MaryJ said:
I urge everyone to write to their MP's quoting there own experience, without too much detail and copy and paste this thread as a link on the email.
My MP has already been made aware of this website and has promised to investigate further the ppor advice being given out.
It's all looking very promising indeed.
Mary x
PS many thanks libralising and desidiabulum for posting it.
I just did, Thanks.
Grazer I hope you don't mind I used your explanation as I thought it explained things rather nicely :thumbup:
Dear Ms Cooper,
As I am sure you are aware of the growing number of people in the UK who are now getting Type 2 Diabetes. I would like to voice my concerns regarding the level of care and information that is being given by the NHS.
May I first point out that I myself was diagnosed with Type 2 Diabetes back in May of this year, At my diagnosis I was given a booklet describing what foods I should be eating and should not be eating, and sent packing being told that I have dietician appoint in 3 months and an podiatrist appointment would follow in the post. That was it basically no support from my Doctor and little from the Nurse, (apart from when I rang the Nurse to ask could I have a BG meter ( Answer NO) and to tell her I was going on a low Carbohydrate diet (Shock Horror you don't need or want to do that) But as you can Imagine my shock and horror at being told this life changing diagnosis. I now have what is primarily a life threatening illness, that at best has terrible debilitating complications and at it's worst gives you 50% more risk of stroke/coronary failure or death.
My own mother in law has late onset type 1 diabetes, and has now gone blind in one eye and is having laser treatment on the other eye, so I was fully aware what my outcome may well be, not good.
I generally like to find out about a condition I have been diagnosed with, using various methods and my own research. So I started trawling through the internet and got books from the library, however I came across a web site called Diabetes.co.uk, within that web site I found masses of useful information and helfull friendly people. But amongst it all I got the impression that the diet given out by the NHS was pitifully lacking in sound advice. Indeed if followed, would make my condition very much worse. What did seem to stand out by miles was a diet completely the opposite to that issued by the NHS and backed by a multitude of studies and Specialist’s worldwide, that of a low carbohydrate diet. Let me try and explain it in layman’s terms what is basically needed,
The lack of understanding amongst health care professionals of the need for reduced carbs for a diet only/metformin controlled type 2 - indeed, a lack of understanding amongst many in the whole health and diabetic community.
That is, a T1 looks at the amount of carbs they are going to eat and injects an amount of insulin accordingly.
A T2 (diet) looks at the amount of effective insulin available (fixed) and takes an amount of carbs accordingly.
Put another way, a T1 varies the insulin to match the carbs.
A T2 varies the carbs to match the insulin.
Same equation, same problem, I can't vary my insulin. I find out my "effective insulin available" by testing using my Blood Glucose meter. Then test now and again to make sure that amount isn't changing or if I try a new food.
Simple explanation, To describe our need to lower carbs AND to test which is being denied me by my NHS?
NHS and dieticians, are advising diabetics to ingest 50% of their diet from Carbohydrates which is basically "Sugar" the one thing that has the potential to cause a diabetic great harm. Another cause for concern is the attitude not to allow type 2 diabetics to test their blood, as explained above, even though the NICE guidelines say if a patient is showing evidence of good self-management and asks for them they should be given. The reason I got for not letting me have one was very patronising and assumed I was stupid, being, it will make me paranoid? and cause my fingers to become sore? this according to my Nurse, Yet when I pressed my Doctor on a totally different matter and believe me it took some pressing the overlying reason is down to cost.
This saddens me, that the NHS is so short sighted, in saving a penny now it could cost the NHS far more in the future due to improper blood glucose control and complications, Education is also something sadly lacking in most PCT's and GP surgery's.
For me testing has been an invaluable tool and a necessity, I bought my own meter and strips @ £27 per pot of 50 strips, I use on average 100 a month,I also started my low carb diet. and found out what foods can be eaten safely without spiking my Blood sugar. Started an exercise regime at Nye Bevin Gym and amazingly, have now lost over 27lbs, I have also lowered my Blood pressure in the process to normal, Due to the testing I have managed my Blood sugar at an average of 5.5mmol/L which is not far off normal. I feel better than I have in over 3 years, and all with no help or encouragement from the NHS a very sad testament, and to me concrete proof they are very wrong in the advice that they are administering to patients, more over it's out of date and various other country's have changed their dietary advice completly, USA, Sweden and other parts of Europe.But you don't have to take my word on this.
I would like to post some links to various web sites. scientific studies and my forum, which I hope you may find time to read some of them at least, to enable you a better understanding of what I am trying to say.
I used some of the links found on this site. Posted by us all.