After a few "good" weeks....

Kaz261

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413
Type of diabetes
Reactive hypoglycemia
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Diet only
It wasn't a very appealing idea I have to say!

I did hypo 3 hours after the glucose load, which I why I don't understand how I could have hypo'd tonight an hour after eating far less carbs. I'm wondering if it could have been a result of what I ate earlier in the day? I always eat a small pear just before walking to school at 3pm. Today's was quite a bit bigger than normal and when I got home I called at a friends for coffee. She forgot I had black coffee and put quite a lot of milk in. Me being polite (and not really thinking), drank it anyway. I may have been bouncing up and down? Who's to know! I'm off to bed shortly and tomorrow's another day!

I'm glad you're on the mend! None of us need the extra challenge of illness!

Take care and thanks for the advice again tonight guys. Don't know where I'd be without you all sometimes. This forum really is a fantastic support x
 
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Brunneria

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There have been times when i have hypoed a short time after eating.

It is usually when the food was slow to digest, or my digestion was slow, or my bg was plummeting before i ate.

What happens is that the food does not release its glucose in time to catch the drop.

It is the one time when i wish i had taken some quick release carbs, but since it is nearly impossible to predict, AND quick release carbs send me seesawing, for hours or days, i still don't think it is a good idea.

A better solution would (for me) be a slow release snack when i start cooking the meal. Problem solved.
 
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Lamont D

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That sounds about right, you have been bouncing around, you see, you are working it out, just think about the day as a whole. Sometimes the last bite may effect the next meal, etc. You know what I mean!
If I start eating in the morning, I have to eat regularly all day.
If I fast, I don't need to eat at all. Bloods stay where they are.
It's madness!
 
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Kaz261

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Messages
413
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
I definitely felt like I was dropping before I ate, so that could be a real possibility Brun. My husband said that he doubts I would have even digested the meal in under an hour, so to spike and drop in that time seems doubtful to me.

It's all good fun isn't it
 
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Kaz261

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Messages
413
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
For my future reference, what slow release snack would you opt for? I was trying to hold out until dinner. In truth I probably needed to eat half an hour before dinner was ready, but didn't know what to have that wouldn't put my level up. I had 3 or 4 cashew nuts but that obviously wasn't enough! x
 

Lamont D

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Messages
15,943
Type of diabetes
Reactive hypoglycemia
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I do not have diabetes
Unfortunately, and I'm not arguing with hubby but I have digested 'fast food's' well within an hour and spiked after half an hour to forty minutes, when tracking my levels, through my experimentation of what I shouldn't eat!
So to say that you can't!
That's why we are weird!
 
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Brunneria

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We always have some sliced cheese in the fridge, for emergencies.
And i like peanut butter (any nut butter).
A 9 bar would do too.
Heck, even standing at the fridge door taking a small swig of milk...

It is hard to advise you though, because your body will process those foods differently from mine... Plus there is so much variability in the speed of drop, and portion size is relevant too.
 
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Kaz261

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Messages
413
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Thanks Brun. I have backed off a bit on the testing lately but I think I need to get back on it!
 
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lindisfel

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Hi guys,
I read somewhere that if one eats protein the pancreas releases both insulin and glucagon at the same time.
I wonder why ? It could really mess up a reactive hypoglycemics blood glucose!


Given the encouragement we get here we can all work through our various problems or come to terms with them.
atb
D.
 
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Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Hi guys,
I read somewhere that if one eats protein the pancreas releases both insulin and glucagon at the same time.
I wonder why ? It could really mess up a reactive hypoglycemics blood glucose!


Given the encouragement we get here we can all work through our various problems or come to terms with them.
atb
D.

I think that is normal for everyone wether normal, diabetic or RH!
Our trigger seems to cause the imbalance. Which other hormones, like dpp4, has a big influence. Alpha and beta cells etc.
It's part of the problem and makes it so complicated!
Probably not the answer but my best guess after a look around!

Sorry Derek!
 
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Kristin251

Expert
Messages
5,334
Type of diabetes
LADA
Treatment type
Insulin
It is very frustrating Kristin251. I'm not type 1 but it sounds like we experience the same symptoms. You go along quite nicely for a while and then things unexpectedly change! It's such a pain and I wonder if I can ever live a "normal" life again
emoji17.png

Funny thing, I have found as a T1 I need to eat the exact same way as when I was T2. Both equally frustrating. IR happens when it feels like it regardless of if we eat the same thing EVERY DAY! I like to take as little insulin as possible. If I don't get it right I get the 'funny feeling" even though BS ranges are from 80-105 normally. All good but I have noticed the lower I wake up the higher I go. If I wake up at 90 I usually stay around there. If I wake up at 78 I jump to 1oo, same Bf (guac) I call it BS BS
 
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Kristin251

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LADA
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Insulin
I too need to eat as I make dinner. What works for me is a little Guac (always saved over from BF, about 1/4 avocado) or a couple macadamias or a few pieces of celery. Holds me off, doesn't raise me and also starts satisfying me so I am not a ravenously hungry person when I actually sit down to eat. I am hungry but by the time I get close to done I am satisfied (I am rarely satisfied, I love to eat) . I do find TOO much of any macro to throw me off. I need p and f and veg t L and D. I can't eat C or P for BF or I have a roller coaster day
 
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Kaz261

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Messages
413
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Well guys, I woke with a 5.7 this morning and feeling very tired and jittery after last nights episode. I've had my usual breakfast of Greek yogurt, small amount of muesli, almonds, raspberries, blueberries and cinnamon and took a steady walk to school. My toes felt a little numb on the way back from school, which was a odd! Will see how the rest of the day goes xx
 
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Linagirl

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Messages
457
Type of diabetes
Don't have diabetes
Hey Kat sorry to hear you are having these problems.

