Another Idiopathic Postprandial Misfit

[Starke]

Hello everybody
I have also symptoms of hypoglycemia with normal blood sugar since many years. I saw many doctors but nobody knows what that could be. At least a doctor says that this is a problem with the mitochondria. He gave me many Supplements. I take them since 2 months. But it didn't change my problem.
I read there that the keto diet could help. Someone who tried it could say me how long it takes to get an improvememt of the symptoms with this diet?
And @Starke I have some questions to you:
Is it exactly right that with the berberine it first gets worse before it gets better?
You mentioned nac, Do you mean n-acetyl-cysteine?
Did you tried the keto diet?
Have you still hypoglycemic episodes?
I really hope for answers.
All best, Marena

Hello Marena,

Thank you for your message.

It’s not too many questions.

Rh is overwhelming. I suffered in a food desert (only protein and very limited carbs) 11 years.

Don’t lose hope!!! I am free! You can be too, and I have tips for you that will make it easier to get things under control. I know how it is. I had periods where I HAD to eat every 2 hours. For most of the 11 years it was every 3 1/2-4 hours.



Tip 1) STRESSORS: you will have stressors that bring on the hypoglycemic episodes. And they are difficult to pinpoint and measure but once you get a hold on them, and a few other tricks that helped me so much, you will regain control and be able to work. I was also unable to work, but am now performing HIGH energy shows full time: singing and dancing like crazy.



Stressor examples

(Yours may be different)



A) stress . If you have an emotionally stressful situation. It will bring on more episodes. I meditate every morning to keep a handle on it.



B) heat, if I over-heat I have an episode



C) cold. If I get to cold I have an elsiode



D) hypoglycemients, I may have made up the word, but the concept is very real. What I mean is substances that effect blood sugar levels, even if they don’t have sugar in them. Anything that helps diabetics is usually blood sugar dropping and to be wary of if one has RH. For example, cinnamon. Not your friend. Lowers blood sugar levels. Also: beets, artificial sweeteners, most spices, I could only eat a little bit of parsley. The only green I could eat occasionally was arugula. I could eat seaweed.



Coffee releases a lot of insulin. Be careful. So does most caffeine. Only after protein, not on empty stomach. Onions, garlic, and alcohol also drop sugar levels.



E) exercise. The more energy output, I did, the closer to a crash, the sooner I had to eat. Sometimes talking too much would do it.



Tip 2) Raw, steal cut, thick, uncooked oatmeal is your friend. Not the instant stuff. You can sprinkle on your food, or eat with water. It has a low glycemic index when eaten raw. When cooked it gets sweet. My husband who also suffer from RH eats it with every meal. He says it’s what saved his life.



Tip 3) the Order in which you eat your food is essential. Follow the glucose goddess on Instagram. Always protein first. Carbs last. Don’t do her vinegar trick. It will crash you. She speaks to people in general not RH but gives good understanding of basic metabolic wisdom.



4) if you eat carbs, make sure they’re whole grain. I could do some whole grain crackers. After protein!



5) read the nutritional label of everything. It’s not enough that it says zero sugar. Read the back how many grams of NATURAL sugar does it have. I couldn’t eat anything with over 1.5 grams of natural sugar. There are some whole wheat pastas, but not all, that I could tolerate. You have to read the label. And stay away from Malitol and other artificial sweeteners, some of which have a higher GI than sugar.lemon dropped me. Sodium bicarbonate dropped me. Vinegar is a huge no. Licorice will send you to the floor. So will vanilla. Many things affect blood sugar even if they don’t have sugar in them.



6) get enough sleep . It affects your body’s ability to regulate sugar and to heal and can send the next day’s blood sugar into a a spiral. Making the room completely dark helps release more melatonin which helps. As does going to bed before midnight.



7) know what your early warning signs are. This took me years to get a handle on. And it can be different at different times!!!!! I had to hard-wire re-train myself to be aware of how I was feeling inside all the time!!!



And eat at the first sign of ANy of your triggers. This helps stop the roller coaster sugar ride, and helps from getting to low in the crash when it can take hours or even days to fully recover.



Did I have a dip in energy, feel tired. Most of the time it was because a crash was coming in.



Was I feeling shakey?



Am I hungry?



Is my thinking less clear? Crash coming?



Was I irritable? Crash coming.



Learn what your symptoms are and LISTEN to them as early as possible. Don’t just finish the task you are doing (this was hard for me). Drop everything and eat.



8) never go anywhere without protein (or uncooked raw oatmeal). I used to carry both even if I was showing to the mailbox. I like the dried cheeses that come like protein bars. I would put one and a thermos of raw uncooked steel cut oatmeal in all of my purses, and also my car.



9) take supplements to build up the nutritional strength of your body. Some non-negotiables are MAGNESIUM. If youve never taken it before be careful as it can lower your blood pressure, but you need it. Vit D, at least 2000 IU a day (I take 5000 per day, a good b-complex, and vitamin c. I also take q-10. Glutathione might be good for you. Helps with the gut as well. I took chromium picolate or whatever it’s called that’s supposed to help. Didn’t help me.



