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all is not well
- Thread starter lucylocket61
- Start Date
JoKalsbeek
Expert
I do hope immuno is an option... I know it's not exactly a solution, but it can buy precious time. I'm so deeply sorry the news wasn't good...
Hugs, hugs and more hugs,
Jo
lucylocket61
Expert
Thank you. It counts for much. I am still lapsing into panic mode and finding it hard to find my courage and acceptance.
I wasn't going to respond to this thread, not because I don't care, but because I actually don't know what to say. Shocked is probably a good word and I don't blame you for lapsing into panic mode and finding courage and acceptance hard. You are another person that I've read hundreds or thousands of messages from. You don't know me because I've never responded, but I do read what you write and it's people like you who help me. Thank you
Very much thinking of you. All the very best.
daffy1
Well-Known Member
So sorry to hear your news , I hope you have people around you to give you the support you need. I know a forum isn’t as personal but there will always be someone here for you
JohnEGreen
Master
You are in my thoughts and prayers
I have been nagging St. Peregrine daily on your behalf, he being the patron saint of cancer patients.
Just checking in with you Lucy, you’re in my thoughts and prayers every day xx
Yes, mine too
HSSS
Expert
I think that it would be a miracle if it were otherwise And I’m sure that almost everyone would be the same. Be kind to yourself and seek out and accept all the support you can get.
MrsA2
Expert
Those are very exacting aims for so early after diagnosis...maybe set your sights on just getting through each day, with whatever range of emotions surfaces?
lucylocket61
Expert
Good point. My mind is racing to the end months of life, trying to focus on the now is hard. I am so scared of suffering.
Can you make an appointment with you GP, the hospital or Macmillan especially to address your fears?
I've seen cancer up close in 3 people, and while they've all had some rubbish nights, none of them had to suffer more than they were willing to accept. Talking about this with the ones who help you can help a lot, both practically by talking over all the possibilities to keep you from suffering, and emotionally, by listening to and acknowledging your fears.
At least that's how it went with my father, my close neighbour and my good friend.
How are you @lucylocket61 ?
Have another hug.
Have another hug.
lucylocket61
Expert
I am back in hospital. I went in on Thursday with a chest infection. My left lung is surrounded by pleural fluid and has collapsed. I am being looked after and comfortable. My infection is being treated so then they can try to drain my left lung and reinflate it. They are also sorting out some meds for my anxiety. I feel safe and cared for, which is also helping my husband to cope.
I spent the first 27 hours in a chair as there were no beds available, but now I am in the respiratory ward. They have also given me an infusion to help bring my blood calcium levels down, as they were dangerously high.
I am learning to be my own advocate, to communicate clearly and based on logic and reason, and be gentle but insistent.
Dang, what a nasty bit of bad luck!
That part sounds much better thankfully.
Hospital can also be a place where you can get a much needed break from everything life throws at you.
Well done on getting better in advocating for yourself in the most effective way, sending good vibes.
