Very quick remission - false test?

eddye88

Member
Messages
15
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
Not eating chips anymore.
In February I was 43 mmol and although I somehow didn't get diagnosed until late April, I made lifestyle changes from about 5 weeks ago (tailored exercise/diet plan).


I requested a re-do on my HbA1c because my symptoms seem to be worsening and I have developed what appears to be diabetic dermopathy - but as of last Wednesday I am down to 36 mmol!?


So my short journey has been:
November > 38 mmol
February > 43 mmol
May > 36 mmol


I was shocked at the diagnosis as my only risk factor is my dad has type 2 (diagnosed at 69) - I'd be happy to share what I did on the success stories part of the forum because I put a lot of effort into my exercise plan especially but before I do, is it possible my Feb test was just some kind of false positive??

Everything I'm seeing suggests this is a wild up and down over 6 months.
 

ianf0ster

Moderator
Staff Member
Moderator
Messages
2,667
Type of diabetes
Treatment type
Diet only
Dislikes
exercise, phone calls
Hi @eddye88
The HbA1C tests are fairly accurate, but the difference between 2 tests may be 1 or 2 mmol.
Your red blood cells (with the test is based upon) live for about 12 weeks, so 5 weeks is certainly enough time to make that magnitude of difference if you have made serious diet and lifestyle changes.

Diabetic symptoms at pre-diabetes levels are more common than most people realise. This is because our bodies are different and pre-diabetes/Type 2 Diabetes is really a range of risk from higher Blood Glucose rather than being all safe until hitting the globally accepted diabetes HbA1C of 48 mmol. A fellow moderator, had diabetic symptoms for years before his HbA1C finally got to 48 and his GP then accepted that they were indeed Diabetes related.

Many diabetes symptoms are not just related to higher Blood Glucose, but to rapid changes in Blood Glucose, down as well as up, though the ones such as eye focus problems, when caused by falling Blood Glucose tend to be temporary and go away after some weeks of stable Blood Glucose.
 

JenniferW

Well-Known Member
Messages
598
Type of diabetes
Type 2
Treatment type
Diet only
Can I ask about the diet and activity changes you made? I was diagnosed T2 10 years ago but post-Covid, my HbA1 has crept up, I'm sure because I now live with respiratory problems I didn't have before and chronic fatigue, so my activity of any sort in any 24 hours is a fraction of what it was. I need some new activity goals, I think.
 

eddye88

Member
Messages
15
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
Not eating chips anymore.
Can I ask about the diet and activity changes you made? I was diagnosed T2 10 years ago but post-Covid, my HbA1 has crept up, I'm sure because I now live with respiratory problems I didn't have before and chronic fatigue, so my activity of any sort in any 24 hours is a fraction of what it was. I need some new activity goals, I think.
Hi Jennifer,

I seem to react massively to carbs with burning pain in my legs (still happening todat in spite of HbA1c levels, so now looking at intolerances), which gave me a lot of motivation to cut my carbs over night to sub 50g.

I was previously eating a high carb diet, circa 300g day of complex carbs and a load of sugar from a litre of milk per day - I'm a big tea drinker and both soy and almond are terrible with it, so I shake up a bit of single cream in a carton of soy and (at least in tea) it end up very similar which helped a lot.

Overall I felt fortunate that I like meat, cheese, eggs, spinach and pickled veg a lot cause it's nice most of what I eat - ricotta is low carb and is also much lower calorie then a lot of other cheeses, I use it in omelettes, on salads or to make very eggy 'pancakes' (eggs, ricotta , protein powder) everyday.

I was already very active but I added a 30 minute fasted walk each morning, except I set an interval timer to:
10 mins 45x15 seconds
20 mins 50/10 seconds

Where I power walked as fast as possible and put my arms into it for the first longer time, then slowed down for the shorter time on repeat.

This was an attempt to reduce my visceral fat by emulating HIIT style workouts in the walk and get much more out of the 30 minutes - you can find a free app easily and the frequent rests might make that easier on your fatigue?
 

KennyA

Moderator
Staff Member
Moderator
Messages
3,877
Type of diabetes
Treatment type
Diet only
In February I was 43 mmol and although I somehow didn't get diagnosed until late April, I made lifestyle changes from about 5 weeks ago (tailored exercise/diet plan).


I requested a re-do on my HbA1c because my symptoms seem to be worsening and I have developed what appears to be diabetic dermopathy - but as of last Wednesday I am down to 36 mmol!?


So my short journey has been:
November > 38 mmol
February > 43 mmol
May > 36 mmol


I was shocked at the diagnosis as my only risk factor is my dad has type 2 (diagnosed at 69) - I'd be happy to share what I did on the success stories part of the forum because I put a lot of effort into my exercise plan especially but before I do, is it possible my Feb test was just some kind of false positive??

Everything I'm seeing suggests this is a wild up and down over 6 months.
I'm the "other moderator" mentioned above.

Bilous and Donnelly in the Handbook of Diabetes list a number of factors where HbA1c measurements can give what they call "spurious results" - these include things like anaemia, haemoglobinopathies, renal failure, age, and different ethnic groups. I have no idea if any of these are relevant in your case.

