Gosh, there's a lot I want to reply to since I last checked in, but this struck me as most pertinent:
This is exactly my concern. That and no nutrients so, really, the very worst of both worlds. In this, finally, I can cite an advantage to him going to residential school 5 days a week in that I can change my diet drastically and only have to worry about its impact on him 3 nights a week (I only just pieced that one together - duh).
Also:
@Guzzler - You absolutely must share that recipe. It's my birthday next month and I shall cook it to celebrate my switch to Low Carbing - I need some time to plan it out, first, to settle Euan and resolve the issues surrounding him, to get used to testing and recording and observing and, of course, to use up, sort through, dispose of whatever carbs are left in the house.
Also, I'm attracted to the notion of swimming; the thought of being in the water is super-appealing. But it's completely offset by my terror of having to get in and out of the water - how would you do that with just 20 steps / 2 minutes before your legs go numb, on two walking sticks?
As it is, the urge to pee has me climbing up and down the stairs at least 5 times a day which (I'm hoping) it better than nothing at all. That and the mid-afternoon Rock Out With Euan sessions where we sing and dance in our chairs (like brilliant lunatics).
@AM1874 - You're very kind, thank you. I won't always be this brilliant, though - brace for disappointment! It's the shine of being new and expressive, but I appreciate the sentiment and am grateful for it <3
@lovinglife - Thank you so much for your post. Happily, my diabetic nurse is the same woman who saved Euan's life when he had his first asthma attack 5 years ago, and they formed a lasting bond - he wanted to go see her when he came out of hospital and they've been close ever since. This has already proven to be immeasurably helpful when it comes to flu jab season and waiting room meltdowns, and I know she will be nothing but a positive influence for him tomorrow.
You didn't say - do you low-carb (or adopted a different kind of diet / change?) And did your son come to terms with his anxiety? I had quite a serious health scare almost 4 years ago that had me in and out of hospital, at one point in critical condition, and then with various surgeries and it took a long time to resolve Euan's fear after that. It's one of the reasons I want to be so up-front about the diabetes and put him in front of good-quality information from a trusted source instead of allowing him to learn from Google.
In my experience, kids with ASD will often internalise what's worrying or frightening them until it becomes an almost constant source of anxiety. I'm eager to avoid that for Euan, partly because it's really bad for him, but also because I don't believe that - ultimately (when brought under control) - my diabetes needs to be that much of a significant issue in our lives.
How other parent carers have managed their children's anxieties is absolutely something I cannot find any information on. Particularly with diabetes, which can be quite a dramatic and apparent disease (the testing, the lifestyle changes, the health implications if it's not correctly managed), I feel truly under-prepared to help my son accept and cope with what's happening to me.