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Hello and Thank You

Paul_

Well-Known Member
Messages
504
Type of diabetes
Type 2
Treatment type
Diet only
Hello everyone. Month long lurker here, just joined today.

I'm 42 and was diagnosed with T2 diabetes on the 21st July, however following some very specific symptoms and buying a blood glucose meter, I already knew that.

My meter arrived the evening before my first appointment with a nurse practitioner. Pre-dinner reading was 15.4. I was already following NHS "eatwell" at this point due to strong suspicions of diabetes due to symptoms experienced, so had a dinner in-line with their recommendations. 2 hours after that meal, BG reading was 17.9. At this point I panicked a little, but a voice in the back of my head was already starting to shout that maybe half a plate of carbs might not be a good idea for diabetes.

Next day comes, nurse practitioner appointment. Also had bloods taken same day. It was an experience, that's for sure, and looking back it was the worst and best moment of this process for me. The worst was comments like "I don't think you'll lose weight quick enough" (I'd already lost 1st in the 6 weeks prior to appt), "you'll be on maximum Metformin dosage" (while she refused to discuss diet/lifestyle changes), and when asked for any advice she could offer, responding with "just try and avoid the sweet stuff". I'm a big fan of the NHS, I love everything it stands for and provides, but this tested my support.

Dutifully carried on with the NHS "eat yourself to severe diabetes" plan for 2 more days, taking readings at all the relevant points, and the obvious struck home - I needed to change my diet. That's how I landed on this forum.

Meanwhile, blood tests came back. HBA1C of 83. Mid-high end LDL cholesterol (within rage though), low HDL cholesterol, sky high trigs at 5.3 so didn't get an LDL result. Fatty liver. I'm already on hypertension meds. I'm very obese 25st 11lb at peak, but was 24st 9lb on my appointment date. This was the moment of change.

With basically a whole evening and night of research, I put together a very basic low carb diet plan, 50g carbs a day to start. Over the next week, kept taking BG readings and saw improvement down to an average of 10, down from 17, after meals. Slowly adapted my diet more, walked 30 mins a day, and within a week ended up in keto territory, where I've stayed.

Due to a mistake by the nurse practitioner, my Metformin prescription took 2 weeks to get to me. By the time it arrived, my average BG was already down to 6.5. On active days my BG readings were 5.1 to 5.5 fasting and before meals, 6.5 tops after meals. So, I just didn't take the metformin (this was a personal choice, I'm not advocating anyone ignore medical advice).

I'm now 4 weeks on from my first appointment with the nurse practitioner. My average BG reading for the last 7 days is 6.1. When fasting or before meals, I'm down in the 5 point something range. After meals I'm 6.7 at most. Never more than +1 between before and after meals. I've lost a further 1st 9lbs in the last 4 weeks, making 3 stone in total since peak weight. My triglycerides are now 2.5, still way too high, but half what they were 4 weeks ago. My blood pressure is down 10-15 points for systolic and diastolic, and it was already normal range on medication before I started all this.

At a nurse appointment yesterday, she weighed me, then had a begrudging look at my BG data, then said "Well, the metformin is doing its job!" She was shocked (and what appeared to be disappointed) when I told her I hadn't taken 1 single tablet and handed her the full box back.

I really want to thank so many people on this forum. The advice here is better than anywhere else, it's transformed my life. I was stupid to let things get so bad, but with the help of advice here, I've started on something that I love, feel 10 years younger for doing already, and I couldn't have done it without so many people here. It's opened my eyes.

A lot of hard work ahead. 3 stone down, 10 stone to go, it'll be a long road - all while trying to mitigate metabolic syndrome issues along the way. Thanks to this forum though, I've seen the light, and I'm determined to keep going!

Apologies for the really long post and thank you again everyone.
 
We can say, but you had to do. And you did! You took hold of this by the throat and have taken charge of your own health (oh I did chuckle about Nursie and the metformin). You are doing SO well. Stick with us, ask anything you want, no judgement here just real-life experience and wisdom. Keep an eye on the BP as you will probably have to reduce meds or even come off them as you become healthier.

