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Diagnosis not clear

Discussion in 'Young People/Adults' started by rob_o, Jun 19, 2017.

  1. rob_o

    rob_o Type 1 · Newbie

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    Hi guys.

    I joined the forum just after being diagnosed as diabetic back on March 21st this year. So although I've not posted anything yet I've been watching from afar (not in a creepy way).

    I've been reading a lot and at the moment I've not been given a clear diagnosis as to whether I'm type 1 or type 2, and the more I speak to the diabetic team at my local hospital it's becoming clearer that there won't be a specific diagnosis.

    I am still producing insulin but only at small levels and so they are currently treating me for type 1 diabetes as they feel that I had been running so high for approximately 6 months (or that's what the wife and I worked it out to be before I saw my GP) that treating me for type 1 will give my body a rest and maybe there could be a chance that I may not need to inject. As of last week the consultant put me on the basal bolus injections. I've not started carb counting yet, it seems they're just trying to work out a good start on set injections then introduce the carb counting.

    Has anybody come across this at all? Being treated for type 1 as your body record then not needing to inject?

    Sorry if I bored you!!
  2. azure

    azure Type 1 · Expert

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    Welcome @rob_o :)

    Your post wasn't boring at all :) Its always nice when people write a little about their diagnosis and treatment :)

    Let me tag @daisy1 fpr you for some basic information.

    There are tests that can be done to try to determine what type you are but they're not always conclusive.
  3. Juicyj

    Juicyj Type 1 · Moderator
    Staff Member

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    Hello @rob_o Welcome to the forum :)

    The fact they have put you on insulin means your levels were high enough to warrant more immediate action in getting your blood glucose levels down to a manageable level so it's good they are keeping a close eye on you, however with type 1 after you are put onto insulin your pancreas can kick back into action again for a honeymoon period and can start producing insulin again, however it is one to watch as at some point your insulin requirements will go up again, learn as much as you can, we cannot give you a diagnosis but we are around most of the time so feel free to ask questions.
  4. Nidge247

    Nidge247 LADA · Well-Known Member

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    Hi @rob_o welcome to the forum.

    You sound to have been introduced to D in a similar way to me; yet 2 1/2 years on there is still some debate as to whether I am T1 / T1.5 / T2 . It doesn't bother me as to which type I am, I've been on a T1 DAFNE course which taught me to carb count - which wouldn't have been offered if I was T2. My consultant currently has me as a T1.5 due to my age and symptoms.

    Due to my high hbA1c at diagnosis, I was put on basal/bolus mdi straight away, but since going LCHF some six months later, I've stepped this back to the point of not needing insulin injections at all.

    So far all is now steady, taking on 30-50g carbs daily and feeling as fit as a teenager (which was a few decades ago!)

    Have a good look around the forum - there's loads of friendly folk with good advice/experiences to share.
  5. daisy1

    daisy1 Type 2 · Legend
    Staff Member Retired Moderator

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    Hello Rob and welcome to the Forum :) Here is the Basic Information we give to new members and I hope this will be useful to you. Ask as many questions as you want and someone will be able to help.


    Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

    A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

    On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

    The role of carbohydrate

    Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

    If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

    The bad news

    Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

    The good news

    People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

    Controlling your carbs

    The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

    There are two approaches to controlling your carbs:
    • Reduce your carbohydrate intake
    • Choose ‘better’ carbohydrates
    Reduce your carbohydrates

    A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

    The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

    Choosing better carbohydrates

    The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

    Read more on carbohydrates and diabetes.

    Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

    Eating what works for you

    Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

    To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

    The blood sugar ranges recommended by NICE are as follows:

    Blood glucose ranges for type 2 diabetes
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 8.5 mmol/l
    Blood glucose ranges for type 1 diabetes (adults)
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 9 mmol/l
    Blood glucose ranges for type 1 diabetes (children)
    • Before meals: 4 to 8 mmol/l
    • 2 hours after meals: under 10 mmol/l
    However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

    Access to blood glucose test strips

    The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

    • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
    • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

    Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

    You may also be interested to read questions to ask at a diabetic clinic.

    Note: This post has been edited from Sue/Ken's post to include up to date information.

    Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
    • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
    • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
  6. NewTD2

    NewTD2 Type 2 · Well-Known Member

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    And are you still not on insulin?
  7. Nidge247

    Nidge247 LADA · Well-Known Member

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    Yes, still insulin-free and loving the low-carb lifestyle
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