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Further Problems with my Feet

Rachox

Rachox

Oracle
Retired Moderator
Messages
17,612
Location
Oxford
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
I posted a few months ago about my diagnosis of Raynauds following colour changes in my toes and ice cold feet. I have been using GTN patches to improve the circulation in my feet. The Raynauds has improved but doesn’t explain other feelings I am getting in my feet, namely tingling and numbness with burning sensations particularly at night. My GP put through a referral to neurology and I now have an NHS appt, for next May!

I got worried that things would deteriorate and cause irreversible damage by then so I arranged to see a private neurologist on Thursday. He was very thorough and concluded that despite my very tight control of my blood sugars that I have peripheral neuropathy, cause though is unknown.

I now have to go back to my GP with his diagnosis and suggestions for symptomatic treatment as I can’t afford to continue with the private route. Also he thinks I should keep my NHS appt. incase nerve conduction studies are warranted.

I’m just posting here to see what treatments whether prescription meds or supplements people here have found helpful for peripheral neuropathy?
 
So sorry to hear this @Rachox, it seems so unfair when you yourself work so hard and have amazing numbers! Wishing all the best and hope for a good outcome for you. It goes to show sometimes no matter how good our control is, or how vigilant we are this T2 menace can just come along & bite ya bum! Maybe take solace in the fact that even though this has happened who knows how much worse it could have been if you hadn’t taken such good care of yourself
 
Rachox said:
I posted a few months ago about my diagnosis of Raynauds following colour changes in my toes and ice cold feet. I have been using GTN patches to improve the circulation in my feet. The Raynauds has improved but doesn’t explain other feelings I am getting in my feet, namely tingling and numbness with burning sensations particularly at night. My GP put through a referral to neurology and I now have an NHS appt, for next May!

I got worried that things would deteriorate and cause irreversible damage by then so I arranged to see a private neurologist on Thursday. He was very thorough and concluded that despite my very tight control of my blood sugars that I have peripheral neuropathy, cause though is unknown.

I now have to go back to my GP with his diagnosis and suggestions for symptomatic treatment as I can’t afford to continue with the private route. Also he thinks I should keep my NHS appt. incase nerve conduction studies are warranted.

I’m just posting here to see what treatments whether prescription meds or supplements people here have found helpful for peripheral neuropathy?
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Can't help with suggestions about treatments for the neuropathy but just wanted to send you my sympathy for the problems you've been having - it does seem so unfair especially when you have such excellent blood sugar control. I hope that you get some useful suggestions and that you get to see your GP soon to discuss options 're treatment. Sounds like it was well worth seeing a neurologist privately too to speed up the diagnosis.
 
I have an appt. with my GP 2nd Sept. It is a way off but I wanted an appt. with my own GP for continuity and he is popular, it will also give time for the private consultant’s correspondence to reach my surgery.
Thank you @Speedbird for the link, your search skills must be better than mine! I was hoping someone who’s taken Alpha Lipoic Acid would post as I know it’s a possible supplement that helps PN
 
I have neuropathy in both feet. Numb and tingly like I'm wearing ten pairs of socks. My blood flow is excellent so there's not a problem other than the discomfort.
I have my feet checked regularly just to make sure I'm ok. I also watch for injuries as they could turn serious. At the moment my right toe is covered by a plaster after I knocked it and shattered the nail. Never felt it happen. It's healing just fine though.
 
Michael 1701 said:
I have neuropathy in both feet. Numb and tingly like I'm wearing ten pairs of socks. My blood flow is excellent so there's not a problem other than the discomfort.
I have my feet checked regularly just to make sure I'm ok. I also watch for injuries as they could turn serious. At the moment my right toe is covered by a plaster after I knocked it and shattered the nail. Never felt it happen. It's healing just fine though.
Click to expand...
Do you take any meds for your neuropathy?
 
Rachox said:
Do you take any meds for your neuropathy?
Click to expand...
Hi @Rachox, sorry I read this last week but just wasn't in a good position to respond.

I was diagnosed ( :meh: ) a couple of weeks ago and prescribed Amitriptyline 10mills take for a week and if no benefit up the dose to 20mils for a week still no effect up the dose to 30mils for a week. You get the idea. GP said to come back when the pills run out and we will see what dose works best for me so they could start me of on which ever dose works best.

Side effects feeling hung over in the morning for a bit. His recordation was to the take the pills as early as 6pm as they last for 12 hours so I would sleep through the side effect.

