- Messages
- 113
- Type of diabetes
- Type 1
- Treatment type
- Tablets (oral)
Hi @Michele01
I believe you are being given the run around by your endocrinologist, he doesn't know how to treat it. You could ask for a referral to an endocrinologist who specializes in RH.
The way I got here because I was misdiagnosed and I was trying to find things out about how to treat the symptoms.
I had a lotto help and advice. After RH diagnosis, I just stayed around to find out about developments in treating blood glucose conditions.
Me and Brun got together, to get our own forum, but ended up with a sticky, thread in the ' Ask a question' forum.
I have always believed there is a lot more RH ers out there who haven't been properly diagnosed. And like me have been diagnosed as T2 or such.
GPs haven't got a clue about diabetes, never mind RH!
The treatment to help is eat small carb filled often.
When it is definitely the carbs (and sugars) that cause spikes.
The way to treat RH is to remove as many carbs as possible from your intake, that stops the spike, hence no hypo. If like @Brunneria and myself, we do not eat carbs.
I say it is. I am allergic to carbs and sugars. That way, you don't need to carb count!
I have been testing for a long time and I know what spikes me, and it is the same old baddies, bread, grains, cereals, batter, pasta, pastry, cakes, biscuits, glucose, coke, sauces, potatoes, carrots, etc. And processed foods!
Fat is another issue, we eat full fat and stay away from low or no fat.
Cooking oils are bad for us, use natural fats, animal fats instead of polyunsaturated fats.
Please read the forums and ask questions, welcome to our rare and exclusive club!
@nosher8355 honestly I can say that my Endo is one of the best there is. Please understand that I am firmly in the T2 camp now and need to get that under control. My RH is not a problem (and never really has been for me as I worked my way through it and have had it for years - it was just something I was used to and adapted to and, although an inconvenience, I coped with it far easier than the T2 I currently have). I most definitely was not as restricted as you in what triggered my attacks. Also, the Endo I have now is not the same one I had for the RH who basically offered me tablets, no dietary advice and ran!
My current Endo is fabulous and I wouldn't change him for the world. He's most definitely NOT giving me the run around. He's been fantastic since he discovered my T2 and it's only 3 months in. I'm very happy with his treatment and care. He listens, we talk and plan my treatment together so it's very much a collaboration. Something that I find reassuring and comforting. I will find my way through the carb situation but as I've said above, I don't think I react in the same way to carbs as you (and maybe Brunneria). Fats have never been an issue for me either. In fact my diet could be considered fairly Meditterranean in that regard! Before the T2 I could eat pasta and potatoes happily. I do need to test how I react to them now as I haven't checked. The only absolute no no's for me were bread and cereal with RH that literally floored me within 30 minutes to an hour and I went downhill quickly. Since being diagnosed with T2 I have managed to eat bread without this happening and have tried cereal once only. However, I do understand that bread may become something I need to give up but as you say, we all tolerate foods differently.
I appreciate your advice but for me, RH is really not an issue. It could become one later down the line when my blood levels reduce but my focus is most firmly on getting my levels down at the moment and that's a learning curve having to understand what my body spikes with and doesn't. I've had some great information here and learned loads in 24 hours and have been printing recepies (especially for puddings and treats!).