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Another Idiopathic Postprandial Misfit

Discussion in 'Reactive Hypoglycemia' started by AZEric, Aug 5, 2020.

  1. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi @Ambero
    Welcome to our forum.
    This thread is now over eight weeks old. I doubt you will get a response.
    Have you read any other thread on here?
    What are your symptoms?
    Have you had any tests, such as a recent blood panel tests,? Hba1c?
    Do you have a monitor to check your blood sugar levels?

    Sorry about the questions.
    But if we're to help you, a bit more information about your symptoms would help.

    Keep safe.
     
  2. Ambero

    Ambero · Newbie

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    No I haven’t read any other threads yet I just got a bit excited.
    My symptoms are mainly extremely cold/numb hands and feet.
    Pins and needles sensations in my lips.
    Extremely pale.
    Extreme fatigue.
    Feeling dizzy.
    Heart palpitations.
    Headaches.
    Slight confusion and forgetful.
    Clumbsy
    Lack of appetite but when I eat something I get an intense feeling of hunger afterwards
    I am definitely not myself and feel really irritable and can’t seem to find the words I want to say at times.
    I have been following a ketogenic diet for around a year due to having a diabetes test and being borderline I have lost over 4 and a half stone and was feeling absolutely fantastic, when I decided I didn’t want to lose any more weight I suppose I have upped my carb intake and gone a little mad over the Christmas period and started feeling pretty horrendous, due to the dizziness etc I have carried on eating higher carb thinking I maybe wasn’t eating enough which has given me carb cravings again.
    Spoke to my doctor just after Christmas waited a week and a half for a blood test as he thought I was anemic even though I take iron tablets and then another week and a half for a call back, he basically said all my results were perfectly fine and that my symptoms were psychological as physically there is nothing wrong.
    I have today before I found your thread been looking at monitors but I have absolutely no clue, I maybe need to do a bit more reading but my head is in a bit of a spin.
    Today is the first day my hands and feet have felt warm but I have hardly eaten so tomorrow I am going to get a pen and paper and monitor how I am feeling according to what I have eaten any other information or advice will be greatly received and thank you so much for your reply. Amber
     
  3. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    I will tag @Brunneria to give you the information about a glucose monitor.
    We, of course cannot diagnose you but do have a real good look at the threads.
    And also have a look at the low carb forum, there might be something that you are eating that could be causing this.
    I believe you should be asking for a referral to see a specialist endocrinologist, who can get you the tests to diagnose you.
    Finally, if all the blood panel tests come back normal, and if you have had your hormones tested. Then only a specialist can help you. If you need advice about how to your dietary issues please ask.

    But, it will do no more harm, if you reduce your carbs and sugars, and change your dietary intake to what your blood sugar levels are telling you.

    Keep safe
     
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  4. Artemis23

    Artemis23 · Newbie

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    I'm commenting because I seem to have this too. The stories here mimic my own uncannily. Putting my own out there for anyone else combing the internet for this issue... there isn't much otherwise! But thoughts/feedback are also appreciated.

    I've had this since my teens.
    All the typical hypoglycemic symptoms after eating, especially after high sugar foods, but not after fasting. Tremors, weak, fatigue, irritable, foggy, sweating, chills, pale, etc etc.

    Eating a snack fixes the symptoms.

    I also find I feel really tired even after all the other symptoms subside. Like my body is exhausted from going haywire.

    First doc I talked to put me on antidepressants, which changed nothing but did make me motion sick.
    Second doc shrugged and told me that "that's common in young thin women."
    Third (this month) told me that I'm just getting it from breastfeeding and my vegan diet. That on its face makes no sense, because I've had this since I was a teen, which was about a decade before going veg and two decades before having kids.

    Like others here, I have naturally low blood pressure. 100/60

    I do have mild hypothyroidism, but it has been under good control for a decade now.

    I do not have depression or anxiety or any other mental illness. I do get moody about the things I don't get done or can't accomplish when I get symptoms.