Week one.
The first night was great I felt drowsy by 10pm and in bed shortly after that, which was great an early night been wanting one of those since forever. I usually go to bed around 1am just not sleepy before then of more accurately I haven't figured out how to turn the TV of before then.

By night 3 I was back up to around 1am before I felt sleepy even though I felt very groggy from the pills.
By night 5 I was back up through the middle of the night couldn't sleep with cold feet. :coldfeet:
When I did sleep it was restless and nonrestorative. :banghead:
Hangover side-effects from day one, that lasted for a few hours after I got up.

Week 2 - please refer to week one.
Same thing couple of days early nights restless nights sleep no clear effect on pain management cold feet keeping me up at nights and nonrestorative seep.
Hangover side-effects got worse, lasted till about 3pm just completely lethargic no motivation.:hungover:

So I stopped taking them an feel better.:happy:

That was my experience optimistic at first really grateful for the initial early nights but overall not a positive outcome.

This is not to say if you are prescribed any painkillers for nerve damage you won't have a more positive experience, I hope you do, just wanted to share incase my experience could be of any help. Again sorry I should have responded last week, solidarity and all that, sometimes it just helps to know other can relate to your condition, you are not alone.

Fluffy socks & hot water bottles should be top of Christmas list from Santa, this year. ;)
:bag:
 
There is no Spoon said:
Hi @Rachox, sorry I read this last week but just wasn't in a good position to respond.

I was diagnosed ( :meh: ) a couple of weeks ago and prescribed Amitriptyline 10mills take for a week and if no benefit up the dose to 20mils for a week still no effect up the dose to 30mils for a week. You get the idea. GP said to come back when the pills run out and we will see what dose works best for me so they could start me of on which ever dose works best.

Side effects feeling hung over in the morning for a bit. His recordation was to the take the pills as early as 6pm as they last for 12 hours so I would sleep through the side effect.

Week one.
The first night was great I felt drowsy by 10pm and in bed shortly after that, which was great an early night been wanting one of those since forever. I usually go to bed around 1am just not sleepy before then of more accurately I haven't figured out how to turn the TV of before then.

By night 3 I was back up to around 1am before I felt sleepy even though I felt very groggy from the pills.
By night 5 I was back up through the middle of the night couldn't sleep with cold feet. :coldfeet:
When I did sleep it was restless and nonrestorative. :banghead:
Hangover side-effects from day one, that lasted for a few hours after I got up.

Week 2 - please refer to week one.
Same thing couple of days early nights restless nights sleep no clear effect on pain management cold feet keeping me up at nights and nonrestorative seep.
Hangover side-effects got worse, lasted till about 3pm just completely lethargic no motivation.:hungover:

So I stopped taking them an feel better.:happy:

That was my experience optimistic at first really grateful for the initial early nights but overall not a positive outcome.

This is not to say if you are prescribed any painkillers for nerve damage you won't have a more positive experience, I hope you do, just wanted to share incase my experience could be of any help. Again sorry I should have responded last week, solidarity and all that, sometimes it just helps to know other can relate to your condition, you are not alone.

Fluffy socks & hot water bottles should be top of Christmas list from Santa, this year. ;)
:bag:
Click to expand...
Thanks for your reply. I have been on Amitriptyline for a number of years to try to help with my arthritic joint pain at night. Like you I had an increasing dose and reached 75mg the maximum dose for pain. It helps me sleep by making me sleepy but isn’t helping with this new nerve pain. The neurologist mentioned Pregabalin or Duloxetine. I have an appt. with my GP next week to discuss these meds and also at the neurologists suggestion get bloods done for vitamin deficiencies, immunological and inflammatory markers, so we’ll see if they throw up any clues.
 
I was prescribed Pregabalin when I had sciatica (because opiates have no pain-killing effect on me). It eventually worked/sciatica disappeared just as I got up to max advised dose.
Got sciatica again a year later, took pregabalin tablets I had left over from first time - it worked/sciatica disappeared more quickly - before I ran out of tablets.

I have seen people (not GPs) on social media saying it shouldn't be prescribed for sciatica because it is too dangerous. This was after my 2nd bout of sciatica - i didn't follow it up, since it had appeared to work for me with no ill effects.
 
Thanks for your reply @ianf0ster yes I’m thinking I’d prefer to try Pregabalin as Duloxetine is an anti depressant primarily and I’ve been on them in the past and having come off them successfully I realised how blunted all my emotions were, and I don’t want to go back there.
 
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