All these different types of Diabetes?

[MillieT]

Please excuse me but when i last spoke to a specialist at my old diabetic clinic, i did mention about if i could be anything else rather than type II, i was told categorically that all type II's and other than that shall end up taking insulin I was told that there is only type 1 & II diabetes, when and in the other clinics i went to i said I read it on here they always say not to take any notice of this particular forum because it is not endorsed like the .org site is, i have said this before.

So. the .org site is officially recognised by the NHS and this one is not and everything i read here can be taken with a pinch of salt, this i was told was because those over at the .org site are professionals and went to college etc and are certified whereas all that are here are not and as such I should not base anything I do regards my diabetes on anything from this site..

This does make me wonder, i went against everything my NHS clinics said- three of them now and I hear nothing from them, I am a black sheep, I tried going keto and having a fat based diet, believe me they really scorned such a diet and said it shall make me very ill... I am now booked into Desmond in Feb next year, I am absolutely terrified of what is going to happen because they may tell me i need to be eating carbs again and to have a healthy balanced carb diet- their diet is making me so ill i really am losing the will and just waiting to die. i'm sore, i'm infected, i am on fire in my water works with blood residue and it always comes back as fine and clear?!, they say, drink some cranberry,..... how to get to 15mmol + in a instant hit.

Things i have noticed.. i do eat a lot, i am constantly hungry, i itch all over, insanely so, i'm told that it's because i am sensitised from the lymphoma/radiotherapy? i drink huge amounts of water a day, now in my 3-4 litres, i wee for England, i'm tetchy, ratty and can be quite abusive and i honestly do not mean to be, i get terrible brain fog, i get pains in my head and behind my eyes, crippling they are, my joints ache and they say exercise shall help, what is the use when i'm struggling in no time at all, i bought a bike and only used it once, i have an exercise bike too and a couple of minutes and i feel like i'm having a stroke and cannot breathe... i am seriously overweight, like 3-4 stones if i remember rightly, i'm really embarrassed saying all of this here :|

 

[Brunneria]

Oh miffli, I really feel for you.

I can't offer you any advise other than to get yourself, and your list of symptoms off to your doctor, and say
'Help Me! I don't know how much of these symptoms are from my lymphoma and its treatment, my medications, or my diabetes - heck, I don't even know what type of diabetes I have! Please can you test me for EVERYTHING. Vitamin deficiencies (including B12 and Vit D), ferritin levels, neuropathy, kidneys, all the other types of diabetes... Please help!'

And one more thing - yes, there are other types of diabetes than just T1 (incl LADA) and T2, there is MODY, steroid induced, other medication induced, bronze diabetes caused by haemochromatosis, diabetes insipidus and T3c caused by pancreatic insufficiency. And others. I believe there are several other T3s. Some organisations even claim that some Alzheimers is a form of insulin resistance in the brain, so a form of T2.

Please don't let yourself be fobbed off and sent away without further investigation.

 

[Mr_Pot]

As regards more than 2 types of diabetes here is a page from the .org site that they seem to believe.

 

[Daibell]

Wow. The 'specialist' at that clinic was not a specialist I'm afraid. As others have said there are many variants of diabetes types and these forums cover those. Your specialist doesn't seem to understand that those T2s who have excess weight (about 90%?) may have insulin resistance due to body fat deposits which might make adding insulin later in life not very productive as T2s with excess weight will often have too much insulin rather than too little. You do need a glucose meter so get one if you haven't one. Check whether your local surgery has a good DN (diabetic nurse). Mine is excellent, manages my insulin and recommends a low-carb diet. BTW I don't believe the NHS 'recommends' the .org site. I subscribe to these forums and the .org forums. Both are good but this forum covers a wider spread of information and is not influenced by NHS/DUK sometimes dated teaching. There is no commercial interference with these forum discussions. I'm appalled that your specialist should recommend against using this site. I would suggest you also go to the NICE Diabetes website which is good overall for official recommendations to GPs for diagnosis and treatment

 

[ianf0ster]

I am now booked into Desmond in Feb next year, I am absolutely terrified of what is going to happen because they may tell me i need to be eating carbs again and to have a healthy balanced carb diet- their diet is making me so ill i really am losing the will and just waiting to die.

Hi miffli,
Many warm hugs to you.
Nobody can force you to go on a DESMOND course. I asked about experiences with them in these forums and decided that at best I already knew more about my T2D than they would; and at worst I would waste a whole day arguing with them or just biting my tongue - so not worth it for me.