I saw the Hughes specialist last week and he said that although I have the antibodies I am not showing any physical signs of having tha syndrome and there are carriers of the antibodies who never suffer from any adverse effects Apparently 50% of the population would test positive. Anyway he is running all the tests for lupus and other autoimmune conditions so I have to wait and see.

The more I think about it though I am quite sure I have mild dumping syndrome with connected RH. I've been reading a lot about it and I have all the digestive issues of the dumping people but I don't have constant upset tummy that some have. However sometimes I eat and get a headache right away and it's lot blood sugar related so I don't know.

Hopefully when I see the consultant for RH we will start to put together a pictures of what is happening to me.

I get wobbly sometimes too on levels that don't make sense to me. That's why I wonder if I am dumping. I've also found out that many other dumpers et stutters when their blood is spiking and they all suffer with blood glucose control. It's all very interesting.

Emma xx
 
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Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
The more you learn, the more you want to know!

You could start giving me and Brun tips and information soon!
 

lindisfel

Expert
Messages
5,661
Better than getting up the night and having a couple of spoonfuls of sugar like I used to do some years ago! :) ;)

We always have some sliced cheese in the fridge, for emergencies.
And i like peanut butter (any nut butter).
A 9 bar would do too.
Heck, even standing at the fridge door taking a small swig of milk...

It is hard to advise you though, because your body will process those foods differently from mine... Plus there is so much variability in the speed of drop, and portion size is relevant too.
 

Kaz261

Well-Known Member
Messages
413
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Hey Kat sorry to hear you are having these problems.

I saw the Hughes specialist last week and he said that although I have the antibodies I am not showing any physical signs of having tha syndrome and there are carriers of the antibodies who never suffer from any adverse effects Apparently 50% of the population would test positive. Anyway he is running all the tests for lupus and other autoimmune conditions so I have to wait and see.

The more I think about it though I am quite sure I have mild dumping syndrome with connected RH. I've been reading a lot about it and I have all the digestive issues of the dumping people but I don't have constant upset tummy that some have. However sometimes I eat and get a headache right away and it's lot blood sugar related so I don't know.

Hopefully when I see the consultant for RH we will start to put together a pictures of what is happening to me.

I get wobbly sometimes too on levels that don't make sense to me. That's why I wonder if I am dumping. I've also found out that many other dumpers et stutters when their blood is spiking and they all suffer with blood glucose control. It's all very interesting.

Emma xx
I'm really pleased they don't think you've got Hughes syndrome. Must have been a big relief! Sounds like you're getting quite a few tests. I'm pleased for you and hope you get some answers very soon X.

I think I should read up on dumping syndrome as I get very shaky at levels I shouldn't. My tummy is often a little off on waking (I know, too much info!).

I'm doing ok on the whole. May be I was getting a little complacent and pushing things too far. I know I had a "hypo" last night as I've felt rough for most of the day today. Luckily my hubby was able to work from home. Always feel better having him around when I'm a bit iffy!

Keep us posted on how things are going and what tests you're having. You never know it might point some of us in the right direction for further investigations ourselves.

Hope all goes well for you.

Take care
Kaz X
 
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Kristin251

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5,334
Type of diabetes
LADA
Treatment type
Insulin
Sometimes I think 'dumping syndrome' is simply when the bolus of insulin doesn't match up with the meal perfectly. I feel that way after most meals for a short time. Usually around 45 min after I take insulin and it lasts a little less than an hour. I used to check ALL the time and numbers were good so now I just try to accept that feeling but it sure doesn't make me look forward to meals knowing what will follow. I also need to be VLC to lessen the effect. When I ate 15-20 c /meal I was all over the place for an hour or two. Up and down or down and up. Finally I just ate veggies for carbs and it evened out much better but I still get it. The less insulin I take the less it effects me. I had far too many lows eating carbs so the less insulin takes the fear out of that. In theory we should be able to eat carbs and take insulin but neither seem to match up in timing. I also can't eat large portions of protein or I run out of insulin before it gets there and I will go low 1st if I take enough insulin to cover 1/2 my protein. I would have to split boluses and not always interested in that either.
 

Kaz261

Well-Known Member
Messages
413
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Sounds very complicated Kristin251. Until I had RH I never realised how difficult and frustrating it is for people living with diabetes, particularly type 1. The lack of decent advice from the NHS is concerning too! You definitely feel like you're going it alone. Thank goodness for this forum! Take care xx
 

Linagirl

Well-Known Member
Messages
457
Type of diabetes
Don't have diabetes
I don't take insulin Kristin. I have weird symptoms of collapse if I overeat a carb loaded meal. I haven't managed to catch a true hypo level at the time
Of collapse but I believe it is the spike and drop that send my body into shock. I have a blood pressure drop that makes me pass out (almost) x