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I missed our local BCA: Bundaberg Cricket Association.Around here it stands for Berkshire College of Agriculture.
I missed our local BCA: Bundaberg Cricket Association.Around here it stands for Berkshire College of Agriculture.
Interesting story.I do feel for you, this type of thing is worrying. About 2/3 years ago I go for my diabetes yearly check at my surgery and this is the conversation.
DSN; Ah I see you are type 2
Me; Err no,I think you must be looking at another patients record
DsN: No, it says Type 2
Me; I have been diagnosed type 1 for 27/8 years
DSN : Dr P, (my new doctor, whom I had never seen) has changed it to Late Type 2 diabetes ?
M: I am not type 2
DSN: Well, Dr P is very knowledgeable in diabetes
Me; Well, he has got it wrong
DSN; But only children and young people are diagnosed with type 1
Me; You're wrong, all ages can be diagnosed with Type 1
I went away fuming, because my new GP just decided that I MUST be Type 2, I told my hospital what happened and they said to ignore them, I am definitely type 1!!
It beggars belief and sometimes our lives are truly in their hands.
ps It has been changed back to Type 1.
Beta-Cell Apoptosis, meaning: disapperanace (literally: the 'falling down of') beta cells (insulin-and-amylin-producing cells). I call it a honest name because it simply describes the problem, with no attempted explanation attached to it.I tried googling but there were 500 alternatives for BCA, so what does it stand for? - just curious.
I met a man the other week who was diagnosed with T1 at the age of 40.I was recently diagnosed with t1d. Most people assume you can only get t1d at a young age, since I was diagnosed at 17 people assumed that I have type 2. My school nurse said to me "You can ween yourself off insulin... you are pre-type 2." While the other nurse insisted I get a bicycle to exercise. At this point I was literally strait out of ketoacidosis weighing only 99 pounds. I had to keep telling them that I was type 1! How do you explain t1d to people who just don't get it? : (
Although using the acronym BCA would cause confusion, I agree that if Type 1 had a completely different name it would help the public to understand. I think this has been discussed before but can't see it happening unfortunately. I like your point that in Type 1, diabetes is a symptom rather than a disease, I hadn't thought of that before.Beta-Cell Apoptosis, meaning: disapperanace (literally: the 'falling down of') beta cells (insulin-and-amylin-producing cells). I call it a honest name because it simply describes the problem, with no attempted explanation attached to it.
However, my main point was: we lack the part of the body which gets impaired by T2. I found out this usually does the trick, provided I use a wholly unfamiliar name for the condition. If I use the name 'diabetes', I see there's no hope, especially in my home country (I live in Italy) where it's still extremely uncommon to distinguish diabetes types (just imagine!).
Thank you for asking and sorry for my poor English (I guess I'm not very bright on a Sunday morning )
A big hug!
Not 'some' - the majority of people call it type 1 diabetes (mellitus). I don't know of anyone who calls it BCA, whether in the medical profession or not.That's why some people call it T1 diabetes. But this is rather inaccurate.'
It will be some time before we can develop artificial intelligence systems that will work effectively - but we are working on it and there are current trials of systems such as BigFoot.
Not 'some' - the majority of people call it type 1 diabetes (mellitus). I don't know of anyone who calls it BCA, whether in the medical profession or not.
Wouldn't it be better to say something like, 'I think what you're saying might apply to someone with type TWO diabetes but I have type ONE diabetes which is a completely different medical condition'? That way, you are helping to educate the people who are unaware of the difference and thereby reducing the chances of 'misinformation' being given to someone else. If you want to use an analogy you could say it's like the difference between chicken soup and tomato soup - both are called 'soup' but you wouldn't find chicken soup on the menu in a vegetarian restaurant.
That is no surprise to those of us who know that more than half the people with type 1 diabetes are diagnosed over the age of 20.I met a man the other week who was diagnosed with T1 at the age of 40.
That is no surprise to those of us who know that more than half the people with type 1 diabetes are diagnosed over the age of 20.
The ignorance of it being a childhood disease (including calling it juvenile diabetes by a well known international type 1 charity) often leads to dangerous misdiagnosis of type 2.
I was diagnosed in my mid 30s and know there are people on this forum diagnosed significantly older than the guy you have just met.
There's a few posters who are already succesfully using open source apps like openAPS, Loop and AndroidAPS to automate their insulin delivery.
One of the main pioneers, Dana Lewis, has written about it recently:
https://www.amazon.co.uk/Automated-...very&qid=1558193930&s=gateway&sr=8-1-fkmrnull
They have done it so succesfully on a totally open source unregulated basis that some of their code can be found in commercial systems and they now talk regularly with pump developers and doctors who are trying to play catch up on what the open source community has done.
I was at a seminar about looping recently where Dr Emma Wilmot, head of the Association of British Clinical Diabetologists and one of her patients Alasdair McLay said that Al was giving tutorials to hcps about how looping worked.
https://mobile.twitter.com/alternateal
It reminds me of that Elliot Joslin quote from the 1940s where he said that he found diabetics to be the most resourceful people he had ever met!
The powers that be have bandied about a different name for type 1. It would be nice. I have heard the rumors of auto immune wanting to be used. If you could say auto immune beta cell disease, it would sure help to differentiate it. As long as "diabetes" is still in a title for it, it's going to get muddled in with everything type 2, dropping that from the description would go a long way to help medical personal pay more attention too this disease as being different and get rid of the old ideas and biases.
A very good quote indeed
Interesting. I always thought that Italians would automatically pay more attention to the modifier because, as you say, the adjective usually comes last in Italian.Our language does not put adjectives first, but nouns first: we say 'diabete di tipo 1' (see how long it is? see how 'diabetes' comes first and the number only in the end?). So, were I to say something like that, the only thing a person would register would be 'diabetes'. The 'type 1' part is perceived as some unnecessary frill which means absolutely nothing – and I mean nothing with all my might – to whoever I meet.
Here's the full quote - it made me laugh!
"I must say that I do admire the backbone and the brains of the average diabetic and I truly believe on the whole they are superior to the common run of people and therefore their good qualities merit cultivation. Second, I think they are less apt to drink, far less likely to have syphilis or gonorrhea, and distinctly less likely to have, what is anathema to me, 'nervous prostration and nerves.'"
I was also originally diagnosed as Type 2, because of my age, and prescribed lots of meds. The condition of my liver so alarmed my GP that he sent me to a liver specialist. The GP wouldn't tell me about any of my test results, only that my liver was in the worst shape he's seen anyone's. The liver specialist told me that the reason for my liver problems was due to the meds I was on and to stop them immediately.I am a type 2 but have recently been diagnosed with acute liver failure made worse my the medication I was on. I now have to inject insulin. In hospital the DSN told me that I was now type 1!! I have seen dieticians, DSN’s, specialists and consultants and have to say they are all useless! My best source of information is my sister who was diagnosed as type 1 four years ago when she was 51 and nearly died. X
Unfortunately T1s can become insulin resistant like T2s, leading to a condition known as double diabetes.....However, my main point was: we lack the part of the body which gets impaired by T2.