Neither can anybody force you to eat things that you don't want to eat - especially ones that make you ill.
I can't tell from your post if you are currently eating LCHF/Keto, and currently getting all the awful symptoms you list, of if those are what you get when you try eating so called 'healthy carbs'.

Perhaps you should show the BICS approved 'Sugar Equivalent Infographics of Dr David Unwin (an NHS GP) to your GP, DN or other healthcare professional who advises eating lots of carbohydrates. They can be found here: https://phcuk.org/sugar/

 

[JoKalsbeek]

Please excuse me but when i last spoke to a specialist at my old diabetic clinic, i did mention about if i could be anything else rather than type II, i was told categorically that all type II's and other than that shall end up taking insulin I was told that there is only type 1 & II diabetes, when and in the other clinics i went to i said I read it on here they always say not to take any notice of this particular forum because it is not endorsed like the .org site is, i have said this before.

So. the .org site is officially recognised by the NHS and this one is not and everything i read here can be taken with a pinch of salt, this i was told was because those over at the .org site are professionals and went to college etc and are certified whereas all that are here are not and as such I should not base anything I do regards my diabetes on anything from this site..

This does make me wonder, i went against everything my NHS clinics said- three of them now and I hear nothing from them, I am a black sheep, I tried going keto and having a fat based diet, believe me they really scorned such a diet and said it shall make me very ill... I am now booked into Desmond in Feb next year, I am absolutely terrified of what is going to happen because they may tell me i need to be eating carbs again and to have a healthy balanced carb diet- their diet is making me so ill i really am losing the will and just waiting to die. i'm sore, i'm infected, i am on fire in my water works with blood residue and it always comes back as fine and clear?!, they say, drink some cranberry,..... how to get to 15mmol + in a instant hit.

Things i have noticed.. i do eat a lot, i am constantly hungry, i itch all over, insanely so, i'm told that it's because i am sensitised from the lymphoma/radiotherapy? i drink huge amounts of water a day, now in my 3-4 litres, i wee for England, i'm tetchy, ratty and can be quite abusive and i honestly do not mean to be, i get terrible brain fog, i get pains in my head and behind my eyes, crippling they are, my joints ache and they say exercise shall help, what is the use when i'm struggling in no time at all, i bought a bike and only used it once, i have an exercise bike too and a couple of minutes and i feel like i'm having a stroke and cannot breathe... i am seriously overweight, like 3-4 stones if i remember rightly, i'm really embarrassed saying all of this here :|

*HUGS*

If you feel better doing low carb, do low carb. It's your body, your health, you can't be forced to follow a diet that makes you miserable. When it comes down to it, I've seen many, many medical professionals.... And today I actually met the second one in three years time, who didn't just know about low carb, but had actually started following it himself, as did his wife. Neither diabetic, just felt it was making them healthier people. It's slow going when it comes to getting the word out, but it IS getting out there.

It sounds like you may have a UTI, which is also why they're advising cranberries... It's to make the urine more acidic, so the bacteria die off.... They feed on the sugar in your urine. So if your blood sugars are high, the UTI will persist, no matter how much cranberry/d-mannose you use. (Or apple cider vinegar or or or...). I've had three confirmed UTI's this past year, related to my turning 40... I got rid of them in 24 hours, because I'm on keto and I flushed it out, used d-mannose/cranberry and apple cider vinegar. I didn't need antibiotics, just drank a lot and made my urine as acidic as possible, and quite sugar-free. It worked. With your blood sugar levels I'd try and get a course in antibiotics though, because with that much sugar in your usine.... You really need an MD to sign off on some medication.

As for mentally... The higher my bloodsugars were, the more depressed and anxious I was. And yes, suicidal. I still have my dark days, but that is what they are: days. Not ever lasting years of feeling like there's a black gaping hole of hopelessness in my chest. That was the high bloodsugars talking. It got my personality disorder to be less.... Disorderly.

I'm not a medical professional. I am a medical mess though. And I do a whole lot better walking my own path... You do whatever works for you, what makes you feel better. And don't take the forum's word for it: Use your meter. It won't try to convince you of anything, won't try to sell you on some dogma or another... It'll just tell you objectively what's working for you, and what isn't. We're just random people on the internet, we could be telling you anything. The meter... Nope. That's just an instrument. No bias, no misguided agenda.

Take care of yourself, whatever way you need to. (And please do get that UTI taken care of, those things can be nasty!!!)

