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Type 1'stars R Us

Mel dCP said:
I’ve just got up, it’s my one day off this week. Feels a bit odd after my 0530 starts! Got to walk the mile to our local hospital and back this afternoon, got the follow up consultation to the retinopathy screening that came back with maculopathy and non proliferative retinopathy. To say I’m bricking it would be a slight understatement. Will try not to fall over on the ice.

Hope you all have a nice not too cold/hot day x
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@Mel dCP hope your incredible control has helped with the retinopathy, keep us posted on how it goes, sending hugs.
 
Mel dCP said:
I’ve just got up, it’s my one day off this week. Feels a bit odd after my 0530 starts! Got to walk the mile to our local hospital and back this afternoon, got the follow up consultation to the retinopathy screening that came back with maculopathy and non proliferative retinopathy. To say I’m bricking it would be a slight understatement. Will try not to fall over on the ice.

Hope you all have a nice not too cold/hot day x
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Take care Mel x
 
Mel dCP said:
I’ve just got up, it’s my one day off this week. Feels a bit odd after my 0530 starts! Got to walk the mile to our local hospital and back this afternoon, got the follow up consultation to the retinopathy screening that came back with maculopathy and non proliferative retinopathy. To say I’m bricking it would be a slight understatement. Will try not to fall over on the ice.

Hope you all have a nice not too cold/hot day x
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Good luck Mel - I hope your appointment goes well, @himtoo is pretty clued on this if you need any advice :)
 
Mel dCP said:
I’ve just got up, it’s my one day off this week. Feels a bit odd after my 0530 starts! Got to walk the mile to our local hospital and back this afternoon, got the follow up consultation to the retinopathy screening that came back with maculopathy and non proliferative retinopathy. To say I’m bricking it would be a slight understatement. Will try not to fall over on the ice.

Hope you all have a nice not too cold/hot day x
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Fingers crossed for this afternoon Mel.
 
Fingers, Toes and eyes crossed for you Mel!

We had snow yesterday (the biggest snowflakes I've ever seen) during the day (wasn't fun cycling in it though) and a dusting overnight, however it's turned in to a glorious day - sunny with some warmth in it.
 
Hi
Shellback said:
I hope it lives up to your expectations. I think I'm going to wait until they perfect the technology for pumps that auto adjust doses myself. I think they'll crack that properly fairly soon.
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@Shellback To be fair I am a bit worried about this, think it ,looks a bit complicated and I am unsure of this stuck on me all day everyday. I tend to be very restless in bed and have visions of it becoming disconnected. then there are the horror stories of people trying to get through airport security with pump attached.

Havig said all that people on here who are pumping seem to think they are excellent and gives them better control, which of course is my ultimate aim.

According to hospital over the years they have given out over 400 and only around half dozen folks have returned them, so I am a little optomistic
 
We have our usual 2 inches of snow in my neck of the woods. Fun and games driving out of my street with car struggling to get up the hill outside my house. A cheeky wee - 5 this morning at 7.30am

Snow envy---if anyone wants our snow help yourself
 
smc4761 said:
Hi


@Shellback To be fair I am a bit worried about this, think it ,looks a bit complicated and I am unsure of this stuck on me all day everyday. I tend to be very restless in bed and have visions of it becoming disconnected. then there are the horror stories of people trying to get through airport security with pump attached.

Havig said all that people on here who are pumping seem to think they are excellent and gives them better control, which of course is my ultimate aim.

According to hospital over the years they have given out over 400 and only around half dozen folks have returned them, so I am a little optomistic
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I am in the same boat!!! I am bricking it lol...T1D for 48 years all I have EVER known is jabbing myself multiple times a day. I will feel like, as @Mel dCP has said, I am missing something or have forgotten to do something. Its a new and challenging chapter in my life and even thou I am bricking it, I am really looking forward to it as well (NO MORE JABS.....WINNER)
 
Thank you @helensaramay. Yeah I understand that there will be a lot of initial work in setting it up and additional tweeking after it has been set up right. I will have endless questions no doubt about that. So glad to be a member of this forum where you can get the help and advice from people who live with T1 day in and day out
 
helensaramay said:
The ones that are being prototyped now don't manage food - you still have to count your carbs. But I digress...
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I beleive there are 'DIY systems' that can cover a bolus without telling it how many carbs, but you do tell it you're expecting to eat soon, a bit like a 'turbo' button I think and the system becomes a bit more 'aggressive'.
 
helensaramay said:
@smc4761 and @porl69 - I was very like you before I got my pump. I really wasn't sure if I wanted something attached to me all the time and, being an engineer, I was very nervous about relying on a bit of technology to keep me alive.
(I am even more nervous of the type of a closed loop pump system which works out your insulin doses as @Shellback is waiting for. The ones that are being prototyped now don't manage food - you still have to count your carbs. But I digress...)

The thing that made me go for a pump in the end was being told I could give it back - taking the pump is not a one way street.
However, 3 years later and I am still pumping with only 3 (enforced) days off (and I hated those 3 days).

I would not describe my "Pumpy" as "excellent". I would describe him like a petulant teenager - sometimes he is amazing and I would hate to be without him; other times I want to give hime away and never see him again. Over the last 3 years, I think I have got used to his awkwardness and we are friends more than enemies now. But he still won't do the washing up.

The pump is not a miracle - it still requires accurate carb counting (more accurate for me because I can go down to 0.05 units of insulin on the pump) and the wonderful temporary basals and different basal regimes are only good if they are set up right (and I choose the right one). In my area, one of the criteria for a pump is having the willingness and ability to cope with this. So regardless how "bad" your control is, you will not get a pump if you refuse to invest the time and effort into managing your diabetes.

I am sure you will have questions (such as what to do with it at night). There are enough of us here to answer but I won't bombard you with any more information for now.
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I don't mind carb counting during the day. I'm very attracted to the idea of a closed loop system that could up the basal if I start running high when overnight whilst asleep so I'd always wake up in the 5s. I think the only one on the market at the moment though is the Medtronic and it only keeps one at around 6.7. Which I don't find particularly enticing as I normally manually beat that anyway.

Still I'd be interested to hear what the new pumpers, and the old pumpers, think as I imagine at some point in the future the technology will be so good it will be a no brainer to get one. Provided one can fund it of course.
 
YYYYYAAAAAAAAWWWWWWNNNNNNNNN Afternoon.

Cold here, the snow kind of made a half hearted attempt but that was it, however the corner by the pub on the road was 'interesting' I do love a bit of black ice. Drive in slow hand on hand break lever to correct if it starts going all pete tong.

All going well BSL wise, but interesting following the 'pump' discussion :)

@Mel dCP Good luck and watch the ice, if you go A over T then its a good excuse for coffee and cake :)
 
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kitedoc said:
New forecast for tomorrow is for 45 Degrees C (no degrees F about it). I know the local greengrocer has a large fridge ...........
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wow i couldnt cope kitedoc,are them temps normal for this time of year where you are or are yous getting barmy weather :wideyed:
 
Mel dCP said:
I’ve just got up, it’s my one day off this week. Feels a bit odd after my 0530 starts! Got to walk the mile to our local hospital and back this afternoon, got the follow up consultation to the retinopathy screening that came back with maculopathy and non proliferative retinopathy. To say I’m bricking it would be a slight understatement. Will try not to fall over on the ice.

Hope you all have a nice not too cold/hot day x
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hope all goes /went well mel xx
 
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