Warning: the weight loss will involve some really pleasant clothes shopping - it's cost me, and I love it!
 
We can say, but you had to do. And you did! You took hold of this by the throat and have taken charge of your own health (oh I did chuckle about Nursie and the metformin). You are doing SO well. Stick with us, ask anything you want, no judgement here just real-life experience and wisdom. Keep an eye on the BP as you will probably have to reduce meds or even come off them as you become healthier.

Warning: the weight loss will involve some really pleasant clothes shopping - it's cost me, and I love it!
Thank you for your kind words, they really do mean a lot. I feel so fortunate to have found this place. I've failed on every (traditional) diet I've ever tried, generally within a week at most. With this community and my very supportive family, I have no doubt I can succeed this time, manage my diabetes/metabolic syndrome, and hopefully help some others along my way too.
 
A fantastic start, WELL DONE, keep it up, i'm sure as the weight keeps dropping off, you'll be even more inspired to keep going. If you find the weight loss stalls, try varying the amount you eat a little, maybe a day where you eat a lot less, or vice versa. this stops the body dropping your metabolic rate to match your food intake, a common problem on calorie controlled diets, and why they are rarely successful.
Low carb is what we as a species evolved to eat, it's funny how everything improves, when we put the correct fuel in.
 
I suspect that we are, by nature 'petrol driven' but the powers that be want us on diesel even if we are conking out at the roadside with choked engines.
I am having to spend time each day sewing or altering my clothes as I seem to be regaining a waist, little by little. I was almost spherical when diagnosed. So many people seem to settle on 50 gm of carbs a day as something they can keep to and control their diabetes so it is quite reassuring to find that amount seems to be suiting you too. The advice from your nurse must have been a test of patience and politeness, I can only hope that our continued success will eventually cause a realisation that the NHS mantra is wrong and needs a drastic overhaul.
 
A fantastic start, WELL DONE, keep it up, i'm sure as the weight keeps dropping off, you'll be even more inspired to keep going. If you find the weight loss stalls, try varying the amount you eat a little, maybe a day where you eat a lot less, or vice versa. this stops the body dropping your metabolic rate to match your food intake, a common problem on calorie controlled diets, and why they are rarely successful.
Low carb is what we as a species evolved to eat, it's funny how everything improves, when we put the correct fuel in.
Thank you, great advice.

I've started 16 hour intermittent fasting this week. On my third extended fast of the week today. Feeling great from it, aided by the fact low carb seems to control my appetite and hunger so much better, to the point "skipping" a meal doesn't particularly bother me it seems. Don't know if this is the same for everyone. I've also learnt to trust my sense of hunger too - if it's time to eat and I'm not massively hungry, I reduce the size of the meal. Like you say, amazing what happens when you actually listen to your body and ditch the empty carb calories!

Do you use any particular intermittent fasting approach?
 
The intermittent fasting, is made possible, by your body becoming fat adapted. Now when you don't eat because you don't feel hungry. Any fuel required is taken from fat storage. This IS how we evolved. But if it is too regular, your body may drop your metabolic rate and weight loss will stall or at least slow right down.
 
I suspect that we are, by nature 'petrol driven' but the powers that be want us on diesel even if we are conking out at the roadside with choked engines.
I am having to spend time each day sewing or altering my clothes as I seem to be regaining a waist, little by little. I was almost spherical when diagnosed. So many people seem to settle on 50 gm of carbs a day as something they can keep to and control their diabetes so it is quite reassuring to find that amount seems to be suiting you too. The advice from your nurse must have been a test of patience and politeness, I can only hope that our continued success will eventually cause a realisation that the NHS mantra is wrong and needs a drastic overhaul.
We can only hope when it comes to the NHS advice, it seems a one-way road to ever increasing medication and complications.

