diabetic hcp s

sunday1980

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Can I request to be seen by someone other than my practice nurse for my diabetes? Or am I pretty stuck with who I see? I can never contact her, she's awful like old hospital matron and on top of that never seems to know the answers to any of my questions ! I've tried talking to my actual gp instead but he just ignores me and makes me an appointment with her :/
 

Geordie lass

Well-Known Member
Messages
160
Type of diabetes
Type 1
Treatment type
Pump
Have you tried contacting your surgery practice manager to raise your concerns? I certainly would if I wasnt getting any joy from the practice nurse or the GP. After all, they are supposed to have a duty of care for their patients. Hope things improve for you with your practice nurse. :)
 

dawnmc

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Messages
2,450
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
I was told by the guy who photo's my eyes at the hospital (he's a gorgeous Syrian by the way) that if I wasn't happy with my surgery that I could ask to be transferred to the hospital for my care. If you are near your local hospital its worth a try.
 

Daibell

Master
Messages
12,674
Type of diabetes
LADA
Treatment type
Insulin
Hi. I dread being in your position but fortunately we currently have an excellent DN who specialises in insulin. Although it's worth trying a transfer to the hospital clinic you may find they only deal with T1/insulin or similar. Do ask any questions on the forum. I can see that you have a lot of weight to lose which should make vast difference to your blood sugar if you can do it. Are you currently low-carbing for your diet? It is essential if you are to lose a few stone and will be far more effective than the diabetes tablets
 
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sunday1980

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Thx for replies, my practice manager is a complete joke, I've tried to make a complaint in the past by ringing her....not in the office..EVER according to receptionist, so I wrote to her... never receive d the letter I personally handed to receptionist, so I emailed her....also never receive d even tho I remailed it THREE yes three times, eventually I went up there and told them I wouldn't leave until I saw her, magically she appeared straight away and promised to address the complaint straight away and write to me....still waiting 6 months later....

Yes I know I have alot of weight to lose, I actually eat practically nothing, last 4 months only a small evening meal of whatever I can grab as feel so unwell. Stopped taking the gliclazide as I still managed to put on a stone and a half in 2 months despite this and it was making me go hypo every afternoon which was horrible.

Tonite for example I ate a piece of plain white fish and some cauliflower, nothing else, hadn't eaten for 24 hours, been asleep til 4pm from last night. 4pm bs was 10.6, ate at 8.30pm, 11pm bs was 11.7. Tested again at 1am and it was 12.5. That's low for lately, usually in the 16's around that time. Really I don't see what else I can do except not eat at all. It's not exactly easy to exercise when you can't even open your eyes for 12-18 hours of the day and when you do you can barely sit up or go to the toilet because you feel so weak and dizzy :/
I'm in constant pain with my bladder, stomach cramps and gallstones, my legs hurt from knees to ankles and my feet are bright red and feel like they're on fire. My vision has got so bad from needing my reading glasses all the time to now I can't see properly even with them on. Tonight I've just cried from when I woke up to about an hour ago. So Fed up, I give up with my doctors I really do I haven't even got the strength to bug them about it all anymore.
I've got no family in this country anymore, haven't seen my kids in weeks coz I'm so I'll and my partner is an abusive unhelpful piece of shot.....sorry just REALLY had enough today, I'm only 33 but if this is all life has to offer and I can't see any way it's going to improve, I don't really want to be here anymore :(
 

Indy51

Expert
Messages
5,540
Type of diabetes
Type 2
Treatment type
Diet only
I thought if people were unhappy with the service they were getting from their GP's that they could ask to be referred to a hospital clinic instead? I seem to recall reading that on other threads here. Is there a hospital you can go to instead?
 
