- Messages
- 369
- Type of diabetes
- Other
- Treatment type
- Insulin
So, after many months of not having a clear diagnosis, I had an appointment with my consultant today. The appointment was to get the results back from my MODY testing. Unsurprisingly the results were negative (which was suspected).
So my consultant said I have key factors for both T1 (young, healthy weight, active lifestyle) and T2 (negative antibodies) but in his opinion I am T2. Which I thought was shocking as I had prepared for a T1 diagnosis. At this stage I asked if I could reverse it.
He then proceeded to suggest that I could come off of my insulin and move to some other drugs in order to get my hba1c under 48.
Following this, He then asked to see my recent levels - which I showed him on the LibreView app. He then quickly said that actually I may never be able to come off of insulin as my levels are still too high and have large spikes (albeit much better levels than before). Which seems to be very contradicting.
He confirmed my insulin sensitivity (to what I inject) is normal - I’m not entirely sure what this means? Any ideas?
He also mentioned that my current long acting insulin (abasaglar) potentially needs to be changed to a different long acting. He said the reason is that for T1’s it doesn’t last the full 24 hours (which seems to be happening for me) and so I may need to change to another long acting which I take 2 times a day.
He then also told me that I need to go on the DAFNE course which is for T1’s to help with my basal bolus regime (again seems contradictory to what the appointment started with....).
My insulin ratios have also increased to try to avoid the large spikes I have when I eat my main meals. And that I now need to use the bolus calculator in the MySugr app - has anyone found this tool useful?
I have also been sent to have another c peptide test - which previously showed a low c peptide and high blood glucose.
He was unsure if I would be able to reverse the diabetes. And to me it seemed as though he was suggesting I wouldn’t be able to come off the insulin as I have such low pancreatic function.
He said a few years ago before tests were as advanced, I would be a T1. But for now I would not have a type and just be an insulin dependant diabetic. The focus is on getting normal levels rather than having a classification.
I just feel very confused by it all and in some ways I was hoping that my MODY tests would be positive so that I would at least have a diagnosis!
To be honest, the insulin has been working quite well and I have had minimal hypos and my levels are significantly better than before. So I am happy to continue with the insulin but I just want a clear diagnosis!
Anyway rant now over!
Any suggestions welcomed on my 2 questions above.
Have a great bank holiday weekend everyone!
So my consultant said I have key factors for both T1 (young, healthy weight, active lifestyle) and T2 (negative antibodies) but in his opinion I am T2. Which I thought was shocking as I had prepared for a T1 diagnosis. At this stage I asked if I could reverse it.
He then proceeded to suggest that I could come off of my insulin and move to some other drugs in order to get my hba1c under 48.
Following this, He then asked to see my recent levels - which I showed him on the LibreView app. He then quickly said that actually I may never be able to come off of insulin as my levels are still too high and have large spikes (albeit much better levels than before). Which seems to be very contradicting.
He confirmed my insulin sensitivity (to what I inject) is normal - I’m not entirely sure what this means? Any ideas?
He also mentioned that my current long acting insulin (abasaglar) potentially needs to be changed to a different long acting. He said the reason is that for T1’s it doesn’t last the full 24 hours (which seems to be happening for me) and so I may need to change to another long acting which I take 2 times a day.
He then also told me that I need to go on the DAFNE course which is for T1’s to help with my basal bolus regime (again seems contradictory to what the appointment started with....).
My insulin ratios have also increased to try to avoid the large spikes I have when I eat my main meals. And that I now need to use the bolus calculator in the MySugr app - has anyone found this tool useful?
I have also been sent to have another c peptide test - which previously showed a low c peptide and high blood glucose.
He was unsure if I would be able to reverse the diabetes. And to me it seemed as though he was suggesting I wouldn’t be able to come off the insulin as I have such low pancreatic function.
He said a few years ago before tests were as advanced, I would be a T1. But for now I would not have a type and just be an insulin dependant diabetic. The focus is on getting normal levels rather than having a classification.
I just feel very confused by it all and in some ways I was hoping that my MODY tests would be positive so that I would at least have a diagnosis!
To be honest, the insulin has been working quite well and I have had minimal hypos and my levels are significantly better than before. So I am happy to continue with the insulin but I just want a clear diagnosis!
Anyway rant now over!
Any suggestions welcomed on my 2 questions above.
Have a great bank holiday weekend everyone!