10) pay attention to how much fat you eat. Fat in food is your friend, makes the sugar be absorbed more slowly. The balance of fat and protein with a small amount of whole grain carbs is what would keep me steady and functioning.



You can see Dr. Walsh because his consultations are on zoom. The only prohibiting factor is the price: something like 650$ for 45 minutes. Totally freakn worth it. No other doctor I went to understood my blood tests. He knows how to analyze you sugar to insulin ratios.as I said I have no affiliation with him. He’s just the only doc I met who has ACTUAL experience with many types of RH patients.



What I mean by that, is your reason for RH may be different than someone else’s. He also has a 1 hour online course that I took for doctors for $100 on how to deal with RH patients. It’s excellent. It explains 10 different causes for RH and what to do about each different case.



Another aspect is the emotional one. It is said that diabetes usually is an indicator of lack of sweetness in one’s life, so diabetics overcompensate with a sweet tooth. Well, RH certainly is physical lack of ability of managing sweetness. I’ve read usually having to do with a big shock or trauma or bitterness that entered suddenly. Usually dealing with the emotional correlations of any disease helps it resolve or cure faster on the physical side.



Of course, the “cure” for RH is not immediate nor a one-step process. It’s many, many steps that build on your health and the all the sugar and insulin processes in your body, re-training your body how to be able to handle sugar and insulin. It’s doing a re-haul of your life.



I did so many things, acupuncture, years of, IV vitamin injections, urine therapy, hydro-colon therapy, etc etc.



Biggest help was the berberine, but every treatment got me closer in some way, and of course with the berberine, be ready for the sugar rollercoaster. Cause it will drop one, while fortifying one’s system. Walsh recommended 1000 mg per day in 2 doses. I take it once at 500 mg. I started with just one pill every 3-5 days after food



The NAC will also drop one. So I always introduced one thing at a time, until i could get a handle on the sugar levels. Have a bit of rest. And then introduce a new thing.



Some of my staples that I learned to enjoy:



A) almond milk: zero sugar, zero sweeteners. Good with the oatmeal.



B) 100% cacao powder helps. It’s a powerful antioxidant with a lot of magnesium.



C) Peanuts and cashews. Couldn’t eat straight up almonds, too much sugar.



D) Low sugar, high fat cheese.



E) monk fruit. If you haven’t tried it. Check it out. It’s VERY sweet and natural but doesn’t affect sugar levels. It dropped my husband, but I could take it in small amounts after meals.



As I said, don’t lose hope. It’s a huge educational process. As one has to educate oneself, because nobody knows about it. But as I said, I eat dessert now! I eat carbs! I eat veggies! I eat whatever I want. But not in whatever order I want. I always easy protein first. And I always eat protein. I’m not going to eat a plate of just pasta. I also can go hours and hours without eating…. Sometimes. The body and how it uses sugar is not always the same.





During my 11 years I had 2 episodes where I was better. Could eat salads but it relapsed. Keep going, keep expanding your metabolic knowledge and practices. You can free yourself. Absolutely.



Did you get an ultrasound on your kidneys to rule out tumor?

Were you pregnant recently?

Did you have a gastric bypass-pass?

Rule out these reasons for RH first. They can be the easiest to deal with many times.



Re-read what I’ve sent. Print it out. Study it and implement tip by tip as you can. Some days are better than others. I wish I’d had someone send me all this information in one spot years ago: it’s an accumulation of years of educating myself and living through crashes. I’ve been through the fire you’re living…. Before I got a handle on my sugar I had to go lie down 5-6-7-8 times a day. And nobody understands, not the endocrinologists, and especially not friends or family because you look generallly healthy from the outside.



If I think of more tips, I will send them.



Write me any time with questions.



Much love and huge hugs,

 

[Lamont D]

Hello Marena,

Thank you for your message.

It’s not too many questions.

Rh is overwhelming. I suffered in a food desert (only protein and very limited carbs) 11 years.

Don’t lose hope!!! I am free! You can be too, and I have tips for you that will make it easier to get things under control. I know how it is. I had periods where I HAD to eat every 2 hours. For most of the 11 years it was every 3 1/2-4 hours.



Tip 1) STRESSORS: you will have stressors that bring on the hypoglycemic episodes. And they are difficult to pinpoint and measure but once you get a hold on them, and a few other tricks that helped me so much, you will regain control and be able to work. I was also unable to work, but am now performing HIGH energy shows full time: singing and dancing like crazy.



Stressor examples

(Yours may be different)



A) stress . If you have an emotionally stressful situation. It will bring on more episodes. I meditate every morning to keep a handle on it.



B) heat, if I over-heat I have an episode



C) cold. If I get to cold I have an elsiode



D) hypoglycemients, I may have made up the word, but the concept is very real. What I mean is substances that effect blood sugar levels, even if they don’t have sugar in them. Anything that helps diabetics is usually blood sugar dropping and to be wary of if one has RH. For example, cinnamon. Not your friend. Lowers blood sugar levels. Also: beets, artificial sweeteners, most spices, I could only eat a little bit of parsley. The only green I could eat occasionally was arugula. I could eat seaweed.



