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Chat for ASD families

We had D (son no 3) yesterday as usual, he came bearing a beautiful card and bouquet of flowers chosen and purchased by his keyworker! He allowed me to hug him -twice! Today we have son no 1 who lives locally, visit. Don't know about son no 2 and d-in-law perhaps they might drop in for a surprise visit. What about you Barbara? Thanks @4ratbags x
 
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I had a lovely day thanks @13lizanne, A doesn't go into town by himself so last week we went in together and chose a teddy and a mug for me. Mum was naughty and got a box of cheesy butterfly type biscuits so I had one with my afternoon cuppa. Luckily it didn't make too much of a difference to my levels, I woke up to 6.1 this morning! Hope you have a lovely day today, it's cold and sunny here so I'm going to wrap up warm to go into town this afternoon!
 
A is feeling excited this morning - one of his friends is performing in Much Ado about Nothing in Leicester and A has been invited to come up and watch him perform! He'll be getting the train up there on Saturday and meeting his other friends at the train station. This is the third time he's gone on the train on his own so he's feeling confident, I'm so proud of him!
 
I'm so glad I have friends who understand - things didn't go according to plan. First of all the play was due to finish 10 minutes after the last train left for Coventry. I worked out an alternative plan where A got the train to Nuneaton and caught a bus back from there. A was feeling uneasy about getting from the train station to the bus station in just 15 minutes so he decided he was going to leave the play in the interval and get the last train straight home. I went with him to the train station and he got in the queue to buy his tickets, but the people in front of him were taking ages. I could see he was agitated but he was insistent he wanted to buy the tickets himself. Unfortunately the train left when he was in the queue which tipped him over the edge, he was getting so close to a meltdown I told him to go outside and calm down, I would get the tickets for him. I was so upset at this point I bought tickets for Nuneaton instead of Leicester! He said it was a waste of time going there so we ended up just going home, he's only calmed down by playing on Minecraft
 
Oh Barbara how awful! Are you alright yourself? Will A be able to pick up his bedtime routine now and get over his disappointment and frustration and forget the incident? Or will it cause upset next time he wants to travel by train? Sending you lots of hugs and praying all will settle down quickly x
 
Thanks @13lizanne, we're getting there slowly. We're both feeling better after a good night's sleep, although A's self confidence has still taken a knock. We had a good chat when we came home last night, and I reassured him that it will not be like that next week - I've prebooked the train tickets so all we have to do is turn up on time and show the printout. He said that he still feels like things are out of control this morning but he has stuck to his routine so hopefully he will feel better as the day goes on. Thanks for the hugs, I'll keep you posted xx
 
Thanks @13lizanne, we had a good day at mums. A took along his collection of all the Marvel films and watched them with my brothers while mum and me had a really good talk. Stress relief for both of us!

Mum and my brother J also had a bad experience on Friday, they went on a coach trip to Evesham Country Park and because of flooding and having to take detours they didn't get home till nearly 8pm! J and A were able to talk to each other about how they felt which seemed to help both of them
 
13lizanne said:
That sounds just what you all needed, hope next few days will be hassle free for you all - peace and calm :)
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Thanks, it was just what we needed. He does seem to be feeling better, the first thing he did when we got home was ask for a sandwich! That's on top of the chicken dippers and curly chips he had for his tea :)
 
Sorry to interrupt, I was wondering if anyone on this thread knows of some with ASD who also has T2? If so then how did they cope with BG testing and, possibly, insulin injections?
 
@4ratbags is your 9 month granddaughter also your daughter's child? If so I want you to know that I so admire and respect you. You and your family are in my prayers. p.s you don't have to answer I don't mean to be pushy xx
 
Yes she is, fortunately there are no signs of her having ASD like her sister so that is great and it also seems to have settled M down and they are sharing a room, no more feet in my back while Im trying to sleep, yay :) Her mother actually did an excellent job in looking after her but what let her down is her mother putting her in dangerous situations. She was warned my CYFS to stay away from A's violent father but she just kept going to see him.
 
That will be part of the Autism and not really understanding? Anyway it doesn't matter, you are there for your beautiful grandchildren AND your lovely children. I salute you- you are an inspiration and I know that you will be given all the strength and wisdom that you need. Hope you get lots of fun too. Anna xx
 
Oh yes there are a lot.of happy moments and my OH is really taken with his little grand daughter which is great as he and B dont get along so Im glad he can put their differences aside and enjoy the children.
 
Isn't it surprising sometimes how things work out? something which starts off looking difficult actually turns out to be an improvement to a hard situation. I think back and see how things which seemed like the end of the world at the time have actually turned out to be good for our family. You sound very positive and I'm so glad things are working out well.
 
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