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Another Idiopathic Postprandial Misfit

Discussion in 'Reactive Hypoglycemia' started by AZEric, Aug 5, 2020.

  1. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi @Ambero
    Welcome to our forum.
    This thread is now over eight weeks old. I doubt you will get a response.
    Have you read any other thread on here?
    What are your symptoms?
    Have you had any tests, such as a recent blood panel tests,? Hba1c?
    Do you have a monitor to check your blood sugar levels?

    Sorry about the questions.
    But if we're to help you, a bit more information about your symptoms would help.

    Keep safe.
     
  2. Ambero

    Ambero · Newbie

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    No I haven’t read any other threads yet I just got a bit excited.
    My symptoms are mainly extremely cold/numb hands and feet.
    Pins and needles sensations in my lips.
    Extremely pale.
    Extreme fatigue.
    Feeling dizzy.
    Heart palpitations.
    Headaches.
    Slight confusion and forgetful.
    Clumbsy
    Lack of appetite but when I eat something I get an intense feeling of hunger afterwards
    I am definitely not myself and feel really irritable and can’t seem to find the words I want to say at times.
    I have been following a ketogenic diet for around a year due to having a diabetes test and being borderline I have lost over 4 and a half stone and was feeling absolutely fantastic, when I decided I didn’t want to lose any more weight I suppose I have upped my carb intake and gone a little mad over the Christmas period and started feeling pretty horrendous, due to the dizziness etc I have carried on eating higher carb thinking I maybe wasn’t eating enough which has given me carb cravings again.
    Spoke to my doctor just after Christmas waited a week and a half for a blood test as he thought I was anemic even though I take iron tablets and then another week and a half for a call back, he basically said all my results were perfectly fine and that my symptoms were psychological as physically there is nothing wrong.
    I have today before I found your thread been looking at monitors but I have absolutely no clue, I maybe need to do a bit more reading but my head is in a bit of a spin.
    Today is the first day my hands and feet have felt warm but I have hardly eaten so tomorrow I am going to get a pen and paper and monitor how I am feeling according to what I have eaten any other information or advice will be greatly received and thank you so much for your reply. Amber
     
  3. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    I will tag @Brunneria to give you the information about a glucose monitor.
    We, of course cannot diagnose you but do have a real good look at the threads.
    And also have a look at the low carb forum, there might be something that you are eating that could be causing this.
    I believe you should be asking for a referral to see a specialist endocrinologist, who can get you the tests to diagnose you.
    Finally, if all the blood panel tests come back normal, and if you have had your hormones tested. Then only a specialist can help you. If you need advice about how to your dietary issues please ask.

    But, it will do no more harm, if you reduce your carbs and sugars, and change your dietary intake to what your blood sugar levels are telling you.

    Keep safe
     
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  4. Artemis23

    Artemis23 · Newbie

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    I'm commenting because I seem to have this too. The stories here mimic my own uncannily. Putting my own out there for anyone else combing the internet for this issue... there isn't much otherwise! But thoughts/feedback are also appreciated.

    I've had this since my teens.
    All the typical hypoglycemic symptoms after eating, especially after high sugar foods, but not after fasting. Tremors, weak, fatigue, irritable, foggy, sweating, chills, pale, etc etc.

    Eating a snack fixes the symptoms.

    I also find I feel really tired even after all the other symptoms subside. Like my body is exhausted from going haywire.

    First doc I talked to put me on antidepressants, which changed nothing but did make me motion sick.
    Second doc shrugged and told me that "that's common in young thin women."
    Third (this month) told me that I'm just getting it from breastfeeding and my vegan diet. That on its face makes no sense, because I've had this since I was a teen, which was about a decade before going veg and two decades before having kids.

    Like others here, I have naturally low blood pressure. 100/60

    I do have mild hypothyroidism, but it has been under good control for a decade now.

    I do not have depression or anxiety or any other mental illness. I do get moody about the things I don't get done or can't accomplish when I get symptoms.

    I've personally found that keto is unnecessary. But I do need balanced meals with complex carbs, protein, and fat and I need to eat every 3 or 4 hours. For example, I can do well with a PB on whole wheat toast in the morning, but cereal is a no-go. Even "high protein" advertised cereals don't work.