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sunday1980

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103
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Hi indy, I'm in the UK and I dug out my booklet the nurse gave me when I was diagnosed, I should have thought of it before but I pretty much got 'filed' after it told me to eat a third of my diet as starchy carbohydrates, 5-15 portions a day, where a portion is 1 piece of bread.....the list goes on...honestly o.o
Anyways under the care to expect bit it has got some in depth guidelines on what Is your right to receive, I'm missing the majority of the major tests and points so I will be contacting my doctors on Monday and throwing the literal book at them! Also it does say you have a right to see a dsn and should be provided with how to contact them by telephone at any time. I do recall the practice nurse saying they had a diabetic clinic now with an actual dsn because she said she helped out sometimes, but I don't seem to have been given an invitation. Blimey my memory is really terrible these days :/!
 

donnellysdogs

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13,233
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Sunday

If you are eating just 1 cauli meal a day and still putting on weight then something needs to be addressed...

1) you need to have more food.... Your body is not having enough food to keep a pigeon alive.. So if you are still gaining weight then your body is kicking back for another reason...

2) your dsn... You are unlikely to get past your dsn to be honest. GP's admit they know less than DSN's that specialise in diabetes. My GP's rely totally on the DSN's that have been on the NHS diabetes courses....

You could try changing Practice?


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sunday1980

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103
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Not seen a dsn yet just the regular practice nurse, I think an actual dsn does visit the surgery tho from outside, am gonna see what I can find out tomorrow. All I've eaten tonight was some chicken breast I had in a packet and a packet of mini cheddars, even getting that I felt so rough and dizzy thought I wasn't gonna make it back up the stairs again :( Fed up of this
 

oldgreymare

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Messages
587
Type of diabetes
Type 1
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Pump
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Commuting, overcrowded spaces, especially after the arrival of covid-19...
Sunday

If you are eating just 1 cauli meal a day and still putting on weight then something needs to be addressed...

1) you need to have more food.... Your body is not having enough food to keep a pigeon alive.. So if you are still gaining weight then your body is kicking back for another reason...

2) your dsn... You are unlikely to get past your dsn to be honest. GP's admit they know less than DSN's that specialise in diabetes. My GP's rely totally on the DSN's that have been on the NHS diabetes courses....

You could try changing Practice?


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Sorry to hear you are having such a rough patch.

But agree with the above that you are eating too little, effectively starving yourself with not enough food to provide any energy - I would also be very dizzy on these portions! Also you may be mildly dehydrtaed - have you upped fluid and salt intake to compensate for smaller/missed meals?

As you have only been diagnosed a few months, it may take some more time to find the right balalce of meds/diet/lifestyle to manage your diabetes and health overall. Congratulations on lowering your HbAc1 to 7.3% in 3 months - this is great progress!

Aiming for weight loss is key and I'm sure that you are already aware it can improve not just BGs, but sleep apnoea, gallstones and fatty liver as well. But this is a long term goal. You are keen on low carbs, but frankly LCLF (low fat) diets are not considered sustainable. I know traditional advice is to keep to low fat if prone to gallstones, but could be worth cautiously introducing more fat - consider printing out the following to discuss with your GP or DSN:

http://www.dietdoctor.com/gallstones-and-low-carb

You mention D3 deficiency - are you taking anything for this? D3 supplements are highly effective.
 
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oldgreymare

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587
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Type 1
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Pump
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Commuting, overcrowded spaces, especially after the arrival of covid-19...
Another thought - how long have you been taking atorvastatin? I hate to raise the great statins debate (many threads already on this site), but some of your symptoms could be drug side effects - "common" side effects listed by NHS are

Common side effects : More than 1 in 100 people who take Atorvastatin calcium trihydrate may experience

  • abnormal laboratory test results
  • allergic reactions
  • back pain
  • constipation
  • diarrhoea
  • flatulence
  • headaches
  • increased blood sugar levels
  • indigestion
  • joint swelling
  • jointpain
  • muscle problems – these may occur with fever or a general feeling of being unwell. Seek immediate medical advice if you have muscle cramps, muscle weakness, tiredness, musclepain or muscletenderness
  • nausea
  • nose and throat inflammation
  • nose bleed
  • painful extremities
  • throat pain
Good luck with the GP surgery!
 
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donnellysdogs

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It really seems to me that your ill feeling and gut probs etc is because of lack of food. Your brain needs food and water to function. Without it, it goes into shutdown mode....

