Just read this thread after a few days offline and, to me, there seems a blatantly obvious answer reference the question of "experts". We need both the academic experts and experienced living with it experts. Ideally, we need them to be close to each other too.
I do think that there is a huge danger, on a forum such as this, that we believe that we know so much more than the experts because we live with diabetes. Yes, if they are not diabetic then you have the upper hand when it comes to what will a jammy dodger to your BG level and how a pint of beer or four will effect you. But what about the biological and chemical side? These guys are experts because the have studied and been educated in their field. Their opinions have been formed through research of their own and of other experts in the same field. This should not be ignored.
The fundamental difference for me is that we know different things to them. I could sit and explain a day in my diabetic life and how my meals, mood and exercise impacted my blood sugar levels. They could explain why and what was going on.
We need the experts to do the research and to know as much as possible about how things work so they can come up with treatments etc. They need us so they can get feedback on what works and what doesn't work etc. I'm sure there will be a plethora of fingers hitting they keyboard now to say "but they don't know and don't listen" but c'est la vie!
I'm sure somewhere on this forum it says to always seek medical advice. I prefer to seek both, medical and patient.