Coffee releases a lot of insulin. Be careful. So does most caffeine. Only after protein, not on empty stomach. Onions, garlic, and alcohol also drop sugar levels.



E) exercise. The more energy output, I did, the closer to a crash, the sooner I had to eat. Sometimes talking too much would do it.



Tip 2) Raw, steal cut, thick, uncooked oatmeal is your friend. Not the instant stuff. You can sprinkle on your food, or eat with water. It has a low glycemic index when eaten raw. When cooked it gets sweet. My husband who also suffer from RH eats it with every meal. He says it’s what saved his life.



Tip 3) the Order in which you eat your food is essential. Follow the glucose goddess on Instagram. Always protein first. Carbs last. Don’t do her vinegar trick. It will crash you. She speaks to people in general not RH but gives good understanding of basic metabolic wisdom.



4) if you eat carbs, make sure they’re whole grain. I could do some whole grain crackers. After protein!



5) read the nutritional label of everything. It’s not enough that it says zero sugar. Read the back how many grams of NATURAL sugar does it have. I couldn’t eat anything with over 1.5 grams of natural sugar. There are some whole wheat pastas, but not all, that I could tolerate. You have to read the label. And stay away from Malitol and other artificial sweeteners, some of which have a higher GI than sugar.lemon dropped me. Sodium bicarbonate dropped me. Vinegar is a huge no. Licorice will send you to the floor. So will vanilla. Many things affect blood sugar even if they don’t have sugar in them.



6) get enough sleep . It affects your body’s ability to regulate sugar and to heal and can send the next day’s blood sugar into a a spiral. Making the room completely dark helps release more melatonin which helps. As does going to bed before midnight.



7) know what your early warning signs are. This took me years to get a handle on. And it can be different at different times!!!!! I had to hard-wire re-train myself to be aware of how I was feeling inside all the time!!!



And eat at the first sign of ANy of your triggers. This helps stop the roller coaster sugar ride, and helps from getting to low in the crash when it can take hours or even days to fully recover.



Did I have a dip in energy, feel tired. Most of the time it was because a crash was coming in.



Was I feeling shakey?



Am I hungry?



Is my thinking less clear? Crash coming?



Was I irritable? Crash coming.



Learn what your symptoms are and LISTEN to them as early as possible. Don’t just finish the task you are doing (this was hard for me). Drop everything and eat.



8) never go anywhere without protein (or uncooked raw oatmeal). I used to carry both even if I was showing to the mailbox. I like the dried cheeses that come like protein bars. I would put one and a thermos of raw uncooked steel cut oatmeal in all of my purses, and also my car.



9) take supplements to build up the nutritional strength of your body. Some non-negotiables are MAGNESIUM. If youve never taken it before be careful as it can lower your blood pressure, but you need it. Vit D, at least 2000 IU a day (I take 5000 per day, a good b-complex, and vitamin c. I also take q-10. Glutathione might be good for you. Helps with the gut as well. I took chromium picolate or whatever it’s called that’s supposed to help. Didn’t help me.



10) pay attention to how much fat you eat. Fat in food is your friend, makes the sugar be absorbed more slowly. The balance of fat and protein with a small amount of whole grain carbs is what would keep me steady and functioning.



You can see Dr. Walsh because his consultations are on zoom. The only prohibiting factor is the price: something like 650$ for 45 minutes. Totally freakn worth it. No other doctor I went to understood my blood tests. He knows how to analyze you sugar to insulin ratios.as I said I have no affiliation with him. He’s just the only doc I met who has ACTUAL experience with many types of RH patients.



What I mean by that, is your reason for RH may be different than someone else’s. He also has a 1 hour online course that I took for doctors for $100 on how to deal with RH patients. It’s excellent. It explains 10 different causes for RH and what to do about each different case.



Another aspect is the emotional one. It is said that diabetes usually is an indicator of lack of sweetness in one’s life, so diabetics overcompensate with a sweet tooth. Well, RH certainly is physical lack of ability of managing sweetness. I’ve read usually having to do with a big shock or trauma or bitterness that entered suddenly. Usually dealing with the emotional correlations of any disease helps it resolve or cure faster on the physical side.



Of course, the “cure” for RH is not immediate nor a one-step process. It’s many, many steps that build on your health and the all the sugar and insulin processes in your body, re-training your body how to be able to handle sugar and insulin. It’s doing a re-haul of your life.



I did so many things, acupuncture, years of, IV vitamin injections, urine therapy, hydro-colon therapy, etc etc.



Biggest help was the berberine, but every treatment got me closer in some way, and of course with the berberine, be ready for the sugar rollercoaster. Cause it will drop one, while fortifying one’s system. Walsh recommended 1000 mg per day in 2 doses. I take it once at 500 mg. I started with just one pill every 3-5 days after food



The NAC will also drop one. So I always introduced one thing at a time, until i could get a handle on the sugar levels. Have a bit of rest. And then introduce a new thing.



Some of my staples that I learned to enjoy:



A) almond milk: zero sugar, zero sweeteners. Good with the oatmeal.



