Robinredbreast
Oracle
- Messages
- 18,446
- Location
- Planet Earth
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Bullies, Liars, Trolls and dishonest cruel people
Wrong because I might not take her to Disneyland?I have a granddaughter and she was diagnosed with type 1 at 2 1/2 years, she was very ill. The symptoms come on quiet quickly, it is not a long duration. I can understand parents, I am one myself, so worrying over a young child when they become ill is perfectly normal, but thinking or making up possible medical conditions is so worrying, harmful and not normal. I had my daughter at 42 1/2 with type 1 and she is 17 now and starting an apprentice job today, she is healthy and happy. What you are doing is wrong and could be a cause of authorities getting involved.
Help is needed asap !
Wrong because I might not take her to Disneyland?
She is a bright and happy toddler who is extremely sociable and meeting and surpassing all her milestones.
So treat her like a normal toddler.She is a bright and happy toddler who is extremely sociable and meeting and surpassing all her milestones.
Really, where have you found that? I can't find any studies or evidence of this anywhere, so I'd hope this isn't hearsay that you are basing presumptions off. I'd agree that younger kids tend not to have a huge amount of hypo awareness, but equally, in most it does arrive around puberty.Children diagnosed before the age of 4 often suffer low level brain damage because of hypos and how they affect the developing brain. Once older the brain is less susceptible apparantly. They are more likely to have no hypo awareness.
Once there have been abnormal blood sugars - and 8s and 9s ARE abnormal - it's usually less than two years to diagnosis. According to trial net anyway. When they pick up antibody positive people once they get abnormal OGTT then they usually develop frank diabetes in less than two years so I think it's unlikely to be another nine years, although of course I can't know for sure.
I would be very hesitant to take a t1 child abroad, particularly a very little one. Stuff that could go wrong is too long to list.
Serious and worrying. This child hasn’t got diabetes. This obsession with what may or may not happen has me concerned for the child’s mental health. Or is that just me?
Pretty sure there was not a Mega Slide at Brighton the last time I was there in 1976, just two piers and a Volks train and whelk stalls.Yeah, but that Megaslude takes a lot of climbing (hypo risk)
In all likelihood we would stay home a LOT until she was older and I would probably home school... Everything is a risk assessment when t1 is involved.
T1 unfortunately DOES stop you doing everything normal children do.
This is factually incorrect.
Please stop spreading such misinformation on the forum.
The son of a very good friend of mine was diagnosed type 1 as an infant.
His parents were understandably concerned, but made a determined effort to avoid treating him as 'an invalid'
(remember, the word stems from being in-valid).
His school career was that of a healthy, active, sporting little boy, encouraged to have the same level of activity and independence as his two non-diabetic brothers.
He played football and rugby for the school, and cricket for the local team.
He learned to coach, and had holiday and weekend jobs.
He went on abroad with his school friends (no parents in sight) to celebrate the end of his school exams.
He got better grades than his two brothers (so his intellectual growth wasn't stunted)
He is 6 foot 2 and the tallest in the family (so his growth certainly wasn't stunted)
He spent 3 months working in an American summer camp for kids with disabilities.
He played for the university rugby and football teams
He has recently finished teacher training and is now a PE teacher, including football rugby after school coaching.
Throughout it all, he has taken his T1 seriously without letting it rule him.
And the child does not have T1.....This is very, very extreme and worrying thoughts here.
Home school??? For a T1??? This is extreme thinking...
You would be placing your child under a restrictive lifestyle aand schooling because of T1????
Seriously please speak to a professional about your fears and rationale around T1.
What a horrid, disgusting thing to say to you! The rejection you must have felt from this is immense. No wonder you have problems now Please get help. You need to stop the vicious circle right now. You are not your parents and you mustn't become like them. You were not in-valid and neither is your daughter. You are both very valid and both of you have a right to a happy normal life. T1 won't stop that, but these psychological issues will. Don't let them. Don't let your parents' attitude spoil your life with your children. Life is precious. grab it and teach your children how to do the same.I just have no idea how.
Maybe mine has been more brittle than other people's... certainly hormones affect my control hugely.
My parents would not have had me if they'd known I would be t1. They have told me.
why are you not also concerned that your son will develop it? he is older, isnt he? I assume you have also been testing him and checking that his bloods are normal?He agrees that given the family history and given that we've seen 8s and 9s it is quite likely at some point that she will develop t1.
You do realise that other countries also have good health care systems and medical people either on site or withing a few mins reach?Once there have been abnormal blood sugars - and 8s and 9s ARE abnormal - it's usually less than two years to diagnosis. According to trial net anyway. When they pick up antibody positive people once they get abnormal OGTT then they usually develop frank diabetes in less than two years so I think it's unlikely to be another nine years, although of course I can't know for sure.
I would be very hesitant to take a t1 child abroad, particularly a very little one. Stuff that could go wrong is too long to list.
what makes you think there wont be other children there, who may have other issues or also be type 1?Or it highlights that you ARENT like all the other kids who can eat what they want in this magical place and not worry about numbers.
that is two year old life though. Them wanting to do stuff and eat stuff and play with stuff and having to be taught not to do them. And then throwing a tantrum, and then learning that life has limits and consequences. Its normal and every kid has to go through this. The limits they have to learn may very, but they all have to learn limits.No but she wouldn't be able to have certain things perhaps and she might feel ill if she did and then had high sugars afterwards.
It's hard enough to manage even in a routine but it's virtually impossible when out of one.
That's my experience anyway.
why are you not also concerned that your son will develop it? he is older, isnt he? I assume you have also been testing him and checking that his bloods are normal?
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