yetta2mymom
Well-Known Member
- Messages
- 337
- Location
- Winchester Massachusetts
- Type of diabetes
- Don't have diabetes
- Treatment type
- Diet only
- Dislikes
- ?
I don't know what this means. "Pretty close to a type 1 diabetic on my diet"? It doesn't really make any sense. For your information, there is no type 1 diet. The advice to type 1s is, essentially, eat whatever you want, inject insulin to cover it. Type 1 diets and the amount of carbs eaten vary by individual.
I hope you aren't trying to say that you have induced a state "close to a type 1 diabetic" on your body via your diet. Because that would be a very silly thing to say and expose a complete failure to understand both what type 1 diabetes is and how your body works.
Hi
I have to urinate. I have had one instance where I had an overwheling urge for about 10 seconds and then my normal maybe I can just go back to sleep. I assume when I had my autoimmune problem it effected the release of adrenaline when I dream. This symptom is not mentioned by the 3 other people I have found with my general problem. If you care all of us have a major reactive hypoglycemic reaction many hours (enough so you think why?) after eating too much sugar/starch/alchol. This was what sent me to the Mass General (no help) and finally to a doctor in 1963 who recognized the possibility of low blood sugar. This is easily controlled by not eating a lot of sugar/starch/alcohol. Note I have been trying to find out what is wrong since this started in 1957. I had to figure it out myself.
Hi
I have to urinate. I have had one instance where I had an overwheling urge for about 10 seconds and then my normal maybe I can just go back to sleep. I assume when I had my autoimmune problem it effected the release of adrenaline when I dream. This symptom is not mentioned by the 3 other people I have found with my general problem. If you care all of us have a major reactive hypoglycemic reaction many hours (enough so you think why?) after eating too much sugar/starch/alchol. This was what sent me to the Mass General (no help) and finally to a doctor in 1963 who recognized the possibility of low blood sugar. This is easily controlled by not eating a lot of sugar/starch/alcohol. Note I have been trying to find out what is wrong since this started in 1957. I had to figure it out myself.
So as others have said what you are describing is RH. It doesn't matter about the genes, that the condition you are dealing with.
I'm really sorry, it might be a language barrier thing or I might just need to read it more carefully, but I don't really understand what you are saying there at all. It certainly doesn't help explain what you meant when you said you were "pretty close to type 1 on diet". I remain of the view that you probably don't understand what type 1 is. There is no obligation on you to understand, especially when you are focused on trying to understand your own condition. But, you might what to avoid using it as a misplaced short hand because that is a bit grating and it does, in my view, undermine what could be perfectly valid other thoughts you are expressing.
I'm completely lost and am probably unable to offer you anything helpful in your quest to figure it out.
I'm really sorry, it might be a language barrier thing or I might just need to read it more carefully, but I don't really understand what you are saying there at all. It certainly doesn't help explain what you meant when you said you were "pretty close to type 1 on diet". I remain of the view that you probably don't understand what type 1 is. There is no obligation on you to understand, especially when you are focused on trying to understand your own condition. But, you might what to avoid using it as a misplaced short hand because that is a bit grating and it does, in my view, undermine what could be perfectly valid other thoughts you are expressing.
I'm completely lost and am probably unable to offer you anything helpful in your quest to figure it out.
I'm really sorry, it might be a language barrier thing or I might just need to read it more carefully, but I don't really understand what you are saying there at all. It certainly doesn't help explain what you meant when you said you were "pretty close to type 1 on diet". I remain of the view that you probably don't understand what type 1 is. There is no obligation on you to understand, especially when you are focused on trying to understand your own condition. But, you might what to avoid using it as a misplaced short hand because that is a bit grating and it does, in my view, undermine what could be perfectly valid other thoughts you are expressing.
I'm completely lost and am probably unable to offer you anything helpful in your quest to figure it out.
I do not create insulin to store my sugar. Is that not what happens in type 1 diabetes? Please explain what else is not understood.
I do not create insulin to store my sugar. Is that not what happens in type 1 diabetes? Please explain what else is not understood.
Yes, type 1 diabetics do not make insulin. That's why we inject it.
As previously explained, you have to have insulin to survive. You can't say you do not make insulin and you do not inject it because without any insulin you would be dead. I think probably people don't understand your point here because it is just plain wrong - it doesn't make sense because it is incorrect.
