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Bit worried about advice

  • Thread starter Thread starter Maybird
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M

Maybird

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I do worry about some not very good advice given on here, I thought the forum was about encouragement and support and mostly it is but there are some very self opinonated members who seem to be hell bent on trying to frighten people into doing what they do as they think their way has got to be the right way
Take the low carb diet we are made to feel that if we don't do it and eat something like rice, pasta or potatoes then we are on a road to self destruction and will probably have all sorts of complications and die early.They refuse to recognise that we are all different and may not want or need to do low carbs, that sort of extreme diet is something everyone should check with their doctor before they do it
I am sure there are people who are feeling very uncertain about diet having been being newly diagnosed..especially if they have not yet seen a DN ... who from what people on here say think they have to do very low carbs from now on and it could be totally wrong for them

Mention you take statins and the flood gates open and out come the scaremongers telling us how they damage our bodies and the horror stories of the side effects that people have had with them.We really do not need that and most of us that take them would not take any notice anyway but it may be just enough to scare some people who are taking statins into stopping them and that could be really bad for them. Doctors prescribe them for a good reason mainly because we are in the high risk group for heart attacks and strokes and statins can prevent that. A no brainer as far as I am concerned.

So the advice that should be given on this forum should be always check things with your GP or DN before you do it
 
This forum is full of "experts". Trouble is, diabetes is so different for different people so we can only really talk about how things affect us or what we would do. That's the trouble. A person may have dramatically improved their HbA1c going low carb so they will tell everyone else to do the same. I can see why they would want to share their success but I love potato etc lol and I won't give them up. So, just accept the advice you choose to. There will always be heated debate and that's cool but it's disappointing when some threads end up with personal insults and attack. It's a shame but it happens. The forum though and the majority of posters offer very good advice ( even though may not all be suitable ) with the best intentions. I agree with you though, I don't think advice regarding adjustments of medication etc should really be taken without checking with your own healthcare providers.
Mo
 
I think it is done with the best of intentions.

People do get passionate about things that have worked for them in all sorts of areas.
 
It's all better than nothing though, even if sometimes you do take a chance on swopping one set of symptoms for another. There's enough information to form an opinion eventually, and decide what the best way is for the individual. Sometimes it may not be the right direction initially, but it's at least a prompt to make a change. Then more tweaking to move on.
As to diets and statins, follow the links. Some lead to well researched articles, with the data there to see, some lead to "Dr Bob" and the odd graph with a line on it. Again, that's still enough to help form an opinion, and make a start on a change.
So, all info is good info.
 
Have to agree with most of what you say apart from the checking with your GP or DSN first. My GPs haven't got the foggiest about type 1 management, and I have had next to no advise or help from my Diabetes 'Team' since I was diagnosed a year ago. Both the DSN and GP tried to force me onto statins when there was no need. I've had to learn about carb counting, timing of insulin, splitting doses, GI index and everything else from books, websites and forums like these. Just my own personal experience, I'm sure many people have brilliant GPs and DSNs. The important thing here is only to give advise if you really know it is sound advise for the right type of diabetes and don't try to force your idea onto people, as Mo rightly said we're all different, and if you're receiving advise, research it and make sure its right for you.
 
Mongoose39uk said:
I think it is done with the best of intentions.

People do get passionate about things that have worked for them in all sorts of areas.
Click to expand...

Yes I do agree with that people are delighted at what works for them but others should not do it until they see their doctor first
 
Maybird said:
Mongoose39uk said:
I think it is done with the best of intentions.

People do get passionate about things that have worked for them in all sorts of areas.
Click to expand...

Yes I do agree with that people are delighted at what works for them but others should not do it until they see their doctor first
Click to expand...


so when my doctor tells me to eat lots of carbs i should follow that advice? disregard everything else ive learned?


Sent from the Diabetes Forum App
 
this is very upsetting to me, whats the point in a forum at all, why not just have a see your doctor front page? i have tried to help lots of people including yourself and this is like a slap in the face tbh, im gutted :(


Sent from the Diabetes Forum App
 
Have to say though the first dietician I saw was a burnt out script reader. Told my GP what she had said who was amazed at her attitude.