For now, keto is working for me. I've taken an increasingly data driven approach to this, so at the moment I can confirm it's working for me to. It's worked for almost 4 weeks and it's working still today. If it doesn't work tomorrow, or some point down the line, I'll deal with that when I get there. Seeing so many accounts of the same approach working for so many others has been so reassuring. It's not easy fighting your own brain and what it's been told for 40 years sometimes, so the community here has been a great source of reassurement for me.
 
The intermittent fasting, is made possible, by your body becoming fat adapted. Now when you don't eat because you don't feel hungry. Any fuel required is taken from fat storage. This IS how we evolved. But if it is too regular, your body may drop your metabolic rate and weight loss will stall or at least slow right down.
Thank you for this advice. Weight loss has slowed this week a little, which from what I've read isn't unusual for week 4 of low carb, but what you've said here has given me some insight into why. I'll try mixing things up a bit more next week, try to keep my more than adequate fat stores guessing as to when they might be raided next!
 
Congratulations Paul, its so nice to hear that you made the right decision and that you can see it is paying off.
Many/most of us who have got their T2D under control have faced the same problem with NHS doctors and nurses.
Then when we find Low Carb (by ourselves) the6y say you are a unique case, other patients wouldn't do that!
To which I replied, they don't do it because they aren't told that it works.
In fact many are told that Low Carb/keto is dangerous, despite being prescribed for childhood epilepsy since the 1920s.

Have you faced your family/friends about your new lifestyle yet? - If not, then you still have that to face.
Just because they can eat as much carbohydrate as they like and the NHS advises lots of carbs doesn't mean that applied to everybody.

It took my wife over 1yr to really accept Low Carb worked for me, then she discovered she had been losing some weight too even though she was eating much more carbs than me, my low carb was rubbing off a little and she was feeling the benefit for herself!
Just be strong and trust your BG meter - it is you personal expert on how your body is dealing with your diabetes!
 
Congratulations Paul, its so nice to hear that you made the right decision and that you can see it is paying off.
Many/most of us who have got their T2D under control have faced the same problem with NHS doctors and nurses.
Then when we find Low Carb (by ourselves) the6y say you are a unique case, other patients wouldn't do that!
To which I replied, they don't do it because they aren't told that it works.
In fact many are told that Low Carb/keto is dangerous, despite being prescribed for childhood epilepsy since the 1920s.

Have you faced your family/friends about your new lifestyle yet? - If not, then you still have that to face.
Just because they can eat as much carbohydrate as they like and the NHS advises lots of carbs doesn't mean that applied to everybody.

It took my wife over 1yr to really accept Low Carb worked for me, then she discovered she had been losing some weight too even though she was eating much more carbs than me, my low carb was rubbing off a little and she was feeling the benefit for herself!
Just be strong and trust your BG meter - it is you personal expert on how your body is dealing with your diabetes!
I think it's the speed with which low carb has turned around some of my numbers that has surprised me. BG down significantly within 2 weeks, trigs halved in 3 weeks, BP down, plus decent and steady weight loss too. If the NHS had their way, I'd still be making myself worse, while they get me fully loaded up with medication. (I'm not anti-medication, taken BP meds for 8 years now, just anti-medication where effective alternatives exist).

I told my immediate family and friends very quickly. My wife and kids have been amazing so far, despite not fully understanding all the ins and outs of it. My 6yo was offered a choice of a lolly or a badge the other day at an attraction and he said "I'll have the badge, BECAUSE CARBS ARE THE ENEMY!" Maybe I've been talking about it too much haha. Extended family trying to be supportive and it comes from a good place, but buying me sugar free snacks with 35g of carbs in it isn't all that helpful. Nice of them to think of me though. Acquaintances in my life, those friends of friends or more distant friends, have mostly been concerned about how it may affect their enjoyment of an evening if I'm not in on the drinks rounds, or if they can still eat carbs around me. I'm not at all bothered by this group, they can act and do as they wish, my family and close friends support me and that's all that matters (I'm pretty clinical with my relationships and whose opinions matter, one of my few strengths!)

Ironically, so far the least supportive people have been in the NHS, the very people who are supposed to be experts in health matters, which both angers and disappoints me immensely. You live and learn, I suppose.
 