You need a balanced diet.. With the food that you are eating then it would be really difficult for any healthcare professional to come up with a diagnosis of say coeliac, ins, gallstones etc.

Your sleeping longer length of times will be because your body is telling you it can't cope mentally or physically with the lack of vitamins and minerals that you are giving it. This in turn seems to be leading you in a downward spiral....

Partners and family can only take so much to be honest. Having a partner in bed sleeping long lengths of time isn't nice, and people do not recognise the impacts that they ate having on others around them...

Carers (not saying your partner is a Carer) have huge amounts of pressure put on them. Family members are normally the unpaid carers in this world.

Please will you consider eating 2 or 3 small meals a day and take a multivitamin.

At 33 you could have a great life ahead, and this is very important to remember. As a final thought, laughter brings laughter and joy from others.

This isn't meant to be critical, although it is to the point... I wish you the ability to grasp at the ladder at the side of this imaginery well and climb out to see sunshine... Being at the bottom of a well does make it feel as if there is only doom n gloom, so put your foot on this imaginery ladder and start climbing girl..

If you have to ask for a hospital consultation or see your diabetic nurse or change Practice then do it.




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Anie

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306
Type of diabetes
Treatment type
Tablets (oral)
Sunday

If you are eating just 1 cauli meal a day and still putting on weight then something needs to be addressed...

1) you need to have more food.... Your body is not having enough food to keep a pigeon alive.. So if you are still gaining weight then your body is kicking back for another reason...

2) your dsn... You are unlikely to get past your dsn to be honest. GP's admit they know less than DSN's that specialise in diabetes. My GP's rely totally on the DSN's that have been on the NHS diabetes courses....

You could try changing Practice?


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I was told last week when I started to be unwell that I MUST eat. I was given advice what to do/drink if I really couldn't keep anything down (eg milk, fruit juice, fizzy drinks, not diet drinks) not in huge quantities 100ml but to ensure that I had something, and to keep taking the diabetes medication.

You sound like you need to go to the drs and insist that you see someone, take someone with you if you can. You seem to be taking a lot of medication for what you are eating!
 

sunday1980

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103
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Sorry can't reply much, too livid. My Dr said no I couldn't be seen in clinic my hba 1c is fine and I shouldn't be testing my blood sugars as I'm quote "only type 2" :eek::mad:

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donnellysdogs

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Sorry GP will find it a waste of time to send you to diabetic hospital clinic if your hba1c's are fine... He'll think that it would be more relevant to send a patient in need of amputation etc etc...


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donnellysdogs

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You gave us a listing of higher figures, and yet your GP said hba1c fine? What was your last hba1c?




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sunday1980

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103
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Treatment type
Tablets (oral)
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Last hba 1c was 7.3,not too bad although probably attributed to the fact I was having hypo s almost every afternoon on the two doses of gliclazide, was eating properly then as had to, ended up putting on a stone and half in about 6 weeks. I did stop the gliclazide and lost half a stone since then. Started back taking them but just evening dose. These are my figures since then - 10,8 - 11,6 -11,5 - 12,3 -11,7 -8,6 - 11,0 -14,1 - 10,3 - 12,3, so they have come down but still not within target range and still causing me to feel rotten, thirst, peeing constantly (i need shares in loo paper lol!) And vision is so blurred, have been eating more during day past 2 days and must admit have felt better for it, managed to get downstairs for a bit which was nice especially as its so hot at the moment!
The surgery does have a diabetic clinic with a visiting dsn apparently, that's what I wanted to be able to see
I'm not expecting special treatment but the basics would be nice, and I can't see why I have be on medication that doesn't suit me when there are other options! It's not a case of one size fits all.
Sorry for late reply to other posts, I was on simvastatin to begin with but got the terrible leg cramps with it which worsened the pain in my legs I already had, they changed it to atorvastatin but by which time I'd had a read about them and am not keen at all so haven't taken them :/ would at least like to try doing something about it via diet/exercise first, if that doesn't work then sure I will take them.
Please don't think I am a lazy person just because I'm fat, I'm really not, during 2012 & beginning of 2013 I lost alot of weight through slimming world, I cooked all my meals from scratch, really got into eating healthy, grew my own veggies and salad in the garden and got running with the nhs couch to 5k programme, I ended up so addicted I bought my own treadmill as hated the days that were to cold/dark/icy to get out for my 45min run, I'd also take my daughter weekly swimming
Sorry to hear you are having such a rough patch.