    I can skip breakfast and be fine. I did some intermittent fasting, and that was fine too.

    Again, I'm putting this out there so any other poor sufferers can see they aren't alone even if the docs won't recognize it. I don't have any answers I'm afraid.
     
  5. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi @Artemis23
    Welcome to the forum.
    Have you got a glucometer to test your blood sugar levels when the symptoms start?
    The reason I ask is because I have been through the mill and was diagnosed with reactive hypoglycaemia.
    If you had a glucose monitor, it would help you to find out what is going on.

    If you have a similar metabolic issue and struggling all the time with the symptoms, maybe, I can suggest some other ways of trying to cope with it.

    The thing is with my condition is that I'm carb intolerant, so I am in ketosis to stop the symptoms and going hypo. And the most important thing is that my health improved so much in ketosis and I rarely have a hypo.

    You are right to find you're balance and if it's working, well that is ok.
    But these conditions are triggered by foods that spike you and it is the quick spikes that are causing the symptoms, unless of course, and it has been a thread about this syndrome called flat line hypoglycaemia.

    I know that you have read this thread but there is more on the syndrome and about other conditions of similar symptoms and reactions.

    Keep safe
     
  6. Artemis23

    Artemis23 · Newbie

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    Thanks for the quick reply, Lamont D!

    I do have a gluco-meter. My husband (who has experience with T1D family members) suggested I should track it. My numbers don't seem to go outside the normal range. Or so my doc told me when I showed him my log (but of course, he's also the third doc I mentioned above).

    So, for reference, I get the symptoms around the 80s or 70s. My spikes can go up to 195 after really hugh sugar/refined carb meals (white flour pancakes with jam, for example). But I guess it doesn't go too high too often because my A1C is normal (I forget the exact number).

    I could try to pay attention to what specific foods trigger the episodes rather than thinking in simple/complex carb terms.

    I'm going to go check out the flatline hypo thread too. Thanks for the pointer.
     
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  7. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    It really doesn't matter what your Hba1c levels are, that is normal for types of hypoglycaemic conditions, it is the spike from normal is the number you are looking for.
    And yes, trial and error all foods, I got the surprise and disappointment that I cant have chip buttie any more.

    Keep safe and let us know how you get on.
     
  8. MissyA

    MissyA · Newbie

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    Wow! I have been going through the same craziness. I am an RN and of course went on my own journey trying to figure out what was wrong with me. My Endocrinologist wound up sending me to Mayo for further testing. After 7 months of testing and them not coming up with anything, I started my own research again. This is when I found out about IPS. Sent an email to my endocrinologist at Mayo telling him what I found and guess what? Yep he agreed with diagnosis. You would think after being seen and tested by the best of the best that they could have figured this out. Here’s the kicker, now that we know what it is, I am being sent back to my PCP for future visits. It’s laughable. Of coarse, there aren’t very many doctors out there that even know about this, so I am on my own. I am hoping that I can get some help from this forum. I too always have a normal BS, but my labs do show a higher than normal insulin level. An insulinoma has already been ruled out amount several other things. I have been out on disability from this problem and would really like to get my life back. Oh, btw, I have gained 50lbs since this all started and can no longer stand myself. Little meals dont work for me. I am literally eating every 2-3 hours. I am being held hostage by this IPS!
     
  9. Brunneria

    Brunneria Other · Guru
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    hi and welcome :)

    the little meals of endless carbs is terrible for me too.
    It just turns into a miserable blood glucose rollercoaster.

    my suggestion is to cut the carbs drastically (or completely, for a day or two). Eat meat, fish, eggs, cheese, butter, Mayo, and green veg to satiety.
    And see what happens.

    I found that a breakfast of just eggs and bacon would give me a sustained comfortable morning. Such a relief. Yet the moment I introduced carbs, no matter how ‘healthy’, even fruit or milk, the rollercoaster would kick off.
     