HUGS, again!
Jo

 

[Lamont D]

No one's mentioned brittle diabetes!

There is many more metabolic syndrome symptoms and conditions.
There are many food intolerance and allergies conditions.
There is many types of hormonal conditions that affect blood glucose levels.
And there is Hypoglycaemia, of which there are quite a few types!

I was misdiagnosed with prediabetes and T2 for over a decade, doctors don't have the necessary knowledge to sort out what is exactly wrong with you and how food effects each of us!
I was lucky to find an endocrinologist who recognised the symptoms and ordered the tests necessary for a true diagnosis.

Keep fighting for your health, don't give up!

 

[Chook]

Medical professionals are supposed to advise and support us in controlling our diabetes - definitely not bully us which it seems from your post that is exactly what they are doing.

They can't force you to eat a diet that disagrees with you and if they try to then report them for bullying and coercive behaviour.

i chose to eat low carb and only told the diabetes nurse a couple of years later when she was all gushy about how good my HBA1C was and how well the meds were working - i explained I was low carbing and hadn't been taking the meds. She threw her hands up and told me it was the worst thing i could possibly do because our brains need carbs to survive. I laughed and said I'd been eating this way for two years so by her reckoning I should be long dead. Nowadays they seem a bit more aware of low carb but don't mention it as an alternative to meds for the newly diagnosed.

 

[DCUKMod]

Please excuse me but when i last spoke to a specialist at my old diabetic clinic, i did mention about if i could be anything else rather than type II, i was told categorically that all type II's and other than that shall end up taking insulin I was told that there is only type 1 & II diabetes, when and in the other clinics i went to i said I read it on here they always say not to take any notice of this particular forum because it is not endorsed like the .org site is, i have said this before.

So. the .org site is officially recognised by the NHS and this one is not and everything i read here can be taken with a pinch of salt, this i was told was because those over at the .org site are professionals and went to college etc and are certified whereas all that are here are not and as such I should not base anything I do regards my diabetes on anything from this site..

This does make me wonder, i went against everything my NHS clinics said- three of them now and I hear nothing from them, I am a black sheep, I tried going keto and having a fat based diet, believe me they really scorned such a diet and said it shall make me very ill... I am now booked into Desmond in Feb next year, I am absolutely terrified of what is going to happen because they may tell me i need to be eating carbs again and to have a healthy balanced carb diet- their diet is making me so ill i really am losing the will and just waiting to die. i'm sore, i'm infected, i am on fire in my water works with blood residue and it always comes back as fine and clear?!, they say, drink some cranberry,..... how to get to 15mmol + in a instant hit.

Things i have noticed.. i do eat a lot, i am constantly hungry, i itch all over, insanely so, i'm told that it's because i am sensitised from the lymphoma/radiotherapy? i drink huge amounts of water a day, now in my 3-4 litres, i wee for England, i'm tetchy, ratty and can be quite abusive and i honestly do not mean to be, i get terrible brain fog, i get pains in my head and behind my eyes, crippling they are, my joints ache and they say exercise shall help, what is the use when i'm struggling in no time at all, i bought a bike and only used it once, i have an exercise bike too and a couple of minutes and i feel like i'm having a stroke and cannot breathe... i am seriously overweight, like 3-4 stones if i remember rightly, i'm really embarrassed saying all of this here :|

Miffli - I can't comment at this time whether this forum is NHS endorsed, but it's Low carb App is, and is available on prescription to T2s. Furthermore, one of the medical advisors, Dr David Unwin had content on the RCGP's site, for GP training.

On this forum, the Moderators are members, living with diabetes. The Admins are employees of diabetes.co.uk .

On the .org site, they do have some existing employee moderators, but what their professional standing is, I have ni idea. Howewver, they recently were advertising for Mods, on an employee basis, and I am pretty much certain their requirements were not for health care professionals.

Sounds like there really is a lot of misinformation out there, one way or another.

Vis-a-vis your ongoing health challenges, I agree with @Brunneria that a good, broad spectrum bloods panel could be very useful indeed, to try to pin down a few things.

 

[Daphne917]

@miffli you must do what is best for you - people can advise but it’s up to you whether you take it particularly if you feel it’s not for you and, more importantly, making you feel unwell. I was invited to DESMOND but declined because I was on holiday and by the time the second invite came through I had reduced my hba1c through stopping taking Statins, eating less carbs and ignoring the eatwell plate.