B) 100% cacao powder helps. It’s a powerful antioxidant with a lot of magnesium.



C) Peanuts and cashews. Couldn’t eat straight up almonds, too much sugar.



D) Low sugar, high fat cheese.



E) monk fruit. If you haven’t tried it. Check it out. It’s VERY sweet and natural but doesn’t affect sugar levels. It dropped my husband, but I could take it in small amounts after meals.



As I said, don’t lose hope. It’s a huge educational process. As one has to educate oneself, because nobody knows about it. But as I said, I eat dessert now! I eat carbs! I eat veggies! I eat whatever I want. But not in whatever order I want. I always easy protein first. And I always eat protein. I’m not going to eat a plate of just pasta. I also can go hours and hours without eating…. Sometimes. The body and how it uses sugar is not always the same.





During my 11 years I had 2 episodes where I was better. Could eat salads but it relapsed. Keep going, keep expanding your metabolic knowledge and practices. You can free yourself. Absolutely.



Did you get an ultrasound on your kidneys to rule out tumor?

Were you pregnant recently?

Did you have a gastric bypass-pass?

Rule out these reasons for RH first. They can be the easiest to deal with many times.



Re-read what I’ve sent. Print it out. Study it and implement tip by tip as you can. Some days are better than others. I wish I’d had someone send me all this information in one spot years ago: it’s an accumulation of years of educating myself and living through crashes. I’ve been through the fire you’re living…. Before I got a handle on my sugar I had to go lie down 5-6-7-8 times a day. And nobody understands, not the endocrinologists, and especially not friends or family because you look generallly healthy from the outside.



If I think of more tips, I will send them.



Write me any time with questions.



Much love and huge hugs,

@Starke .
I want to thank you for the time spent on your post and for your updates on how you are in control of your hypoglycaemia.
It is so interesting to compare our different approach to stop the hypos and the symptoms.
You have intrigued my interest in some of the unusual aspects of how some different food that you would think would trigger the symptoms etc, but don't.
but as repeatedly said there are many causes of hypoglycaemia, I am lead to believe mine was caused by helicobactor pylori, and a bad diet for me. Having poor intolerance, to sugars, glucose and carbs. Meant a different approach was needed, as did you and your partner.
hypoglycaemia is so individual, personal and frustratingly hard to know, what is best for your health.
And then you have to monitor what you are doing, changing as you believe could be better trying different ways, different everything, to avert the hypos.
you are right about doing something when you get the awareness of the symptoms, my first is the blurring vision and the headache behind the eyes. A signal to eat. And not the hunger feeling, which I very rarely get now.
And I use fasting.
I'm not certain that there is a cure, just good control.
And the more time without symptoms improves your health.
And that is avoiding the highs and lows.
I will have a look at the supplements and other stuff your are recommending.
My endo has always told me I didn't need them, unless I was deficient, as I was last winter in vitamin D.
But I will Google the information. And if I believe it could help, I will try.

Best wishes.

 

[Marena]

Hello @Starke
Thank you so so much for your detailed answer. I will read it again and again. It is so good to know that you find a solution for this problem. That gives hope. I already lost it.
I have some questions again:
Which dosis of the nac did you take?
How often do you still have hypoglycemic episodes? Every day?
How long did you tried keto?

Nobody made an ultrasound of my abdomen because most doctors don't believe me.
I'm not pregnant and I never was.
Also I have no bypass.

Dr. Walsh sounds really good. The only Problem is that my english is not so good. Writing und reading is ok. But to understand someone who speaks with me is a little difficult. I am from Austria and speak german. Or do you think he is someone who can speak slower that I can understand it better? Because I am very interested to him.

I also want to make this test with the food which you did. But I don't know where I can make it. Where did you made it?
Is your fasting insulin also made? Mine is made and it is normal in the lower area.
In my last blood test it showed that insulin resistance is possible. I don't know if that could be. But I found a Video from a doctor who says with insulin resistance you could have normal blood sugar and hypoglycemic symptoms because with high insulin the sugar can't get into the cells because of insulin resistance. I don't know if that could be right.
Was insulin resistance
testet at you?

My doctor gave me supplements to take: Magnesium, Vitamin D, B complex, Vitamin C, antioxidant formula which includes nac, omega 3, zinc, curcumin. I take them since 2 months but they didn't changed anything.
I am very interesting in the berberine. But my fear when it affects the blood sugar that when it gets worse that I can endure it as long until it helps. Because it is already so bad. Often the symptoms don't completely dissappear after eating. So I have to eat again. That is the worst thing of all when I have symptoms don't completely dissappear.
You mentioned you could only eat so less things. Does that mean if you eat less carbs it was better?

Thank you so much for your help and you are so right most people don't believe it and couldn't imagine how horrible this is.
Hugs back.

@Lamont D today at breakfast I ate without carbs. But it was not good. It doesn't helped against my symptoms. Was that the same as you started with keto?
So I had to eat carbs at midday.
Best wish

 

[Lamont D]

Hello
Hugs back.