  10. D Kumar

    D Kumar · Newbie

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    Hii, everyone, i am having similar symptoms of post prandial syndrome, since last 8 years, earlier i had no idea about this didease , changes multiple foods, oils, over these years. I came around this diagnosis recently, i am now trying low carb diet . I have noticed i am having symptoms after taking dairy products ( even cheese or ghee). Eggs i cannot take , i think certail cooking oil also i m not tolerating, i dont know exactly whats going on, i am getting depressed , my academic performance has decresed and i am not able to focus properly. I am thinking on starting acarbose. Kindly help
     
    #30 D Kumar, May 5, 2021 at 4:50 PM
    Last edited by a moderator: May 5, 2021
  11. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi, post prandial syndrome is when you get the symptoms of hypoglycaemia without going below hypo levels. There are similar conditions, a variation of symptoms and what happens when you eat. I have lactose intolerance, and cannot eat dairy products, I only use saturated fats, and avoid all vegetable oils or processed oils like Palm oil and certain other cash crops that goes into manufactured foods. I can't eat carbs, it triggers a hormonal response that insulin response is driving my blood glucose and levels down.
    If you see my avatars, I have Reactive Hypoglycaemia. I control blood glucose levels with.food, yes, I use intermittent fasting and very low carb, and I am in ketosis most of the time. We do recommend a low carb diet until you discover the food that is giving you the symptoms. Until you find those foods, usually carbs and sugars, you can get control and feel better. From my experience acerbose doesn't change the symptoms, it is designed to help with digesting carbs, but if you trigger the insulin overshoot response, you will still get the symptoms.
    Have you read the threads on Hypoglycaemia in the forum, there is a lot of knowledge and experience on how food is so important to your health. Eating what is healthy for me, maybe is not healthy for you, your intolerance may be higher or lower, and the balance of the hormonal response, insulin resistance and more impacts on your health.

    Hope this helps.
     
  12. D Kumar

    D Kumar · Newbie

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    Hii, thanks
    Can you tell me about your diet plan in short
     
    #32 D Kumar, May 6, 2021 at 4:32 PM
    Last edited by a moderator: May 6, 2021
  13. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Every food is fresh
    Meat with fat on, mainly roasted or on grill, bacon fried with eggs in goose fat.
    Salad vegetables, non cooked vegetables
    Eggs, plenty of them, so many ways to cook.
    Mushrooms, onions and other veg in a soup or casserole.
    Fish, but not seafood, that is by choice and taste.
    Chicken curry, made by me and you can make a low carb version.
    That is basically it, but it all depends on where you live.

    The best way to learn, about a low carb diet, is either read the forum on low carb on here or dietdoctor.com, the recipes and low carb ideas will help you through this period.

    Keep safe, hope that helps.
     
  14. D Kumar

    D Kumar · Newbie

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    Hii, i am not able to tolerate any plant based oil including olive oil,canola oil. Till last year i was tolerating mustard oil very well, but now i am intolerant to that as well, I tried eating roasted fish and chicken in air frier without any oil , but thats also giving me symptoms (fish > chicken). Also i am not tolerating milk and egg. I wonder if its something to do with oil composition. I am not able to take any fat currently and i am quite worried regarding the same. In cereals i am tolerating barley and oats well but cannot tolerate pulses. Fruits i am able to tolerate like apple, small mango, berries, guava. Kindly suggest any alternatives .
     
  15. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi again,
    I have intolerance to oils or additives to food, I do use saturated fat and Greek yoghurt for my fat balance. I can tolerate a small bowl of Greek yoghurt, with some berries and I have an apple everyday.
    And to make it a bit more confusing, we are different in what we can eat, but all my food is cooked fresh (salad excepted) I am very careful of my food. It took me months to work it all out. Eat to your meter.
    Take it easy on yourself, the more you find out the balance diet you are trying for, will happen. Be patient.
    If the food you eat and testing makes you ill, then you would be wise to avoid it totally.

    What you are doing is useful and the right path to take. Discovery is vital if you are going to get healthy again.

    My best wishes, stay safe.
     
