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Was type 2..now type 1

Chilleydog

Newbie
Messages
1
Location
Uk
Type of diabetes
Type 1
Treatment type
Insulin
I was diagnosed 18 months a go as type 2 diabetes. Now I'm type 1 and on insulin. Has anyone else had this happen to them? I'm 50 years old and 14 stone.

At first I was type 2 responding well with tablets but then I was told my antibodies were attacking my pancreas to kill it off. They said it is rare to happen and I was a special case for them. I had to monitor, as we do, my blood levels for signs of increase, to which they did and lost weight etc. Now on insulin and doing great.
 
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Have you been told that you were misdiagnosed as type 2 initially and had tests (cpeptide and a gad test) to look into your diabetic status? Or, have you just (I don't really mean "just" because going on to insulin is a big step no matter the type of diabetes so I don't intend to undermine that) been told that you now need insulin to treat your diabetes?

Sorry, it's not clear from the information provided and it's important, I think, to understand that being on insulin doesn't make you type one - being on insulin is how you treat your diabetes and doesn't determine they type of diabetes you have.

What determines the type of diabetes you have is what has caused it. In type 1 it is an autoimmune disorder (and a GAD test will show if you have the antibodies associated with this) in type 2 it is everything else (diet, weight, activity, stress, shift work, hormones etc etc).
 
Hi. I agree with @catapillar . If you have had the GAD & c-peptide then that will help the diagnosis. If you haven't and have excess weight then you may still be a T2 but on insulin. I was mis-diagnosed (in my opinion) but had my own tests done which showed my c-peptide (i.e. insulin level) to be very low and I'm also slim which are both indicators of Late onset T1 (LADA). Having a negative GAD doesn't eliminate the possibility of T1 as there can be various causes and it's not that reliable if the test is done a long time after diagnosis.
 
Welcome @Chilleydog :) Yes, I agree with the others... being on insulin doesn't make you a certain type of diabetic (bearing in mind a few types use insulin). If you've had a positive GAD test result which shows you have antibodies then you'd be type 1.

For me, I'm type 2 with insulin deficiency. What that means is that my GAD test result was negative and my c-peptide test result showed I barely produce my own insulin. So even though I'm still type 2, I have to be on insulin for life to treat my diabetes. Anyone who tells me I must've turned into type 1 is corrected.


Tagging @daisy1 to give you the forum info introduction.
 
Thanks for this as its useful for me to know. I am newly diagnosis and put on metaformin for 1-day then insulin following as told metaformin wasn't suitable The endocrinologist consultant said he doesn't want to give me a type yet as he wants to see how ultrasound scan showed so due to see him in end of July. Your replies will help me ask some questions of him as I am still learning.
 
Not sure of the relevance of a USS to determine diabetic status/type. Unless you have a history of underlying pancreatic problems maybe?
 
@Chilleydog

Hello and welcome to the forum :) To add to the advice some members have given you, here is the information, mentioned above, we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

LOW CARB PROGRAM:
http://www.diabetes.co.uk/low carb program


Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
I asked my doctor about it when I was diagnosed T2. I know it sounds silly but I asked her if someone had T2 for a long time was there a chance it would develop into T1 she said no they are totally different. A T2 may have to eventually go on to insulin but that did not make them T1. If their diagnosis was changed from T2 to T1 then it had been diagnosed wrongly in the first place.
With my son it was the opposite he was diagnosed late onset T1 and it was treated as such for few years but he had quite a lot of problems with the insulin. When he moved house to a different area he had a new doctor and consultant and both said by his record they did not think he was T1 maybe Lada but more likely T2. He has been off insulin for over a year now and he takes metformin and another tablet that the doctor said is a new one and he is doing better now than he ever was. He looks and feels well has changed his diet to less carbs and his BG levels are good and within the range his consultant wants so just shows diagnosis mistakes can be made
 
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