    I've personally found that keto is unnecessary. But I do need balanced meals with complex carbs, protein, and fat and I need to eat every 3 or 4 hours. For example, I can do well with a PB on whole wheat toast in the morning, but cereal is a no-go. Even "high protein" advertised cereals don't work.

    I can skip breakfast and be fine. I did some intermittent fasting, and that was fine too.

    Again, I'm putting this out there so any other poor sufferers can see they aren't alone even if the docs won't recognize it. I don't have any answers I'm afraid.
     
  5. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Hi @Artemis23
    Welcome to the forum.
    Have you got a glucometer to test your blood sugar levels when the symptoms start?
    The reason I ask is because I have been through the mill and was diagnosed with reactive hypoglycaemia.
    If you had a glucose monitor, it would help you to find out what is going on.

    If you have a similar metabolic issue and struggling all the time with the symptoms, maybe, I can suggest some other ways of trying to cope with it.

    The thing is with my condition is that I'm carb intolerant, so I am in ketosis to stop the symptoms and going hypo. And the most important thing is that my health improved so much in ketosis and I rarely have a hypo.

    You are right to find you're balance and if it's working, well that is ok.
    But these conditions are triggered by foods that spike you and it is the quick spikes that are causing the symptoms, unless of course, and it has been a thread about this syndrome called flat line hypoglycaemia.

    I know that you have read this thread but there is more on the syndrome and about other conditions of similar symptoms and reactions.

    Keep safe
     
  6. Artemis23

    Artemis23 · Newbie

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    Thanks for the quick reply, Lamont D!

    I do have a gluco-meter. My husband (who has experience with T1D family members) suggested I should track it. My numbers don't seem to go outside the normal range. Or so my doc told me when I showed him my log (but of course, he's also the third doc I mentioned above).

    So, for reference, I get the symptoms around the 80s or 70s. My spikes can go up to 195 after really hugh sugar/refined carb meals (white flour pancakes with jam, for example). But I guess it doesn't go too high too often because my A1C is normal (I forget the exact number).

    I could try to pay attention to what specific foods trigger the episodes rather than thinking in simple/complex carb terms.

    I'm going to go check out the flatline hypo thread too. Thanks for the pointer.
     
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  7. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    It really doesn't matter what your Hba1c levels are, that is normal for types of hypoglycaemic conditions, it is the spike from normal is the number you are looking for.
    And yes, trial and error all foods, I got the surprise and disappointment that I cant have chip buttie any more.

    Keep safe and let us know how you get on.
     
  8. MissyA

    MissyA · Newbie

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    Wow! I have been going through the same craziness. I am an RN and of course went on my own journey trying to figure out what was wrong with me. My Endocrinologist wound up sending me to Mayo for further testing. After 7 months of testing and them not coming up with anything, I started my own research again. This is when I found out about IPS. Sent an email to my endocrinologist at Mayo telling him what I found and guess what? Yep he agreed with diagnosis. You would think after being seen and tested by the best of the best that they could have figured this out. Here’s the kicker, now that we know what it is, I am being sent back to my PCP for future visits. It’s laughable. Of coarse, there aren’t very many doctors out there that even know about this, so I am on my own. I am hoping that I can get some help from this forum. I too always have a normal BS, but my labs do show a higher than normal insulin level. An insulinoma has already been ruled out amount several other things. I have been out on disability from this problem and would really like to get my life back. Oh, btw, I have gained 50lbs since this all started and can no longer stand myself. Little meals dont work for me. I am literally eating every 2-3 hours. I am being held hostage by this IPS!
     
  9. Brunneria

    Brunneria Other · Moderator
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    hi and welcome :)

    the little meals of endless carbs is terrible for me too.
    It just turns into a miserable blood glucose rollercoaster.

    my suggestion is to cut the carbs drastically (or completely, for a day or two). Eat meat, fish, eggs, cheese, butter, Mayo, and green veg to satiety.
    And see what happens.

    I found that a breakfast of just eggs and bacon would give me a sustained comfortable morning. Such a relief. Yet the moment I introduced carbs, no matter how ‘healthy’, even fruit or milk, the rollercoaster would kick off.
     
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