I've been on a pump for a year, I wasn't giving a choice as it was one off the shelf as I lost hypo awareness and had two fits in a month. They ran my bloods at between 9-10 for 6 months to avoid these hypos before hand (under the nurses advice) I'm on animals vibe.
Since being on the pump my DSN nurse went off sick, as they lowered my blood sugars too quickly and I ended up with retinopathy in both eyes (since had endless laser sessions and two operations, still under a consultant monthly.) as a result I lost my business and income. I had an appointment a week after I lost my vision as the blood was so thick in my eyes it was like black clouds which moved, I found it impossible to do simple things like test my blood sugars and bolus on my pump. I feel really let down as I understand my pump has a voice activated bolus feature I was never told about in my meeting. So I would have my blood sugars tested in the morning at 6am by my husband and he would give me my breakfast and bolus for me, then I had to wait until he got home at 6pm before I could have my blood sugars retested and have a meal again. To be honest it was 4 months of hell! Luckily my sight is a lot better than it was.
That has annoyed me but I seen my consultant and a trainee last week my 2nd appointment since going onto the pump and I was just told you need to lower your average and I have been given no advice!
I run high low and everything in between,I believe my basal and carb ration are wrong. But I have no idea on how to correct these. I'm looking for advice really! My pump settings are the same as the day I received my pump, my bloods seem to have no patten I can see?? My Trainee DSN nurse doesn't have much experience with pumps, I phoned and asked about CGM and was point blankly told no.. I can't afford to self fund now as as I said I lost my business after I lost my sight!
It's all getting me done and now feeling so fed up and I don't know which way to turn!
Since being on the pump my DSN nurse went off sick, as they lowered my blood sugars too quickly and I ended up with retinopathy in both eyes (since had endless laser sessions and two operations, still under a consultant monthly.) as a result I lost my business and income. I had an appointment a week after I lost my vision as the blood was so thick in my eyes it was like black clouds which moved, I found it impossible to do simple things like test my blood sugars and bolus on my pump. I feel really let down as I understand my pump has a voice activated bolus feature I was never told about in my meeting. So I would have my blood sugars tested in the morning at 6am by my husband and he would give me my breakfast and bolus for me, then I had to wait until he got home at 6pm before I could have my blood sugars retested and have a meal again. To be honest it was 4 months of hell! Luckily my sight is a lot better than it was.
That has annoyed me but I seen my consultant and a trainee last week my 2nd appointment since going onto the pump and I was just told you need to lower your average and I have been given no advice!
I run high low and everything in between,I believe my basal and carb ration are wrong. But I have no idea on how to correct these. I'm looking for advice really! My pump settings are the same as the day I received my pump, my bloods seem to have no patten I can see?? My Trainee DSN nurse doesn't have much experience with pumps, I phoned and asked about CGM and was point blankly told no.. I can't afford to self fund now as as I said I lost my business after I lost my sight!
It's all getting me done and now feeling so fed up and I don't know which way to turn!