But agree with the above that you are eating too little, effectively starving yourself with not enough food to provide any energy - I would also be very dizzy on these portions! Also you may be mildly dehydrtaed - have you upped fluid and salt intake to compensate for smaller/missed meals?

As you have only been diagnosed a few months, it may take some more time to find the right balalce of meds/diet/lifestyle to manage your diabetes and health overall. Congratulations on lowering your HbAc1 to 7.3% in 3 months - this is great progress!

Aiming for weight loss is key and I'm sure that you are already aware it can improve not just BGs, but sleep apnoea, gallstones and fatty liver as well. But this is a long term goal. You are keen on low carbs, but frankly LCLF (low fat) diets are not considered sustainable. I know traditional advice is to keep to low fat if prone to gallstones, but could be worth cautiously introducing more fat - consider printing out the following to discuss with your GP or DSN:

http://www.dietdoctor.com/gallstones-and-low-carb

You mention D3 deficiency - are you taking anything for this? D3 supplements are highly effective.

Yes have been reading into some approaches to these, seems low carb/low cal can be very effective, I just wish I had the energy to cook like I used to :( lately it's a case of getting whatever I can inside me or go without :/ bit catch 22. Had thyroid done, tsh was very low but t3 and t4 normal. Ecg done, all fine but hr is always raised and showed on it. Bp is fine, vitamin d was low am on supplements for that.
Actual reason I spoke to gp today was I had some bloods done and got a txt to say results had come back abnormal and to make telephone contact, when I did though she said they were all fine but refused to give me actual values, probably knows I'd check them and challenge her :/ I thought I had a right to my medical info?? I don't know, am starting to think 90% of my problem is stress related tbh, it just seems constant maybe the sleeping alot is my brains way of coping and protecting itself, just a theory.
 

donnellysdogs

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By April 2015 your most recent and future medical records should be available to Patients online.

Its things like this that your PPG's should be chasing up your GP's for as apparently 79% of GP Practices have the capabilitys to do this now.... But only 2.3% have done so.

You are entitled to a copy of your bloodtest results. Other full medical history can be hard to get unless officially requested and paid for.

Our PPG is asking our GP Practice at our next meeting when our Patients will have access to our Summary Care Records.

All Patients now that are over 75 should have their own allocated GP. GP Practices have until then end of June 2014 to notify these Patients who the GP Is that has baan allocated to their care. Our GP's have done the allocation, but if the Patients don't like the choice of GP that they have been given, they can't change it. It is GP choice, not Patient's!!


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))Denise((

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1,588
Type of diabetes
Type 2
Treatment type
Tablets (oral)
You don't say how tall you are as this will have a bearing on how overweight you are. At only 33 are they sure you are Type 2. You shouldn't have to starve yourself to lose weight, as others have said if you eat too little the body goes into starvation mode and you don't lose weight.

I go to a small GP surgery and see the practice nurse for my annual review checks (I won't see one of them as she is nurse nightshade) and I discuss the results with my GP. I also get a printout of my results and google the figures to make sure they are ok.

I would make a double appointment with your GP. Write down all your concerns and give this to the doctor to read (I am terrible at remembering all the things I want to say). An appointment with an Endocrinologist (instead of the Diabetes clinic) may be useful as they look at more things than just the diabetes.

I find that the supplements prescribed for my Vitamin D deficiency are not enough to keep me from feeling terrible, so take extra. Being Vitamin D deficient affects your mood and blood sugar levels.

Make an effort to eat three meals a day, I'd suggest berries for breakfast, salad for lunch and meat and veg in the evening and drink plenty of water/tea/coffee.
 
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