  16. Richyyy

    Richyyy · Newbie

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    Hi, glad I found this site
    So this suddenly started happening to me 3 weeks ago. I was at A&E last week thinking I was diabetic but guess what all was ok!!
    So I’d had the symptoms for 2 weeks straight 24/7 before I went to A&E, shaking, heart palpitations and a loss of energy! I’ve been able to manage it recently in the last week by eating fats, so full fat Greek yoghurt and by far the best thing to turn it around is cheddar cheese!
    I’ve not had the symptoms long enough to find out what will work long term. I get this more in the morning after breakfast now but random foods and meals can trigger it. I was starting to think that I just wasn’t eating enough fat and then I found this thread!
    I was out walking early today and I had it about 2 hours after breakfast, I ate 2 choc chip nut bars and that took it off! Could that be the fat again in the nuts?
    Btw prior to this starting 3 weeks ago I could eat anything with no allergies! I have had stress this last year or so! Thanks
     
  17. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi @Richyyy
    Welcome to the forum
    In my experience of having issues with certain foods that natural fats such as in dairy, yoghurt, eggs and meat that I doubt that it could only be peanut, usually most types of nuts are fine. Peanuts in the cereal bar, as well as the make up of the bar, would make me ill. This type of product could have all sorts of junk sugars and carbs never mind the sweeteners and hidden process ingredients.
    What are you having for breakfast?
    If you read through the other threads, most of us who have similar symptoms, find that they have an intolerance to carbs.
    Experiment with some of your favourite foods and if you are finding that it is certain foods, tell your doctor, because you need tests to get a diagnosis.

    Keep safe
     
  18. Hamiltonfields

    Hamiltonfields · Newbie

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    Hi All

    Glad to have found you though there is some confusion in the thread as it is headed Idiopathic Postprandial syndrome, which is what I think I have, but there are posters with Postprandial hypoglycaemia which is a different thing, I think. Though the symptoms appear the same. Weakness, shakiness, anxiety, irritablity about 2 hours after eating. But IPPS sufferers have a steady blood sugar count at normal levels whereas Postprandial Hypoglycaemia sufferers suffer from low blood sugar after meals.

    So IPPS is low blood sugar symptoms without the low blood sugar.

    But the thread is great because I have had several weeks of frightening episodes after eating meals. These last until the middle of the next day at least and my Doctor has tested for everything they can think of and found no answers as yet. But last night Googling my symptoms brought me to IPPS and it is the nearest fit I have found so far.

    None of you have mentioned sore stomachs proceeding their episodes. That seems to be when I have them but I don't have sore stomachs with every meal and so don't have episodes with every meal.

    I will try some of the diet suggestions on the forum and it looks like it will be trial and error. Will post any improvements I find.
     
  19. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi @Hamiltonfields and welcome to our forum.

    Your summary is spot on.
    Because I have RH and to distinguish the difference between RH and IPPS, even though the only difference is blood levels. I think that is why the confusion needs to be sorted and you have done it in your post.
    The stomach cramps you mention, I don't get the symptoms of that, but there are gut bacteria that can be similar to it and it is known that bacteria does cause symptoms, and is a cause of Hypoglycaemic symptoms. I had heliocobacter pylori about fifteen years ago. Similar to a ulcer and treated by antibiotics.

    As I have already said in a previous post. Post prandial hypoglycaemia is not used now because that is a description of all Hypoglycaemia after food. It is now referred as Reactive Hypoglycaemia, there are a few different types of Hypoglycaemia, one of which is called Late Reactive Hypoglycaemia. If you graze through the threads, you will find many different types from many posters. @Brunneria and I have different types of Hypoglycaemia, she has had it for most of her life, where I have had it only something like fifteen (ish) years.
    The problem with the conditions is labelling and having enough people to do research. We all have different triggers, we all get the symptoms at different times, we all have our own story, different reasons we get the conditions and the only treatment for most of us is not eating carbs. The reason is because a certain percentage of carbs is the trigger to symptoms and most of us are carb intolerant. The NHS hasn't a clue mostly, the dietary advice is the eat well plate (crazy) or eat every three hours, not sustainable and irrelevant if you don't have carbs.
    It is your future health that you need to understand what happens when you get the symptoms. I'm 66, and as fit and healthy as I can be, and totally in control of my blood glucose levels. Only dietary changes will do this for me. But it might be different for you.
    Let us know how you get on.
     
  20. SarahTee

    SarahTee · Member

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    @Ambero
    @AnnetteTS


    For those in the UK, I wonder if you could try the endocrinologist who appeared on the BBC program "Diagnosis Detectives":
    https://barbaramcgowan.co.uk/

    She seems to work for the NHS as well as having a private practice.
     
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