Secondly, the A1c test can be wrong: my most recent test at my GPs came back with my highest ever blood glucose level: I challenged it, they agreed to a lab test, and two blood samples taken ten minutes apart produced results that differed by around 15mmol/mol. Fortunately the lab test was bang normal. In your case though the three tests are not that different so I don't think that's a factor here.

However, assuming this isn't a testing issue - My symptoms started with an Hba1c of around 43 or 44. As far as I'm concerned, if a person has T2 diabetic symptoms, he or she has diabetes: raised blood glucose is just another symptom which causes additional knock-on problems. There's absolutely nothing magical about an HbA1c of 48 - it's just the figure that international endocrinology settled on that they would all accept as being of itself "diabetes". Personally I think the fact that 48mmol/mol is exactly 6.5% under the DCCT system used in the US might have had a lot to do with that number being chosen. Nothing prevents earlier diagnosis, but in practice that rarely happens in the UK these days.

I think it's possible that there are some of us who simply don't react well at all to any raised blood glucose. There are of course other people who report no symptoms at much higher BG levels. Us "sugar sensitives" seem to develop symptoms quite early. Mine weren't standard - I had no "frequent urination", in fact the exact opposite, as my kidneys almost stopped working.

I still have some very slight neuropathic tingle in my feet, which is probably permanent damage, but I wouldn't call it pain and it doesn't compared to the burning/stabbing full blown neuropathic foot pain. I also had a couple of diabetic symptoms that only appeared after my BG was back in normal range - mainly dry mouth (xerostomia). My speculation is that while my current BG might be normal, I was still carrying around a lot of damaged bits from the years of elevated glucose and it takes longer for those to be replaced.

The only thing I can suggest is to wait and see. That's what I did, and things stabilised. In the years after I lost quite a bit of weight, and a bit later restarted exercising. Your GP will undoubtedly tell you your blood glucose is normal and that's an end of it. And the GP might be right. But you need to be prepared for doing something should the GP not be right.
 
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eddye88

Member
Messages
15
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
Not eating chips anymore.
I'm the "other moderator" mentioned above.

Bilous and Donnelly in the Handbook of Diabetes list a number of factors where HbA1c measurements can give what they call "spurious results" - these include things like anaemia, haemoglobinopathies, renal failure, age, and different ethnic groups. I have no idea if any of these are relevant in your case.

Secondly, the A1c test can be wrong: my most recent test at my GPs came back with my highest ever blood glucose level: I challenged it, they agreed to a lab test, and two blood samples taken ten minutes apart produced results that differed by around 15mmol/mol. Fortunately the lab test was bang normal. In your case though the three tests are not that different so I don't think that's a factor here.

However, assuming this isn't a testing issue - My symptoms started with an Hba1c of around 43 or 44. As far as I'm concerned, if a person has T2 diabetic symptoms, he or she has diabetes: raised blood glucose is just another symptom which causes additional knock-on problems. There's absolutely nothing magical about an HbA1c of 48 - it's just the figure that international endocrinology settled on that they would all accept as being of itself "diabetes". Personally I think the fact that 48mmol/mol is exactly 6.5% under the DCCT system used in the US might have had a lot to do with that number being chosen. Nothing prevents earlier diagnosis, but in practice that rarely happens in the UK these days.

I think it's possible that there are some of us who simply don't react well at all to any raised blood glucose. There are of course other people who report no symptoms at much higher BG levels. Us "sugar sensitives" seem to develop symptoms quite early. Mine weren't standard - I had no "frequent urination", in fact the exact opposite, as my kidneys almost stopped working.

I still have some very slight neuropathic tingle in my feet, which is probably permanent damage, but I wouldn't call it pain and it doesn't compared to the burning/stabbing full blown neuropathic foot pain. I also had a couple of diabetic symptoms that only appeared after my BG was back in normal range - mainly dry mouth (xerostomia). My speculation is that while my current BG might be normal, I was still carrying around a lot of damaged bits from the years of elevated glucose and it takes longer for those to be replaced.

The only thing I can suggest is to wait and see. That's what I did, and things stabilised. In the years after I lost quite a bit of weight, and a bit later restarted exercising. Your GP will undoubtedly tell you your blood glucose is normal and that's an end of it. And the GP might be right. But you need to be prepared for doing something should the GP not be right.
Thanks Kenny.


I fully intend to keep on living my life as if I am pre-diabetic, regardless of my mmol and GPs advice - firstly, as per the second comment in reply to JenniferW, I still have the burning pains when I eat carbs so unless I figure out that's something else (e.g. intolerances), looks like I'm a keto guy going forward.

Secondly, bringing it down with effort in such a short time honestly just makes it clear how quickly it could raise if I take my feet off the gas as someone who is, as you call it, sugar sensitive.


I'm now finding the diet fairly easy and I've never been a drinker so I think I'll sustain the lifestyle without too much trouble - plus today I realised I can make cakes etc. out of almond flour, so looking forward to a bit of baking at the weekend.