@Lamont D today at breakfast I ate without carbs. But it was not good. It doesn't helped against my symptoms. Was that the same as you started with keto?
So I had to eat carbs at midday.
Best wish

Hi @Marena ,
I started low carb after a fasting test, I realised then, that I could fast for long periods, my symptoms and health improved.
Eating without carbs, all at once, is not recommended, it should be done slowly. Reducing the portion size of the carbs daily over a couple of weeks, to give your body time to adjust.
How did you feel before eating?

Your English is far better than my German. It is good.
Keep asking,
Keep safe.

Best wishes

 

[Marena]

Hi @Marena ,
I started low carb after a fasting test, I realised then, that I could fast for long periods, my symptoms and health improved.
Eating without carbs, all at once, is not recommended, it should be done slowly. Reducing the portion size of the carbs daily over a couple of weeks, to give your body time to adjust.
How did you feel before eating?

Your English is far better than my German. It is good.
Keep asking,
Keep safe.

Best wishes

Thank you for your advice to reduce the carbs slowly. I will try it.
Before eating it was ok. Every morning when I wake up I feel ok and when I start to eat I get the symptoms. But also if I don't eat in the morning I get the symptoms. So I cannot fast. So I could not do the fasting test you mentioned. Its difficult.
Thank you that you think my english is ok. I give my best.
Best wishes back.

 

[Lamont D]

Thank you for your advice to reduce the carbs slowly. I will try it.
Before eating it was ok. Every morning when I wake up I feel ok and when I start to eat I get the symptoms. But also if I don't eat in the morning I get the symptoms. So I cannot fast. So I could not do the fasting test you mentioned. Its difficult.
Thank you that you think my english is ok. I give my best.
Best wishes back.

Hi,
If you think about your day.
Because of how you feel, you are probably snacking more the you should, that is not a criticism but I know from my experience, that we just eat too much anyway, continually trying to offset the symptoms.
Finally, in the evening, you sleep, and maybe have a total of eight hours in bed.
It maybe ten hours since your last bite in the evening to your breakfast in the morning.
So that ten hours is fasting.
If you feel ok in the morning before breakfast, that means your body is symptom free?
But you feel better?
But as soon as you eat, you feel the symptoms.
If that is the case, then why eat in the morning?
This is what I do every morning, until mid afternoon.
Also I don't eat after 7-8 pm. So I know I'm not going to have a hypo around midnight.
Have a think about it.
I'm not certain why food effects you but eating less must help in some way.
I do think you need to discover which foods effect you.

Another idea I have had is. It may be an issue with intolerance to certain ingredients or just a food condition that you are unaware of.
There is a lot of issues with modern food, especially processed foods, the extra ingredients that are not in fresh food, the industrial sugars, sweetners, bad unnatural fats, even vegetable oils and other oils do not agree with a lot of people.
Grains are a major source of concern.
I recently read a report from Canada or the U.S., Saying that up to ten percent of the worlds population have metabolic or intolerance issues with wheat, oats, corn and other grains.
The majority of labels in the supermarkets, have wheat in bold letters.
Not only because of gluten but wheat intolerance itself.
I would ask your doctor to get the tests for intolerance.
I have lactose intolerance, wheat and grain intolerance, and on top of that, a carb intolerance.
I'm just trying to give you ideas.

Best wishes back at you.

 

[Marena]

Hi,
If you think about your day.
Because of how you feel, you are probably snacking more the you should, that is not a criticism but I know from my experience, that we just eat too much anyway, continually trying to offset the symptoms.
Finally, in the evening, you sleep, and maybe have a total of eight hours in bed.
It maybe ten hours since your last bite in the evening to your breakfast in the morning.
So that ten hours is fasting.
If you feel ok in the morning before breakfast, that means your body is symptom free?
But you feel better?
But as soon as you eat, you feel the symptoms.
If that is the case, then why eat in the morning?
This is what I do every morning, until mid afternoon.
Also I don't eat after 7-8 pm. So I know I'm not going to have a hypo around midnight.
Have a think about it.
I'm not certain why food effects you but eating less must help in some way.
I do think you need to discover which foods effect you.

Another idea I have had is. It may be an issue with intolerance to certain ingredients or just a food condition that you are unaware of.
There is a lot of issues with modern food, especially processed foods, the extra ingredients that are not in fresh food, the industrial sugars, sweetners, bad unnatural fats, even vegetable oils and other oils do not agree with a lot of people.
Grains are a major source of concern.
I recently read a report from Canada or the U.S., Saying that up to ten percent of the worlds population have metabolic or intolerance issues with wheat, oats, corn and other grains.
The majority of labels in the supermarkets, have wheat in bold letters.
Not only because of gluten but wheat intolerance itself.
I would ask your doctor to get the tests for intolerance.
I have lactose intolerance, wheat and grain intolerance, and on top of that, a carb intolerance.
I'm just trying to give you ideas.

Best wishes back at you.

Yes you are right. I know that I eat to much. But I can't eat less because then it is worse.
Yes so I also fast when I sleep but when I am awake I can't fast.
When I wake up in the morning most days I have no symptoms. And when I eat I get the symptoms. But the Problem is that also when I don't eat I also get the symptoms. So I have to eat because when I eat the symptoms are not so bad as when I don't eat. So it is a little different to you.