Sent from the Diabetes Forum App
 
Andy12345 said:
this is very upsetting to me, whats the point in a forum at all, why not just have a see your doctor front page? i have tried to help lots of people including yourself and this is like a slap in the face tbh, im gutted :(


Sent from the Diabetes Forum App
Click to expand...

Andy, I didn't read it that way. Though no I don't think we need to be telling people to run to the GP all the time. Probably need to be clearer sometimes that these our opinions based on what has worked for us.


Sent from the Diabetes Forum App
 
Maybird said:
So the advice that should be given on this forum should be always check things with your GP or DN before you do it
Click to expand...

That's just one more opinion for me to accept or disregard as I choose.
 
Maybird said:
I do worry about some not very good advice given on here,
Click to expand...

Thats equally true for advice from your doctor, lawyer, accountant and so on. If you want to understand the story, understand the storyteller first. Most people have some sort of axe to grind.
 
Andy12345 said:
this is very upsetting to me, whats the point in a forum at all, why not just have a see your doctor front page? i have tried to help lots of people including yourself and this is like a slap in the face tbh, im gutted :(


Sent from the Diabetes Forum App
Click to expand...
Andy, nobody is disputing any great advice you've given or received. I just think that it can be a little risky when goving or receiving advice specifically regarding medication. General advice to do with carbs, lifestyle or exercise is different in my opinion. I also agree that there are some healthcare providers that are useless. Not all are though. I have often given advice regarding insulin dose etc but I always advise to check with their own doc as well. Up to them if they don't.


Sent from the Diabetes Forum App
 
Good advice for one person is bad advice for another. sometimes though there is very bad advice given which could have serious consequences. sometimes though, questions are asked without complete background info which would have bearing on the answer.
Its a forum, a place for people with one common problem. Diabetes can have a massive impact on health and cause numerous other conditions, which everyone will not have though many will. This forum offers a support system for people to discuss/ask/answer.
should be taken as read that any advice given its just that, and always discuss with you own healthcare pro before doing anything.

Must admit though getting a bit fed up at the mo as there have been alot less supportive, helpful threads of late, resulting in quite heated discussions, which unfortunately I have been Involved in.

Sent from the Diabetes Forum App
 
Personally I find the advice on here to be great, I believe it has prob saved me from a miserable life with complications.

When I first came here I read EVERYTHING absolutely everything. Then looked about on the internet. I then made my decision about how to control my condition. I took the research and the experiences I found on here to make a decision. No one forced me to go low carb.

read things, research, make your decisions for you.
 
Andy12345 said:
Maybird said:
Mongoose39uk said:
I think it is done with the best of intentions.

People do get passionate about things that have worked for them in all sorts of areas.
Click to expand...

Yes I do agree with that people are delighted at what works for them but others should not do it until they see their doctor first
Click to expand...


so when my doctor tells me to eat lots of carbs i should follow that advice? disregard everything else ive learned?


Sent from the Diabetes Forum App
Click to expand...

If my doctor told me that then I probably would do it because my GP is the one I trust to give me the right advice
 
While I can see your point to some extent I can't say that I always trust GP's


I had to wait to see a locum after 4 years of being told I was an over concerned parent by both the Health visitors and the GP I had at the time.

My son has Muscular Dystrophy despite having seen all three GP's in the practice repeatedly and repeatedly saying there is something wrong.

Thankfully I now have a good GP. As you can see on here people have very varied levels of experience with their GP'.

This is not particularly a criticism of those GP's it is thankfully a rare condition and the signs in a child under 5 are subtle.
 
Andy12345 said:
this is very upsetting to me, whats the point in a forum at all, why not just have a see your doctor front page? i have tried to help lots of people including yourself and this is like a slap in the face tbh, im gutted :(


Sent from the Diabetes Forum App
Click to expand...

That is a bit over dramatic Andy you have got the wrong end of the stick I am not knocking the advice you or other people have given I am sure it is good advice . The point I was making was that some people on this forum can make it sound to others ... especially newly diagnosed members...as though low carbs not eating certain foods or the dangers of taking statins is the way everyone should be managing their diabetes
Most people will probably weigh up the advice on here as to whether that particular thing would suit them or not but others may take it as being set in stone that is what they have to do so will do it anyway even when it might not be good for them .Thats why I say check with your doctor or DN if it is ok for you.
Do you Andy or anyone else just do what others say they do without a thought as to whether it is good for you ..I think not
 
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