@Molly56 I am so weary of reading these gloomy, repetitive posts which go round in circles. New posters join the debate, giving the same support and advice as others have in the past yet there is no change in this destructive cycle. Your OH is changing, not always for the better, but he is changing. You are not.
I care for an adult relative who because of very complex needs, comes under two consultants, one in London (200 mile round trip) and another 60 miles from home. In the summer my relative answered one of the consultant's questions with a blatant lie and I could sit there no longer and listen to a qualified professional being deliberately misled, who was trying to understand why the complex surgery recently undertaken wasn't working, and why my relative still had problems. It was a waste of the consultant's valuable time so I interjected and said that what my relative had said wasn't actually true. . The consultant asked me to expand on what I had said and was then able to address the situation from an accurate standpoint and lectured her patient on the risks she was facing if she didn't change her ways immediately. The bottom line was that she faced kidney dialysis, would have no quality of life and possibly shortened life. My relative was furious with me, was in tears in the consultant's office, refused to speak to me for the rest of the day, yet when we returned home, she immediately changed her routine to the one suggested by the consultant and has maintained it ever since. It was tough on me but was the wake up call the patient needed.
When we saw the consultant again last Thursday, x-rays showed a huge improvement. My relative was praised by the consultant, given a more encouraging prognosis and the quarterly appointments have now been reduced to annual ones, with monitoring done locally instead of at specialist hospitals outside the county.
All because I had the
moral courage to refuse to mislead a medical professional who was being given false information by a patient which prevented the appropriate treatment for a very serious, life threatening condition.
Would it not be more effective for you to put your concerns in writing to your OH's DN and GP instead of here? His GP and DN may not be able to reply to you, but they would have a note on your OH's records and would be alerted to the actual situation, and could then address it from an accurate standpoint, instead a false one.
It will take considerably more courage than posting the same recycled posts here, but could be very much more productive and would absolve you from being complicit in misleading medical professionals.