Ehlers-Danlos Syndrome

[JFWinstone]

I was wondering if there were any other members with EDS on here. I was diagnosed with EDS back in 2010 and have been on the rehab course at RNOH Stanmore twice in 2012 and 2014. I don't have much support in the Bristol area for the EDS. Exercise is really difficult as I get so many subluxations and dislocations. Any helpful tips from people who have EDS and diabetes would be really helpful

Edited to remove HCP details

 

[Jo_the_boat]

Hi
There is a lady local to me who has EDS. Through her I have some idea what you're going through and you have my sympathy.
Very publicly she got treatment in the USA (at least once). Many of us locally raised money for her one way or another. She engendred much sympathy and help because she is a really courageous character and has a couple of delightful young children.
Before her struggles most of us had never heard of EDS. We soon learned that not much is known about the condition and Samantha is trying to raise awareness.
There's a Facebook page here that may provide some information.
I hope you find some relief and help.
Best of luck.

 

[Yellredder]

My GP suggests that I might have this, but I haven’t pursued a diagnosis.