The problem with the NHS is following guidelines, they have been giving out WRONG information for about 40 odd years. It's difficult to turn around and say sorry we got it wrong. so it will be a gradual change over many years, so as to not be responsible for any deaths, amputations and blindness etc that were caused.
 
Very well done @Paul_ , keep up the good work. I lost a huge amount of weight six years ago when first diagnosed, by low carbing. It got a bit expensive on the clothes front so I started giving my big clothes to charity shops and buying new smaller ones while I was there!
Just one note about your trigs readings being high, were the bloods taking fasting? If not trigs readings are bumped up after eating. The great NHS don’t tell you to fast but I always do, so as to get a kind of base line reading.
 
Very well done @Paul_ , keep up the good work. I lost a huge amount of weight six years ago when first diagnosed, by low carbing. It got a bit expensive on the clothes front so I started giving my big clothes to charity shops and buying new smaller ones while I was there!
Just one note about your trigs readings being high, were the bloods taking fasting? If not trigs readings are bumped up after eating. The great NHS don’t tell you to fast but I always do, so as to get a kind of base line reading.
Thanks for the encouragement, yours and others replies here have really spurred me on today, everyone is so nice around here!

I'm trying to hold out on the clothes front. I put my favourite shirt and a pair of jeans on last night to go out and my wife said they looked like I was a kid wearing my father's clothes, so not sure how long I can hold out from here! I really hate clothes shopping though, so I reckon I've got some mileage left yet!

My first trigs result of 5.3 wasn't a fasting one. Second test was fasting, didn't eat from dinner the night before until the late morning appointment, so about 17 hours in total. Second trigs result was 2.5. HDL came back as 0.73, LDL was 2.7, serum cholesterol was 4.6. Overall, not great, but all were improved from first test after 2 weeks on low carb, daily exercise, and it being a fasting result second time around.

It's just occurred to me, does fasting duration affect results? Is there an optimum duration and if you go longer it skews the result?
 
It's just occurred to me, does fasting duration affect results? Is there an optimum duration and if you go longer it skews the result?
I don’t think you can skew results by fasting too long. I think the suggestion is to fast 12 - 14 hours beforehand.
 
I think it's the speed with which low carb has turned around some of my numbers that has surprised me. BG down significantly within 2 weeks, trigs halved in 3 weeks, BP down, plus decent and steady weight loss too. If the NHS had their way, I'd still be making myself worse, while they get me fully loaded up with medication. (I'm not anti-medication, taken BP meds for 8 years now, just anti-medication where effective alternatives exist).

I told my immediate family and friends very quickly. My wife and kids have been amazing so far, despite not fully understanding all the ins and outs of it. My 6yo was offered a choice of a lolly or a badge the other day at an attraction and he said "I'll have the badge, BECAUSE CARBS ARE THE ENEMY!" Maybe I've been talking about it too much haha. Extended family trying to be supportive and it comes from a good place, but buying me sugar free snacks with 35g of carbs in it isn't all that helpful. Nice of them to think of me though. Acquaintances in my life, those friends of friends or more distant friends, have mostly been concerned about how it may affect their enjoyment of an evening if I'm not in on the drinks rounds, or if they can still eat carbs around me. I'm not at all bothered by this group, they can act and do as they wish, my family and close friends support me and that's all that matters (I'm pretty clinical with my relationships and whose opinions matter, one of my few strengths!)

Ironically, so far the least supportive people have been in the NHS, the very people who are supposed to be experts in health matters, which both angers and disappoints me immensely. You live and learn, I suppose.
I love your bright 6-year old! That child will go far.
 
