- Messages
- 116
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hello,
There's so much going on here, I didn't even know where to post! I have had a really rough couple of weeks and have decided it's time to share with my Diabetes family (I also figure you guys might have a better idea of what's going on than my DSN team, who seem stumped).
So. I was diagnosed t1 31/12/14 (and tested positive for antibodies so definitely t1). I've been honeymooning ever since, sometimes needing to reduce my insulin drastically before needing to increase again. I am also 17w6 (4months) pregnant.
I was told that the pregnancy will likely pull me out of my honeymoon period. No issues there. I started experiencing more and more hypo's and at lower levels. I started reducing my insulin in line with this. I'm now at the point that I have been free of ALL insulin for 2 and a half weeks (with the exception of a half unit fast acting last night and this morning, which I'll come onto). So, having only my own natural insulin onboard, I was still experiencing hypo's. I don't even know how this is physically possible.. And I'm not talking about a 3.4 or 3.0, but as low as 2.7, and feeling the effects of it? Both my consultant and DSN were on holiday, so I spoke to a diff nurse who advised me to eat smaller meals, more often, which were low GI. This I did. I was starving (and grumpy) and lasted about 3 days. Still experienced a hypo or 2. Then one night thought what's the point, and had a piece of chocolate cake - went to bed a bit high and woke up hypo. So there doesn't seem to be any rhyme nor reason to it. Met with my team last week, when they returned, and my DSN has said that a level of 2.7 is normal (I don't believe this for a second. Maybe 3.3 or something, but is 2.8 not the cut-off for potentially falling unconscious? That can't be normal?!). She also said that they think I might have Reactive Hypoglycaemia (which I don't believe either. I had read a bit about RH on here about a year ago and it was my understanding that every time someone with RH had a lot of carbs, they would hypo [please don't quote me on this, this is just my understanding and could be completely wrong!], which hasn't always been the case for me at all. So they've asked me to increase my carb intake to 150-200g a day, keeping in mind that I'm pregnant and need the carbs for baby's development, to even out my carbs throughout the day, and to go low GI. The dietician suggested houmous spread on a pitta stuffed with grated carrot....mmmmmmmm.
So I have been doing my darnest. I am still experiencing spikes after breakfast and dinner, but this stabilises within a few hours. It's really stressing me out. I'm worried about what the high sugars are doing to my baby, but know that if I inject, I will hypo!! Last night, I cracked and had a twix, and spent the next few hours feeling like a terrible mum I did take a half unit of fast acting insulin to compensate, and tried a half unit this morning for breakfast.
I don't even know what I'm looking for here. My husband and I have tried to figure it all out. Couldn't be dodgy insulin, as haven't been taking any. It's not the meter (got a new one to check, and now on Libre - I am my Diabetes team's guinea pig). Potentially my dodgy, honeymooning pancreas overproducing? Still don't think it's RH. Just so frustrated that I can't get my levels to stabilise, bored with brown pasta, and craving a chocolate penguin!!!!
Sorry for the rant, and thanks for reading.
Hungry, moody Erin x
There's so much going on here, I didn't even know where to post! I have had a really rough couple of weeks and have decided it's time to share with my Diabetes family (I also figure you guys might have a better idea of what's going on than my DSN team, who seem stumped).
So. I was diagnosed t1 31/12/14 (and tested positive for antibodies so definitely t1). I've been honeymooning ever since, sometimes needing to reduce my insulin drastically before needing to increase again. I am also 17w6 (4months) pregnant.
I was told that the pregnancy will likely pull me out of my honeymoon period. No issues there. I started experiencing more and more hypo's and at lower levels. I started reducing my insulin in line with this. I'm now at the point that I have been free of ALL insulin for 2 and a half weeks (with the exception of a half unit fast acting last night and this morning, which I'll come onto). So, having only my own natural insulin onboard, I was still experiencing hypo's. I don't even know how this is physically possible.. And I'm not talking about a 3.4 or 3.0, but as low as 2.7, and feeling the effects of it? Both my consultant and DSN were on holiday, so I spoke to a diff nurse who advised me to eat smaller meals, more often, which were low GI. This I did. I was starving (and grumpy) and lasted about 3 days. Still experienced a hypo or 2. Then one night thought what's the point, and had a piece of chocolate cake - went to bed a bit high and woke up hypo. So there doesn't seem to be any rhyme nor reason to it. Met with my team last week, when they returned, and my DSN has said that a level of 2.7 is normal (I don't believe this for a second. Maybe 3.3 or something, but is 2.8 not the cut-off for potentially falling unconscious? That can't be normal?!). She also said that they think I might have Reactive Hypoglycaemia (which I don't believe either. I had read a bit about RH on here about a year ago and it was my understanding that every time someone with RH had a lot of carbs, they would hypo [please don't quote me on this, this is just my understanding and could be completely wrong!], which hasn't always been the case for me at all. So they've asked me to increase my carb intake to 150-200g a day, keeping in mind that I'm pregnant and need the carbs for baby's development, to even out my carbs throughout the day, and to go low GI. The dietician suggested houmous spread on a pitta stuffed with grated carrot....mmmmmmmm.
So I have been doing my darnest. I am still experiencing spikes after breakfast and dinner, but this stabilises within a few hours. It's really stressing me out. I'm worried about what the high sugars are doing to my baby, but know that if I inject, I will hypo!! Last night, I cracked and had a twix, and spent the next few hours feeling like a terrible mum I did take a half unit of fast acting insulin to compensate, and tried a half unit this morning for breakfast.
I don't even know what I'm looking for here. My husband and I have tried to figure it all out. Couldn't be dodgy insulin, as haven't been taking any. It's not the meter (got a new one to check, and now on Libre - I am my Diabetes team's guinea pig). Potentially my dodgy, honeymooning pancreas overproducing? Still don't think it's RH. Just so frustrated that I can't get my levels to stabilise, bored with brown pasta, and craving a chocolate penguin!!!!
Sorry for the rant, and thanks for reading.
Hungry, moody Erin x