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Type 1'stars R Us

@Juicyj Whoop Whoop! Well done!
@kev-w Well done on achieving 34 years (swimming needed another 2 units before and another 2 afterwards. But I enjoyed it, lots of medley work)
@MeldCP that crumble looks gorgeous. Does it work without the sweetener in the courgette part?
@ therower I have become a PNB freak in later life after discovering the Yorkshire made Proper Nutty 100% peanuts. Cannot stand it on anything but on a teaspoon mmm divine!
 
helensaramay said:
As I may have mentioned once or twice, I am only an occasional Librer. Partially because of cost and partially because of accuracy (so the costs doesn't seem worth it).
My current Libre is coming to an end. I have started seeing some improvements with the Glimp app but I am still not convinced enough by the accuracy for the cost.
My strategy is to use the Libre trends to adjust my dosing.
The end of my last Libre coincided with a dead pump (unrelated) so I lost my changes because I was intending to upload it to Diasend. As a result, I lost a bit of interest as well as the changes.
This time, I have been tweaking my basal again and making paper notes so they won't be lost. I'll also do a Diasend upload to save the changes "online".
I have also been using the peaks to work out when to inject and have been interested to see I need to inject about 45 minutes before I inject. This seems a long time and is not always convenient
For example, I may inject 30 minutes before I *think* I am going to start making my lunch but then get dragged onto a long last minute conference call. Or I need to go to the shops to pick up something for tea and need to inject en route but the supermarket may not have what I want so I need to walk to the next supermarket (or change what I was going to eat which messes with what I have injected). Or I realise I am very hungry, have not had time to think about what I am going to have for lunch and have 5 minutes to grab a slice of toast before my next call.

How soon before eating do you inject and how do you cope with it?

I am considering asking about Fiasp at my next appointment (early 2019). Whilst my DN is great, the diabetes team seems to have their hands tied by the local CCG which means they are inflexible about changes unless they have budgeted for it so I am not overly optomistic. However, at my last appointment, the consultant commented on a few high spikes which were caused by me not being able to inject early enough (and testing more than he expected).
What are other people's experience with getting Fiasp prescribed and using it when they do?
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I changed to fiasp i find it works immediately as i inject just as im about to eat but if im having a fatty meal il split half b4 and half about an hour later used to use apidra but this is much better
 
helensaramay said:
What are other people's experience with getting Fiasp prescribed and using it when they do?
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Apparently my area (Airedale) do Fiasp by default for pumps these days, though getting a pump is the hard bit (well, for me, anyway). I reckon it's definitely worth a go - I think it's helping me, though I'm not sure if I can prove it. I almost never bolus early, and I think my spikes are lower.

https://bnf.nice.org.uk/medicinal-forms/insulin-aspart.html seems to imply it's the same cost to the NHS, which makes it a bit of a no-brainer. (Cost to nordisk of the two will be pretty much identical, it's only the patent protection which will differ - fiasp is basically novorapid + an amino acid + a B vitamin).
 
Juicyj said:
Happy Diaversary @kev-w :)

Just had the best news of my t1 life -HbA1c has come back at 42, my lowest ever, should be feeling triumphant but of course also been told it’s a bit on the low side :banghead:
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Congratulations to you
Well done
 
Mel dCP said:
They’re rather good at peeing in our bonfires, aren’t they? Well done, that’s an awesome HbA1c ❤️
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Thanks Mel - Couldn’t agree more it’s a rather flippant comment when they have no concept how well controlled I am, if I was getting regular ‘low’ lows then I might be concerned. The only hope I have now is that i’ve reversed my background retinopathy, fingers crossed.
 
therower said:
Hey @Juicyj . Well done.
You definitely have to be the recipient of a .....TOP BANANA award.
An award that proves you’ve achieved and have gone that extra bit to master the beast.
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That’s brilliant love it ‘top banana’ thanks rower :)
 
Frustrating few days. Hypo'ed twice yesterday and then hypo'ed again today. The problem is the one last night and then tonight were both in the 2s and I didn't even feel the onset of them. Only realised because I was checking my blood randomly.

Tonight's especially frustrating as I had adjusted my insulin with lunch and dinner specifically to try and avoid a hypo tonight. I usually take a unit of novorapid to 7 grams of carbs (it was to 5.5 grams until recently) but decided that wasn't doing the trick as I was still hypo'ing quite consistently around 4-5 and then again 9-10. But never have morning or even early afternoon hypo's.Moved my insulin from 7g of carbs to 8.5 for lunch and dinner, when I did my pre dinner check around 5pm I was at 4.5 and then I just hypo'ed 15 minutes ago at 2.9 when I measured.

Frustrating. And this is after my long lasting insulin has been gradually been getting reduced in recent months. I was 18, then I moved it to 16 then 14 and then 12 the last 3 or 4 days.

I'm going to call the doctor tomorrow and try get an appointment with him.
 
therower said:
Hi @CranberryIce . What a nuisance for you.
Have you considered trying something along the lines of a spoon of peanut butter when you have your 1.5 shot?
Just a small amount. It may just stop the drop you seem to have.
I’m a bit of a PNB freak, other high good fat, slow absorbing options are available :)

Apart from that i hope you have a good day.:)
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Not thought about that- will give it w go in the morning. I love PNB :)

Thank you <3
 
Juicyj said:
Just had the best news of my t1 life -HbA1c has come back at 42, my lowest ever, should be feeling triumphant but of course also been told it’s a bit on the low side
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Congrats, Juicyj! I've had that, "it's too low" grief a few times, but the solution to it is to take along a printout of your 90 day AGP graph from libre (or even better - buy a transmitter and wave the xdrip stats at them!), and say to them, look, doc, you're saying I'm too low based on that single blunt number, I'm showing you a detailed breakdown of actual levels over 90 days and you can see from that that the low a1c comes from being in range a lot, not hypoing a lot.

Some docs are still getting used to interpreting an AGP graph, not surprising really as they don't wander around wearing cgm, but all of mine have been quite happy to have a look, and say, ok, right, I see what you're saying.
 
@Scott-C . It’s still frustrating that we still have to prove ourselves. Having data as proof is becoming very beneficial to both parties.
Just wish that sometimes they would have a little more faith in us.
 
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