A chance to influence treatment

xyzzy

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Undeserving authority figures of all kinds and idiots.
So, just back from the GP. He really is a great guy here's why.

Around 3 weeks ago I had my quarterly Cholesterol test. The result was a summons to see the doc as my lovely cholesterol levels had risen from 3.8 last time to 5.9 in 3 months. After getting over the shock I realised something must be wrong. When I started lchf my levels were around 5, 3 months in they fell for the first time in years to under 4 then with no real change in diet another 3 months and they had nearly doubled. This made no sense. Anyway I promptly booked an appointment to see the GP today but already had an appointment to see the DSN early last week, just the standard chat to see how I am getting on. She agreed with me that the results were weird and quickly got another blood test done. The results I found out today were 6 months on lchf and my cholesterol is 4.1 so a marginal increase.

Full results for those who are suspicious of lchf and cholesterol are

Total 4.1
HDL (Good) 1.23 (about the same)
LDL (Bad) 2.44 (up a bit)
Trigs 0.94 (down a bit)

Ratio 3.33

So as far as I can see I am "normal"

I went onto discuss my concerns that maybe "normal" is too low based on the Hunt 2 study

http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2753.2011.01767.x/pdf

which shows for men that 5.5 appears to be the safest total cholesterol level. I also mentioned I was wary of statins because despite drinking tonic water most nights I am still occasionally getting leg pains and cramps etc and this was a known statin side effect.

The doc says...

"I know you are on an Atkins style diet as you've told me and I can tell from your hBA1c you still are. So your fat intake is high but tell me truthfully how much fat do you eat?" I said "around 60% of my diet" His response was "give up the statin for a couple of months and lets see if it gets rid of your cramps and it will show the effect it will have on your cholesterol levels given your diet. Are you ok with that?" I said yes I would try. On the blood test form for Lipids he has actually written "On Atkins style diet" which made me smile.

Next I said "I would like you to up my Ramipril to 10mg a day as on the diet I'm on I am more concerned about high protein rather than high fat" and I know Ramipril protects kidney function. "Good man" he said and promptly wrote the new script.

Finally and this is the key bit as I was leaving he said. "All those printouts you gave ****** the DSN a while back here's my email address can you send them to me and I'll post back links to studies I think are interesting for you to read"

So apart from what he's asked for what studies should I send a GP who specialises in diabetes care? Here is a good chance to influence care in my neighbourhood as I would guess as a specialist GP he will talk to others. Remember to a GP DB is a three pronged thing not just diet and hBA1c but also blood pressure and cholesterol. Anyone got any good ideas?
 

MaryJ

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842
Hi Steve

What a fantastic doc and appt

Nothing to offer just wanted to say :clap: to you and your doc

mary x
 

xyzzy

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Undeserving authority figures of all kinds and idiots.
swimmer2 said:
Well there's my holiday reading sorted :?

Not quite understanding Swimmer :) If you mean how come the difference in the two test results well its confused the doc and the dsn as well. All 4 tests I've had since diagnosis have been fasting tests. I know you can "cheat" your trigs as they can vary quite rapidly over a period of days but LDL & HDL values are supposed to only vary slowly over weeks and months. The one inconsistency of the 4 results was however the length of time I fasted. For all the 3 good results I ate my main meal at around 6.30pm and had nothing apart from water until 11.30am the next day. For the one bad test I had my main meal finished around 8.00pm and then had the blood taken at 8.30am the next morning. I can see how this might have effected the trigs score but it was the bad LDL score that had shot up in the rogue test. In fact the trigs score in the rogue test and the re-test were very similar.
 

ladybird64

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Dishonesty, selfishness and lack of empathy.
Zizz..I think Swimmer was referring to Stephen's link. :wink:
 

RoyG

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To many to mention.
Good result though overall my GP would be happy if I got 4.1, keep up the good work, I took some literature from Dr R Lustig and Dr M Vernon in with me and gave it to my GP, wonder if he read any? I doubt it. But he was not against me doing LC diet, but then again if I told him I was on a marsh mallow diet I think he would have said the same because all he wanted to do was get next patient in and telling me I have used up my allotted time. Not the greatest GP in the world.
 

angieG

Well-Known Member
Messages
725
Type of diabetes
Type 1
Treatment type
Insulin
Not sure what exactly you have in amongst the stuff you are sending, but are there any good conclusive studies that support testing for type 2's?
Also with regards your LDL rogue figure, I was reading on the Dr Bernstein forum yesterday that someone had been experimenting with a home test kit and their LDL level came out higher if they ate foods with lower chlorestrol levels before than if they had eaten meals with high levels. Some of the others were going to try it out. Sorry can't post link as using my mobile but will try tomorrow if you wanted it.
Regards
Angie
 

didie

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People who think they are always right and ram their opinions down your throat. No-one knows everything. Those who shout loudest are usually the ones who actually know the least.
Could you print out the wording of the petition and wave that under your doctor's nose.? Maybe he'll discuss that with his fellow GP's and start a discussion about how important access to strips for routine testing is for Type 2 diabetics.
 

xyzzy

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All great ideas thanks. I sat up till 1.00am composing the letter and got loads of neat things in including as people have suggested some studies showing testing works for T2.

Here are all the links and suggestions I used. Some are ones he specifically asked for.

Mentioned Bernstein, Taubes and Lustig books and YouTube interviews etc.

Kost Vid Diabetes for the "Moderate reduced" and "Mediterranean" regimes, pointed out they accept some patients do VLC and what to do if they did.

http://translate.google.co.uk/trans...rtikelkatalog/Attachments/18471/2011-11-7.pdf

Swedish Type 1 study as it shows research at semi Ketogenic diet levels like I do and of course shows positive results for low carb for T1's Mentioned the same researchers did a similar successful study at the same levels for T2 but have lost the link.

http://www.dmsjournal.com/content/pdf/1758-5996-4-23.pdf

The ADA 2012 position statement that states the 130g / day RDA value for carbs

http://care.diabetesjournals.org/content/35/Supplement_1/S11.full.pdf.

borofergies link for more low carb works evidence

Good lchf advice

http://blogg.passagen.se/dahlqvistannika/?anchor=my_lowcarb_dietary_programe_in
http://www.dietdoctor.com/lchf

IDF's 7.8 recommendation

http://www.idf.org/webdata/docs/Guideline_PMG_final.pdf

Read http://bloodsugar101.com/ site an excellent resource for those who want to control their levels and minimise the risks of progression.

Individualised care plans the joint US Europe position statement

http://care.diabetesjournals.org/content/35/6/1364.full.pdf+html

Why testing works for T2's

http://www.medicine.ox.ac.uk/bandolier/band148/b148-3.html and
http://www.journalofdst.org/September2007/pdf/VOL-1-5-ORG1-WEBER.pdf

I have others but thought that was enough to get on with. I wrote the email more as a story as to why I found all those things valuable as a T2 patient.