That is a really good idea with the intolerance test. I will inform myself where I could make it. But I made a stool test (hope it is the right word) where it showed that I have to much sugar in my stool. In my results it says that that could be because of carb intolerance. What do you think about that? Is there any other test to diagnose carb intolerance?

The last week I was sick. I had covid. On this days my hypo symptoms were so much better. It is always the same. Everytime when I am sick I have not so bad hypos. I don't know how that could be. Was that the same to you?

I also think that I have it because of the helicobacter like you. When you had the helicobacter did you completely cured from it with the antibiotics? Because since the helicobacter I can't eat much sweets or drink milk or eat creamy things. So I think if it is possible that the helicobacter is still in me and make this hypo symptoms. I don't know. What do you think of it?

And thank you so much for your help and your ideas.

 

[Lamont D]

Yes you are right. I know that I eat to much. But I can't eat less because then it is worse.
Yes so I also fast when I sleep but when I am awake I can't fast.
When I wake up in the morning most days I have no symptoms. And when I eat I get the symptoms. But the Problem is that also when I don't eat I also get the symptoms. So I have to eat because when I eat the symptoms are not so bad as when I don't eat. So it is a little different to you.

That is a really good idea with the intolerance test. I will inform myself where I could make it. But I made a stool test (hope it is the right word) where it showed that I have to much sugar in my stool. In my results it says that that could be because of carb intolerance. What do you think about that? Is there any other test to diagnose carb intolerance?

The last week I was sick. I had covid. On this days my hypo symptoms were so much better. It is always the same. Everytime when I am sick I have not so bad hypos. I don't know how that could be. Was that the same to you?

I also think that I have it because of the helicobacter like you. When you had the helicobacter did you completely cured from it with the antibiotics? Because since the helicobacter I can't eat much sweets or drink milk or eat creamy things. So I think if it is possible that the helicobacter is still in me and make this hypo symptoms. I don't know. What do you think of it?

And thank you so much for your help and your ideas.

What I always advise is as you reduce your carbs, increase your natural proteins and good saturated fats.
It is the amount of carbs that should be reduced. Not so much the amount of the total.
But do the changes slowly.
Being in keto, I don't get the symptoms.
It is only when I do, that I get the symptoms.
However with any virus or cold etc, this will only make things worse.
Hope you're feeling better.
I've not had covid but if I do have a illness, I fast.
I know it's hard for you and that is okay, it will become more clear how to help the symptoms as your journey happens. I think the symptoms of the virus could mask the other symptoms, as the symptoms of the virus is much worse......maybe?

I do believe the helicobactor pylori will completely alter your natural good bacteria in your gut.
So it would be no surprise to me that your intolerance to sugars and dairy. As has happened to me.
Sugars, carbs, starch, are all carbs that produce the glucose, and if not the highs and lows of blood glucose levels, then the symptoms.
And I do believe that if not cured, the majority of bad bacteria has been eradicated by the antibiotics.
The stomach symptoms, have gone but I do believe my intolerance has increased because of the bacteria and the antibiotics. I also think my taste buds have changed for the worse as well.
I can't eat sweet things now. So yuk! The sweetness is awful.

If it does help, that is why I do try and help those looking for answers.
There isn't much help, out there.

Best wishes.

 

[fireweed]

Yes you are so right. Most doctors don't believe in rare conditions. Many sad to me that it is only psychological. But I definitely know that it is nothing psychological.
When you had your hypos how where your glucose levels in this moment?
At the beginning of the year I were a CGM and I found out that I get hypo symptoms at 90 to 70, which are normal results.
My doctor gave me the supplements because he thinks I have a lack of vitamins. But I think this has nothing to do with my symptoms because they don't help.
When you start the keto diet how did you do that? Do you reduce the carbs slowly or from one day to the next? Because if I don't eat carbs my symptoms get worse.
What do you eat the whole day? I don't know how I know how much carbs I eat. It says 50 grams right? But I don't know much this is. Also I don't know how much Proteins I should eat?
Thank you so much for the information with the helicobacter. I didn't know that before. So I think it is possibly also the reason why I have this hypoglycemia.
Thank you so much for your help. I am really desperate because my symptoms are so horrible. I am also unable to work because of this problem.
All best.

Hi @Marena , I recently joined this forum. I've been wearing a CGM for my RH and I noticed that I don't only get symptoms when my blood sugar is low, I also get symptoms when it is changing rapidly - like more than 2mg/dL per minute going either up or down. Did you see any results like that?

 

[Lamont D]

Hi @fireweed ,
Yes, I feel symptoms just as you describe.
My first noticeable change is my vision, slight changes in blurring. Then a headache behind the eyes. And then a change in temperature, my mood changes, from being relaxed to a bit jumpy, and my temper to do things is not pleasant, I just want to do nothing, my attitude and attention changes. It can become too much.
Because of my anxiety over the last few years, that becomes more difficult to relax to.
I have since around the same time have essential tremors, restless legs due to my nervous system, is more noticeable when on a rollercoaster ride of blood glucose levels.
It is not very nice and finding a way to either stop or control these episodes is not easy, especially when spiking.
Not so much going down, as you can eat something low carb to judge it back, disrupt the downward trend.
I always drink a litre of water if I feel a spike coming on, don't eat and hopefully the symptoms ease.
You go from too high glucose, to high Insulin. And both are reasons for the symptoms.
Take care.
Best wishes.

