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Diabetes.co.uk

Brightside said:
Diabell I agree with you that there is lots of advice here, but unfortunately none of it expert advice
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Another set of confusing comments .......

Brightside said:
I dont have an issue with this site as it is providing a valuable service in helping us help ourselves.
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It's not expert advice but it's valuable advice? So which one is it?
 
The one thing I'd like to see all diabetes organisations do, charity or not, is to fight for meters and testing strips for Type 2s. I get strips on prescription but most don't and how can any organisation really help anyone if they can't test to keep a check on how it's going on a daily basis?
 
Mike D said:
Another set of confusing comments .......



It's not expert advice but it's valuable advice? So which one is it?
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Mike read it again.....are there qualified experts giving advice here? No it's patients telling patients....

Is it a valuable service....judging by the comments yes it is (note the exact wording service vs advice) I myself feel it's good to exchange information with other patients.....

Wouldn't it be great if there were some academics here that could step in and say things like....well studies have shown that if u do this then that or the danger is bla bla bla, but as this ain't a charity it will never happen so we will continue to help each other tap in the dark.
 
We're not in the dark though.
We have meters medicine diet plans a wealth of experience.
We have video links and text links to all the experts on the planet who ever published anything.
Many experts trained professionals disagree with each other.
If this place were to fill up with experts you'd find opinions far more at loggerheads with each other than with people of experience.
Remember a lot of experts are book experts and not much else.
The nurse at my surgery has said she is paid to give out the guidelines as supplied and published by NICE.
She can't ditch that and start saying well we have a patient called Jack who is doing fantastic by defying NICE so I'm going to defy them too .... will her pay packet still be there.
A lot of experts have agendas and corners to fight .... often corporate corners.
Last thing we need on here is flaming experts!
 
DeejayR said:
Well, I have to confess here I thought this forum was an offshoot of Diabetes UK. The penny's only just dropped that one is .co and the other is .org. No wonder I've been getting confused trying to reconcile one with the other.
I really should change my avatar to Winnie the Pooh, except we've got at least one similar already.
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Please don't do that you will have to change your accent :(
 
Brightside said:
Mike read it again.....are there qualified experts giving advice here? No it's patients telling patients....

Is it a valuable service....judging by the comments yes it is (note the exact wording service vs advice) I myself feel it's good to exchange information with other patients.....

Wouldn't it be great if there were some academics here that could step in and say things like....well studies have shown that if u do this then that or the danger is bla bla bla, but as this ain't a charity it will never happen so we will continue to help each other tap in the dark.
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I have never heard such diatribe, this site helps lots of people I certainly do not want some academic giving me the wrong advice that they have done to all these diabetic for so many years
Brightside said:
I hear you Nosher and I dont have problem with the site per-se but I am just putting it out there that as the premier site for diabetics in the UK what do they do for patients? Do they campaign for us? Do they plan meetings seminars? Do they sponsor research ??? How about exercise programs for all the 3mil diabetics in the UK??? Or patient seminars? Or do they simply make money on the back of our illness?
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Why don't you go and do it yourself, nothing is stopping you.
Neil
 
Brightside said:
Mike read it again.....are there qualified experts giving advice here? No it's patients telling patients....

Is it a valuable service....judging by the comments yes it is (note the exact wording service vs advice) I myself feel it's good to exchange information with other patients.....

Wouldn't it be great if there were some academics here that could step in and say things like....well studies have shown that if u do this then that or the danger is bla bla bla, but as this ain't a charity it will never happen so we will continue to help each other tap in the dark.
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Qualified for what? You will NEVER find a better resource than this one. WE live with this, most so called "academics" don't ..... did you not stop and think of the realities of the condition before you wrote that? Please stop putting people on pedestals at the expense of a reality you just cannot see

Thanks, but NO thanks. I've seen enough evidence of your so called academics that have done more harm than good. I listen to experience, to proven evidence from those that have turned their life around in spite of what your academics might pronounce.
 
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I'd have to agree with @miked. The majority of professionals are not experts in living with diabetes as a daily lifestyle. Those of us on here who have had diabetes long-term are. Some may be more expert at various aspects than others, but in giving advice on living with the condition, you couldn't ask for more experts.

Professionals can tell you about the treatments, techniques, etc, but the experts, us, can tell you about putting them in to practice and the realities of using them.

Which is more valuable?
 
my first doctor back in 1972 said this exact line to me --- "over time you will become the expert and will know much more than the vast majority of people treating you"

sanofi, novo nordisk ,abbott, and a couple others keep me alive as without their drugs/ supplies i would be in the spirit world by now.
I certainly don't begrudge these companies making a profit nor do I begrudge the website making advertising revenue from pay per click and the like.

we all have free will to choose to be here so if principles get in some peoples way the the exit door is up in the top right corner of the screen in red marked with an X
 
When I was finally diagnosed, it was this forum that changed my life. And saved my life and my suffering!
My endocrinologist was brilliant In diagnosis, my endocrinologist and my dietician recommended this forum to give me that advice, that I needed to help me change my life.
It was caring and knowledgeable people like @Brunneria who used their spare time to give me the knowledge to give me a chance to live normally.
There are many others who questioned me about my conndition, and gave me the momentum to read and discover what the science is behind what I have. It was like prepping for an exam.
I have had great support and made many great friends through the various threads @zand, @semiphonic, @johnboy412000 , RRB, and many others like @Mike D whom I can discuss star trek. If I fail to mention someone, tell me off later!
This forum is unlike others, there is nowhere else I can go.(wouldn't want to!).
This forum is a force in helping people with health issues naturally rather than drugs.
This forum is free and sometimes it is better than going the docs.
The truth is out there. And we help get the truth to help fellow sufferers.

Thank you one and all on here.
 
Hi @Mike D, or should I say b'day?
Would you spare a few minutes to read my latest blog please? It may interest you!
 
Go to the top of any page on the forum.click on blogs and go from there.
It says

'Where no man has gone before'

In Nosher blogs.

Ta mate!

Having a lot of trouble with predictive spelling this morning.
Link means techie thing which my grandson hasn't taught me yet!!!
 
Hope you're ok, mate?

Chin up, Can't be that bad?
Maybe we can borrow some of mikes weather! This cold is doing my head in!
zand said:
@nosher8355 Thanks for the tag - just what I needed on an otherwise miserable day. Things are looking better now :)
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tim2000s said:
I'd have to agree with @miked. The majority of professionals are not experts in living with diabetes as a daily lifestyle. Those of us on here who have had diabetes long-term are. Some may be more expert at various aspects than others, but in giving advice on living with the condition, you couldn't ask for more experts.

Professionals can tell you about the treatments, techniques, etc, but the experts, us, can tell you about putting them in to practice and the realities of using them.

Which is more valuable?
Click to expand...
I had that thought in the middle of the night but thanks to @tim2000s and @Mike D for articulating it.
 
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