carol43
Well-Known Member
Sending love and good wishes for the future
Remember we are here to support you best we can online. . There's PM if you don't want to be public. I went in on Thursday
An awfully long wait, but one I know oh too well.I spent the first 27 hours in a chair as there were no beds available, but now I am in the respiratory ward.
More hugs your way. And @Antje77 is right, you have a say in how all this goes.Good point. My mind is racing to the end months of life, trying to focus on the now is hard. I am so scared of suffering.
What a wonderful post!An awfully long wait, but one I know oh too well.
Sorry that you needed hospital treatment, but agree with @Antje77 as counter intuitive as it seems, hospital can be the best place to get a little restful peace, from the world.
And another big up for advocating more vocally for yourself.
A tad cliche, but you truly are worth it .
If we don't stand up for ourselves,
Who else will.
And who would have as vested an interest as ourselves ?
Gather such notions in, as shields for the battles ahead.
( If it helps, I stopped being as concerned how people see me.
I will at times, do what I do and put myself in a bubble where no one else is really there.
I feel Insulated from others view of me
Or at least their opinions of me.
And the truth is, most do similar or just don't care enough to look or comment.)
Thinking of you & wishing you all the best .
How are you and the family doing?I am back in hospital. I went in on Thursday with a chest infection. My left lung is surrounded by pleural fluid and has collapsed. I am being looked after and comfortable. My infection is being treated so then they can try to drain my left lung and reinflate it. They are also sorting out some meds for my anxiety. I feel safe and cared for, which is also helping my husband to cope.
I spent the first 27 hours in a chair as there were no beds available, but now I am in the respiratory ward. They have also given me an infusion to help bring my blood calcium levels down, as they were dangerously high.
I am learning to be my own advocate, to communicate clearly and based on logic and reason, and be gentle but insistent.
i am home, after being in hospital for 12 days. I have my first oncology appointment on the 27th Feb. I still cant eat as i have no appetite and feel full after a few mouthfuls. I am keeping my fluids up. I would love to have you visit if it were possible xxxHow are you and the family doing?
I’m hoping you’ve made it back home and have gotten some relief by now. Have you been able to get a plan in place for your ongoing care and emotional support?
As ever hugs and good thoughts being sent your way, wish I was close enough to visit (big assumption on my part you’d even want that lol)
Glad to hear you got sometime in hospital, they can be noisy at times and hope you managed to get some rest and they were able to support you.i am home, after being in hospital for 12 days. I have my first oncology appointment on the 27th Feb. I still cant eat as i have no appetite and feel full after a few mouthfuls. I am keeping my fluids up. I would love to have you visit if it were possible xxx
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