 

[fireweed]

Hi @fireweed ,
Yes, I feel symptoms just as you describe.
My first noticeable change is my vision, slight changes in blurring. Then a headache behind the eyes. And then a change in temperature, my mood changes, from being relaxed to a bit jumpy, and my temper to do things is not pleasant, I just want to do nothing, my attitude and attention changes. It can become too much.
Because of my anxiety over the last few years, that becomes more difficult to relax to.
I have since around the same time have essential tremors, restless legs due to my nervous system, is more noticeable when on a rollercoaster ride of blood glucose levels.
It is not very nice and finding a way to either stop or control these episodes is not easy, especially when spiking.
Not so much going down, as you can eat something low carb to judge it back, disrupt the downward trend.
I always drink a litre of water if I feel a spike coming on, don't eat and hopefully the symptoms ease.
You go from too high glucose, to high Insulin. And both are reasons for the symptoms.
Take care.
Best wishes.

Thanks so much! I'm still looking for patterns, now that my blood sugar is manged enough for me to think clearly. I hope you can find peace -maybe there's another endocrine problem causing your anxiety? I hope you find peace either way.

 

[Lamont D]

Thanks so much! I'm still looking for patterns, now that my blood sugar is manged enough for me to think clearly. I hope you can find peace -maybe there's another endocrine problem causing your anxiety? I hope you find peace either way.

There are quite a few reasons for the anxiety, it is known to be a symptom RH. But usually mild.
It is because of a breakdown I had in the July of 2020.
Losing my job, with no prospects of employment with covid, age and availability of work at the time.
Nine months from actual retirement age.
Couldn't cope.
Work was my life, and the threat of covid, as I had no choice of going out and bringing covid in to my disabled wife and her father. Had panic attacks in shops. And finally, lost it, over a stupid disagreements with the family.
I also are the wrong thing's, and lost control.
It was my then GP, that got the counselling and got me back on track. I had counselling throughout covid.

Obviously much better now.
But have a lot on my mind still.
It is no secret that my wife has mental health issues. And with her disability.
I am now her full time carer.
So, I have to be as healthy as I can to look after my wife and myself.
Liver it's fun, ain't it?

I'm so glad you have gained some control.
Best wishes.

 

[fireweed]

I'm glad your doing better. I'm sending well wishes your way!

 

[Marena]

Hi @Marena , I recently joined this forum. I've been wearing a CGM for my RH and I noticed that I don't only get symptoms when my blood sugar is low, I also get symptoms when it is changing rapidly - like more than 2mg/dL per minute going either up or down. Did you see any results like that?

Hello @fireweed sorry my answer is a little late. I also had a CGM where I found out that I get symptoms in the area from under 100 to 70. The faster I get there the faster I get the symptoms. Do you also have always normal blood sugar?

And @Lamont D I tried to reduce the carbs but that only made my symptoms worse. I tried it for 4 days but then I had to eat normal again because my symptoms got so worse without carbs. So that is really a problem.
In december last year I also made the 3 days fasting test in the hospitel like you did. I had symptoms the whole day every day. I found out that the symptoms were better at the evening and at the day it was horrible. On the 3rd day I really got low glucose levels. My lowest was 55. Did you get low blood sugar in this 3 days?
On the last day my symptoms were better and when I could eat again my symptoms came through the food. I think the longer I fast the better my body could be without food. And with eating again my symptoms came back. It is strange. I hope you understand what I mean

 

[Lamont D]

Hello @fireweed sorry my answer is a little late. I also had a CGM where I found out that I get symptoms in the area from under 100 to 70. The faster I get there the faster I get the symptoms. Do you also have always normal blood sugar?

And @Lamont D I tried to reduce the carbs but that only made my symptoms worse. I tried it for 4 days but then I had to eat normal again because my symptoms got so worse without carbs. So that is really a problem.
In december last year I also made the 3 days fasting test in the hospitel like you did. I had symptoms the whole day every day. I found out that the symptoms were better at the evening and at the day it was horrible. On the 3rd day I really got low glucose levels. My lowest was 55. Did you get low blood sugar in this 3 days?
On the last day my symptoms were better and when I could eat again my symptoms came through the food. I think the longer I fast the better my body could be without food. And with eating again my symptoms came back. It is

Hello @fireweed sorry my answer is a little late. I also had a CGM where I found out that I get symptoms in the area from under 100 to 70. The faster I get there the faster I get the symptoms. Do you also have always normal blood sugar?