If you really think you aren't making insulin you can have a cpeptide test - when the pancreas makes insulin cpeptide is an amino acid that is made as a byproduct of insulin production and checking your cpeptide will tell you whether your insulin production levels are at normal ranges, or not.
I believe you're saying that your insulin response is messed up - the wrong amount at the wrong times?
And again, you need medical intervention.
Your metabolism is not working properly and only diagnostic tests will discover what they are!
Theories are good if they can be proven.
What you have posted is just that, a theory about your genes.
It is your endocrine system that is your problem not your genes!
Hi
I have late hypoglycemia also but only if I overindulge. I have been talking to probably the world expert on adrenaline problems.
I only get hypoglycaemia if I eat the triggers, carbs, sugars, starchy veg, dairy!
I have so many food allergies that react my excessive insulin production.
The adrenal gland is only a small part of the hormonal response to food.
There is a great deal more to how our reaction works, we have to stop insulin, cortisol, adrenalin, and of course keep enough glucose to feed our brain.
It is very difficult to control and goes against all medical dietary advice.
Even my endocrinologist, who is dealing with RH patients and hormonal imbalance conditions, has accepted, that only a very low carb diet will help treat the condition.
Until I found someone else and talked it through did we agree on how we were going to advise those who come looking for advice on these types of conditions.
On these forums, we have discovered that despite the many variations of these metabolic and hormonal conditions, low carb works well for us.
Hi
I have late hypoglycemia. Everything is boringly normal. Only 3 other people I know about have my syptoms. With a severe Atkins diet everything is normal. .
My fasting blood glucose levels are normal, my health is very good, I only suffer from hypoglycaemia. And I have not had a hypo for over two years, because I have really great control being in ketosis.
A severe Atkins diet, May not have enough vitamins and a more Mediterranean diet, very low carb, with plenty of salad vegetables may help you!
There are more of us out there, the diagnostic tools are now there, it is being recognised, were a decade or two ago, it was seldom even thought about as a condition. I know that my first endocrinologist and many GPs, didn't have a clue about hypoglycaemia, without thinking it was T1! (Which is ridiculous, because of the amount of insulin we produce!)
This happened in 1957 when I had the standard symptoms of getting type 1 diabetes without the thirst.
I still think I simulate a type 1 diabetic on a severe Atkins diet.
Do you have a glucometer and are you keeping records of your blood glucose levels, especially when you have these episodes of extreme fatigue?
Hi
I have emailed my expert. I said I do not know if I do not produce insulin or if it is neutralized. I do not want to eat sugar/starch (that would start my symptoms). What does he suggest. I said this because if you look at my glucose tolerance test it rises for over 2 hours and I have problems losing weight on my diet (guess I do not waste energy storing sugar). In either of the above possibilities I still think I simulate a type 1 diabetic on a severe Atkins diet.
NO - your diet does NOT simulate what the blood sugar resukts would be for a Type 1 on severe Atkins.
If I ate Atkins, I would still have to inject insulin even if the level of carbs was practically zero. If I followed Atkins without taking my insulin I would end up dead, as did all Type 1s before insulin was discovered.
You mention having symptoms of Type 1 decades ago 'except the thirst'. That makes me think you do not understand what Type 1 is. The symptoms of Type 1 are excessive thirst, excessive urination, weight loss, exhaustion and - untreated - DKA, coma and death.
I think you are overcomplicating the problem you have, which seems to be a slow and inappropriate nsulin response. If you're not getting the help and answers you need from your current Endo, then see another one. If you believe you also have other medical issues, then I strongly advise you see a more general specialist just to rule out other medical conditions.
Type 1 is an auto immune disease. It was terminal before the discovery and manufacture of insulin. It's more that Type 1s can't use the sugar in their blood because they have no insulin. The storage of sugar isn't the most important thing, in my opinion (unless I have misunderstood what you meant by 'storage').
The article I linked you to above really does suggest that the hunter gene/thrifty gene/caveman gene are pretty much the same thing. I think 'hunter gene' is a less common name and that's why you haven't been able to find much about it.
I believe you're saying that your insulin response is messed up - the wrong amount at the wrong times?
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