@Paul_ well done on doing the research and working out what works for you and that for many of us it isn't official diabetes type 2 nhs advice! I was diagnosed 8 plus years ago with hba1c of 97 and was technically obese. For first two years I followed their advice and took metformin, initially a very very low fat and calorie restricted diet and masses of exercise did help but then no matter how much I starved myself and exercised I started creeping up again weight wise and blood sugar.....Then exactly Six years ago I discovered the then free pilot low carb programme and in a short time was no longer hungry, didn't need to over exercise and became a normal weight and had normal blood sugars all with ditching the metformin too. Six years on I'm still doing well with my management all my hba1cs in low to Mid 30s and most importantly I'm still loving eating low carb mixed with some intermittent fasting. Working out what works for you is key so experimenting and checking progress with a monitor is vital well done you for having courage to go down this road. Good luck I'm sure too those trigs will reduce as you restrict carbs - for your info I often daily fast for 16 to 18 hours but always both restrict my fast pre blood draw to 12 to 14 hours and and have water only fast no black coffee or tea even. I once had a coffee with cream as part of my fast before blood test and had really high figures so haven't repeated this! Welcome to this forum and keep up the good work.
 
I’m 46 and was diagnosed 10 weeks ago hba was 91 down to 11 stone 4 I’ve been exercising ate healthy cut out all carbs and next app with nurse on the 18th I’m hoping to be at least 60 lost 10lb by god it’s hard to get off but easy to put on good luck with your journey your doing well xxxxx
 
@Paul_ well done on doing the research and working out what works for you and that for many of us it isn't official diabetes type 2 nhs advice! I was diagnosed 8 plus years ago with hba1c of 97 and was technically obese. For first two years I followed their advice and took metformin, initially a very very low fat and calorie restricted diet and masses of exercise did help but then no matter how much I starved myself and exercised I started creeping up again weight wise and blood sugar.....Then exactly Six years ago I discovered the then free pilot low carb programme and in a short time was no longer hungry, didn't need to over exercise and became a normal weight and had normal blood sugars all with ditching the metformin too. Six years on I'm still doing well with my management all my hba1cs in low to Mid 30s and most importantly I'm still loving eating low carb mixed with some intermittent fasting. Working out what works for you is key so experimenting and checking progress with a monitor is vital well done you for having courage to go down this road. Good luck I'm sure too those trigs will reduce as you restrict carbs - for your info I often daily fast for 16 to 18 hours but always both restrict my fast pre blood draw to 12 to 14 hours and and have water only fast no black coffee or tea even. I once had a coffee with cream as part of my fast before blood test and had really high figures so haven't repeated this! Welcome to this forum and keep up the good work.
It's so inspiring to hear accounts of diabetes management like yours, Shelley.

I said to my wife that I'm just fortunate with the time I've been diagnosed with this. Obviously I'd rather not have it, but if you're going to, better now than 10 years ago or pre-internet.

After 3 days of measuring my BG levels on the NHS recommended diet, I was feeling pretty defeated and very scared if I'm honest. I remembered reading an article some time ago about diabetes remission. I googled that term and this forum was one of the top hits. I haven't looked back since. I may have researched, but without this forum and the resources on the website here, I'm not sure I could have made sense of all the mumbo-jumbo on the wider internet. People's personal accounts of their diabetes management journey, combined with a number of threads having links to scientific studies and papers, all in one place here, made it crystal clear what I needed to do.

Thanks for the fasting advice. I've just started dabbling with it this past week and have really enjoyed it. My third 16 hour fast of the week ended at lunchtime today and my pre-lunch BG was 5.4. Two hours later it was 5.7. Went for a family walk shortly after lunch and my pre-dinner BG was 4.9.

I love the low carb diet, it's transformed my relationship with food and dealt with a lot of my food demons in turn. I feel like my diabetes diagnosis and low carb have freed me and removed a lot of stress I used to feel around health/diet/food, odd as that may sound.
 
I’m 46 and was diagnosed 10 weeks ago hba was 91 down to 11 stone 4 I’ve been exercising ate healthy cut out all carbs and next app with nurse on the 18th I’m hoping to be at least 60 lost 10lb by god it’s hard to get off but easy to put on good luck with your journey your doing well xxxxx
That's amazing, Pauline. Let's both keep up the great work and kick diabetes in the a**e, just like so many others have here.

Good luck with your next appointment!
 
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