And @Lamont D I tried to reduce the carbs but that only made my symptoms worse. I tried it for 4 days but then I had to eat normal again because my symptoms got so worse without carbs. So that is really a problem.
In december last year I also made the 3 days fasting test in the hospitel like you did. I had symptoms the whole day every day. I found out that the symptoms were better at the evening and at the day it was horrible. On the 3rd day I really got low glucose levels. My lowest was 55. Did you get low blood sugar in this 3 days?
On the last day my symptoms were better and when I could eat again my symptoms came through the food. I think the longer I fast the better my body could be without food. And with eating again my symptoms came back. It is strange.

 

[Lamont D]

Sorry, something was stopping me typing.
Hi @Marena nice to here from you again.

The answer to your question is, no I didn't.
The fasting test is to see if you do go hypo(low) or you don't.!
I didn't, which meant that I was RH.
If you go low, then it is not a food reaction condition and the answer lies elsewhere, possibly your pancreas.
I cannot obviously say, but I believe you need more tests to achieve a diagnosis.
And yes, it is strange.
I hope you can get it sorted soon.

Best wishes

 

[Marena]

Sorry, something was stopping me typing.
Hi @Marena nice to here from you again.

The answer to your question is, no I didn't.
The fasting test is to see if you do go hypo(low) or you don't.!
I didn't, which meant that I was RH.
If you go low, then it is not a food reaction condition and the answer lies elsewhere, possibly your pancreas.
I cannot obviously say, but I believe you need more tests to achieve a diagnosis.
And yes, it is strange.
I hope you can get it sorted soon.

Best wishes

Thank you for your answer.
You will be right. The answer will be elsewhere. But it is so difficult to find a doctor who believes me and make some other tests and I don't know where I should go. I hope I will find someone.
How was your insulin in the fasting test? Mine was sometimes to low or in the lower normal area. I thought you only can get hypoglycemia with high insulin levels? But I get hypo with low and normal insulin. Does that make sense?

 

[Lamont D]

Thank you for your answer.
You will be right. The answer will be elsewhere. But it is so difficult to find a doctor who believes me and make some other tests and I don't know where I should go. I hope I will find someone.
How was your insulin in the fasting test? Mine was sometimes to low or in the lower normal area. I thought you only can get hypoglycemia with high insulin levels? But I get hypo with low and normal insulin. Does that make sense?

I have been wondering for a long time about the different permutations, symptoms and how the body copes with the modern dietary stuff.
Options could be limited to your situation.
Where you live?
Insurance if you need it?
A GP who can refer?
If you have an endocrinologist?
And probably more.

And get here the tests required and the treatment necessary to relieve the symptoms.

My insulin levels were low in first phase response to food, but high after what is known as an overshoot of insulin, as my pancreas wakes up to the abnormal high spike after carbs etc. This is me now.
It also showed that during my first eOGTT, that because of insulin resistance, my insulin levels were high during both but the amount of good insulin was low. One of the reasons for a fatty liver.
I think that maybe the low levels of insulin continuous through the day, even when not eating could be too much in total to keep you going low. I don't believe you have insulin resistance.

And then, I could be totally wrong.

Best wishes.

 

[fireweed]

Hello @fireweed sorry my answer is a little late. I also had a CGM where I found out that I get symptoms in the area from under 100 to 70. The faster I get there the faster I get the symptoms. Do you also have always normal blood sugar?

And @Lamont D I tried to reduce the carbs but that only made my symptoms worse. I tried it for 4 days but then I had to eat normal again because my symptoms got so worse without carbs. So that is really a problem.
In december last year I also made the 3 days fasting test in the hospitel like you did. I had symptoms the whole day every day. I found out that the symptoms were better at the evening and at the day it was horrible. On the 3rd day I really got low glucose levels. My lowest was 55. Did you get low blood sugar in this 3 days?
On the last day my symptoms were better and when I could eat again my symptoms came through the food. I think the longer I fast the better my body could be without food. And with eating again my symptoms came back. It is strange. I hope you understand what I mean

@Marena I really hope you can find an endocrinologist that likes puzzles.

My experience is different than yours in that I do react to carbs and fasting works for me. However, I also had been getting symptoms from eating some fats even though it didn't affect my blood sugar. That seems to have been related to B vitamin and maybe magnesium deficiency because I do better when I'm getting a lot of B vitamins from either supplements or food. Eating low carb wasn't helping me for awhile until I figured that out. Maybe that would be helpful for you?

 

[Lamont D]

@Marena I really hope you can find an endocrinologist that likes puzzles.

My experience is different than yours in that I do react to carbs and fasting works for me. However, I also had been getting symptoms from eating some fats even though it didn't affect my blood sugar. That seems to have been related to B vitamin and maybe magnesium deficiency because I do better when I'm getting a lot of B vitamins from either supplements or food. Eating low carb wasn't helping me for awhile until I figured that out. Maybe that would be helpful for you?

Hi again, I have to take vitamin D in the winter months.
There is something to say about your full blood panel results, as you can get the information that shows if you are deficient in them.
I found out very early on about fats. And a couple of books, set me right on a low carb diet. No veg oils, no palm oils, and so on. Even some olive oil has an effect on me.
So do be careful, stick with butter or good saturated fats.

It does seem you are doing a lot better.

Best wishes.