- Messages
- 15,914
- Type of diabetes
- Reactive hypoglycemia
- Treatment type
- I do not have diabetes
The appointment went well, the discussion was excellent, the outcome over good (ish!)
Well, it's six months since my last appointment and I always look forward to discussing the ins and out of his latest research and how I fit into his findings.
The bad news, I've put a little weight on, yes, me! The one who was so sure, he was still losing it on my keto diet. Anyway he stated, that I must lose all that I've put on and more, we came to a sort of agreement, that I must eat less on all my small meals after going around the houses on my diet/lifestyle.
He asked if I was eating to much full fat, which surprised me a little. I didn't think so, was my reply.
I think I do need to cut down as I have noticed that my appetite has grown despite me not feeling hungry.
He did warn me about putting more weight on because of the visceral fat growth and that would build up to more insulin resistance and the circle would start again,. I don't want that.
He still agrees that my keto diet is best for me, just hovering around normal.
I told him no hypos, which he is really pleased with, he said that being in control is essential.
Then he got serious!
He asked why I had asked @Linagirl to get a referral to him, and explain my involvement with the forum and the reason why I'm continually trying to be helpful.
I told him honestly that I was convinced that there is not enough information about RH and the likelihood that there is more RH ers out there that just don't know why they are so ill and the frustration of diagnosis, and that he is a endocrinologist of some note, as to blood glucose disorders. I also told him it was he and his dietician that pointed me onto the forum. He was genuinely surprised that I had the resource to help people who have doctors and endocrinologists that don't recognise the condition, indeed, he gave me examples of senior and professors of endocrinology, who insist that RH is not a genuine condition.
He then suggested that because he has clinical trials in the pipeline, he would like volunteers, and would I post this, of course, I said!
He also would welcome any referrals from the forum and would be pleased for me to keep doing it!
We had a discussion on insulin and how it affects not only RH and other diabetic conditions and the use of my meds that more insulin is produced but the meds inhibit the glucagon levels and glycogen helping me not spike.
I told him about the syndrome I had found which mimicked RH, but without the hypos, to say he was interested, was a understatement. He asked me to email him on my findings! Go figure!
More discussion on insulin about how people get an insulin imbalance, before diabetes diagnosis. And his knowledge of how the curves of differential diagnosis and how graphs show different responses to glucose tests with different peaks and troughs for all differing types of blood glucose disorders.
There was a medical student from the local university and I think that our discussion went over her head.
She was genuinely surprised and interested in our relationship and how we discussed reactive hypoglycaemia.
She commented on how knowledgeable I was, and how I asked my personal questions, she said that she was going to study more about RH and other disorders.
Anyway, that was it! No tests, six months again, nowt else, except lose that weight.
Oh yeah, gone back up to nearly twelve stone!!
Well, it's six months since my last appointment and I always look forward to discussing the ins and out of his latest research and how I fit into his findings.
The bad news, I've put a little weight on, yes, me! The one who was so sure, he was still losing it on my keto diet. Anyway he stated, that I must lose all that I've put on and more, we came to a sort of agreement, that I must eat less on all my small meals after going around the houses on my diet/lifestyle.
He asked if I was eating to much full fat, which surprised me a little. I didn't think so, was my reply.
I think I do need to cut down as I have noticed that my appetite has grown despite me not feeling hungry.
He did warn me about putting more weight on because of the visceral fat growth and that would build up to more insulin resistance and the circle would start again,. I don't want that.
He still agrees that my keto diet is best for me, just hovering around normal.
I told him no hypos, which he is really pleased with, he said that being in control is essential.
Then he got serious!
He asked why I had asked @Linagirl to get a referral to him, and explain my involvement with the forum and the reason why I'm continually trying to be helpful.
I told him honestly that I was convinced that there is not enough information about RH and the likelihood that there is more RH ers out there that just don't know why they are so ill and the frustration of diagnosis, and that he is a endocrinologist of some note, as to blood glucose disorders. I also told him it was he and his dietician that pointed me onto the forum. He was genuinely surprised that I had the resource to help people who have doctors and endocrinologists that don't recognise the condition, indeed, he gave me examples of senior and professors of endocrinology, who insist that RH is not a genuine condition.
He then suggested that because he has clinical trials in the pipeline, he would like volunteers, and would I post this, of course, I said!
He also would welcome any referrals from the forum and would be pleased for me to keep doing it!
We had a discussion on insulin and how it affects not only RH and other diabetic conditions and the use of my meds that more insulin is produced but the meds inhibit the glucagon levels and glycogen helping me not spike.
I told him about the syndrome I had found which mimicked RH, but without the hypos, to say he was interested, was a understatement. He asked me to email him on my findings! Go figure!
More discussion on insulin about how people get an insulin imbalance, before diabetes diagnosis. And his knowledge of how the curves of differential diagnosis and how graphs show different responses to glucose tests with different peaks and troughs for all differing types of blood glucose disorders.
There was a medical student from the local university and I think that our discussion went over her head.
She was genuinely surprised and interested in our relationship and how we discussed reactive hypoglycaemia.
She commented on how knowledgeable I was, and how I asked my personal questions, she said that she was going to study more about RH and other disorders.
Anyway, that was it! No tests, six months again, nowt else, except lose that weight.
Oh yeah, gone back up to nearly twelve stone!!
