with them sticking pins in me for 22 hours.
