- Messages
- 369
- Type of diabetes
- Other
- Treatment type
- Insulin
So after having every blood test imaginable - they cannot diagnose which type of diabetes I have.
I have now seen two consultants and both have been unable to diagnose my diabetes - they have said at this time they cannot tell is I am T1, T2 or a rare form of MODY. They have also confirmed there are no further tests they can do at this stage which would help to classify me.
For now, on my medical records it says that I am an 'insulin requiring diabetic' and I am under the care of T1 specialists. I have been told that in 5 years time they may see if gliclazide is suitable for me, but for now I must stick on a basal and bolus regime (Levemir and Humalog) as it is working so well. It is hoped that I will shortly go onto Fiasp insulin as I have terrible rises after eating despite doing my bolus up to 30 minutes before (especially in the mornings!). My current hba1c is 51, compared to 103 on diagnosis and so I am happy with that progress although I still need it to get better.
I thought that I would be really upset about still not having a diagnosis, but it hasn't troubled me too much. Whilst it can be frustrating, I just need to remember that the right treatment is much more important than the type .
I wanted to post this so that others can see that its OK not to have a diagnosis months after initial diagnosis.
I also wonder how many others are in the same position?
I have now seen two consultants and both have been unable to diagnose my diabetes - they have said at this time they cannot tell is I am T1, T2 or a rare form of MODY. They have also confirmed there are no further tests they can do at this stage which would help to classify me.
For now, on my medical records it says that I am an 'insulin requiring diabetic' and I am under the care of T1 specialists. I have been told that in 5 years time they may see if gliclazide is suitable for me, but for now I must stick on a basal and bolus regime (Levemir and Humalog) as it is working so well. It is hoped that I will shortly go onto Fiasp insulin as I have terrible rises after eating despite doing my bolus up to 30 minutes before (especially in the mornings!). My current hba1c is 51, compared to 103 on diagnosis and so I am happy with that progress although I still need it to get better.
I thought that I would be really upset about still not having a diagnosis, but it hasn't troubled me too much. Whilst it can be frustrating, I just need to remember that the right treatment is much more important than the type .
I wanted to post this so that others can see that its OK not to have a diagnosis months after initial diagnosis.
I also wonder how many others are in the same position?